athlete – The Diabetes Football Community

What happened at SporT1Day 2019…

Posted on December 21, 2019December 21, 2019 by thediabetesfootballcommunity in diabetes, Football, sport

Well….. Where do I start?

I suppose it’s taken me a little while to get this written down with the vast amount of things on my plate in the last month but we got there eventually!

A culmination of months of behind the scenes work, emails, phone calls, marketing and raising awareness of what we were putting on came to fruition on November 17^th. There was no better timing than to host it 3 days after World Diabetes Day as a statement of support for one of the most important days in the calendar.

Before I talk about the event itself, I need to thank the University of Worcester for allowing us to host the last 2 SporT1Day conferences within their facilities. I have a brilliant relationship with so many people at the university and their continued support for me, the conference and The Diabetes Football Community is incredible. I will always have a strong affinity to my university for how they’ve encouraged & facilitated the projects we’ve come up with and I just hope I represent their values & ethos in the work I now do. A huge thank you must also go to Dexcom & Roche for sponsoring the conference and supporting with refreshments & the programme.

I also must say a huge thank you to Paul, who shares this joint vision to drive education in sport for people with type 1 diabetes. A mate of mine whom I’ve been able to co-create something special alongside. Thank you buddy… We’re on some journey with this and I can’t wait to see what we can do next.

But lastly before talking about the day a final thank you to the incredible speakers, paul’s family and my own family for helping us deliver the day. Without you it wouldn’t have been possible.

An early start for myself, the family and one of our speakers Alex Richards, as we made our way down to the university. I was definitely less nervous than the first time round after having the experience of last year’s conference already under the belt. After setting it up the best we could based upon the volunteers and resources we have available for this kind of event we were all really excited to start seeing people arrive.

As soon as you see people arriving with their tickets it’s an incredible feeling to know that all of the planning you’ve put in place is about to happen but it’s also the moment when you realise there’s a show to put on.

We kicked off the day with the incredible Professor Partha Kar, who really needs no introduction. An amazing man, who through his determination, passion and ability has helped drive a transformation in the way type 1 diabetes is both viewed and supported within the NHS. Partha gave us a talk about the focus and direction the NHS England Diabetes programme is heading in whilst demonstrating the incredible developments and uptake of technology across the country. Having someone of Partha’s credentials attend the conference was a huge compliment and I really do owe him (He’s got me down for a couple of beers the next time I see him!). @parthaskar on Twitter

We’d planned the day to give our audience a chance to take on the recommendations and thoughts of the healthcare professionals at the beginning and end of the day. We felt this would be a good way of allowing people to pick up some tips before listening to some of the experiences of our athletes and people living with type 1 diabetes throughout the rest of the day.

After the excitement of Partha’s opening we then had the pleasure of having 2 of the leading healthcare professionals in exercise and type 1 diabetes within the country, whom lead on the EXTOD programme (www.extod.org), talk to us about the science of managing blood glucose levels through particular types of physical activities and sport. Dr Alistair Lumb and Dr Parth Narendran have been imperative in driving attempts to improve the knowledge of other healthcare professionals across the country through EXTOD and having them share the knowledge and framework at SporT1day was a privilege. You can always tell when a topic and talk has captivated an audience by the response at the end…… Let’s just say we could’ve been there a lot longer with the questions. A huge thank you for coming along guys and I look forward to working with you in the future on some exciting ideas! @DrAliLumb & @parthnarendran on Twitter.

Following an opening of theory from the healthcare professionals we started to delve into some of the experiences of those living with the condition, who are putting this knowledge into practice day in and day out. So first up was Brian Hoadley or Type1Bri ( www.type1bri.com). A really top bloke, who encouraged me to share my journey and who had a huge impact on me personally as I became aware of the diabetes online community. He’s been a great friend of mine who’s always supported the work of TDFC from the very beginning. It was an honour to have Bri share his own inspirational journey of running the London marathon less than a year after being someone who didn’t do any exercise. To do that in under a year is epic for anyone, but made even more special and inspiring when you’re able to do it with type 1 diabetes. Bri shared the journey he went on, how he did it and the effect it had on him and his diabetes. A brilliant talk and achievement from Bri. So pleased we all got to hear it. @Type1Bri on Twitter

Next to the centre of our SporT1Day stage was Alex Richards. A very good friend of mine who’s work in sports psychology has taken a special interest in the experiences of people with type 1 diabetes in sport and exercise. Alex gave us a talk about perfectionism and it’s challenges to both athletes and those of us living with type 1. It was very poignantly linked to the goals we set ourselves and how most of us look towards outcome goals rather than process goals. Interestingly, those outcome goals are often out of our control to some extent, as winning trophies, representing teams or qualifying into tournaments relies on coaches, other players and beating the opposition which you can’t actually impact upon. His talk fascinated me having spent much of my life with this idea of perfectionism rooted inside of me and my focus on outcome goals, that I couldn’t always impact upon. Top work Al and I think there was a large proportion of the audience desperate for a chat about the presentation and keen to grab hold of the slides afterwards! It says it all about how interesting the talk was. @alex_acr on Twitter

Then we moved onto the incredible Melanie Gray. Now Mel will always have a special place in the history of TDFC as she was someone I spoke to when I was thinking about putting myself out there to share my individual experiences as well as creating TDFC in the early part of 2017. So to have her along to speak at our joint conference with 1BloodyDrop was an honour. Mel has been an inspiration to so many within the diabetes community as an international sprinter with the condition who has gone onto share her story widely through her renowned blog, advocacy work and now her role as a dietician. As an experienced speaker with a vast knowledge of her sport and how to manage type 1 diabetes within it, it was a brilliant watch and listen. I think anyone in the audience on the day would’ve enjoyed the insight surrounding Mel’s management which complimented talking about her work, which has had her featured in a nike campaign during the London 2012 olympics, seen her become a London 2012 olympics torch bearer whilst also developing her own peer support group Blue Circle Diabetes. If you want to take a closer look at what she’s up to head to www.lifesportdiabetes.co.uk to check out her blog and thank you Mel for supporting our conference.

We then had a chance to take a breath! It was lunch…. Now for everyone else it means take a breath and grab some food but for me, paul and a couple of the speakers who’d already spoken it was an opportunity to speak to members of the audience. So lunch went in the blink of an eye but we had so much more to come….

Our afternoon had a heavy tinge of football within it as 2 of the UK Diabetes Futsal squad shared their stories about getting involved in TDFC and their feelings towards the team. Having Tim and JT, share their thoughts so publicly about how TDFC has helped them through their involvement in our team was pretty special. I didn’t tell them what to say either!!! So for them to show their overwhelming support for what we do and showcase it so brilliantly to the audience was amazing. The power of peer support for people with chronic health conditions should never be overlooked and I firmly believe that its power can drive holistic improvements for people with conditions like type 1 diabetes. Listening to Tim and JT certainly made me feel that this is the case. After they’d both shared their stories it was a chance for me to briefly talk about how I manage my condition around my sport, some of the techniques and ideas I’ve adopted, as well as showcasing what TDFC has been up to and what’s planned for the future. To be honest, it was quite nice to just have a small part in the talking side of things such was the level of organisation required! Hopefully my small snapshot in the day was a worthwhile 10-15 minutes amongst the stars of the show. As we grabbed our coffees, we readied ourselves for Craig Stanley to take to the stage. If you wanted to hear more on JT or Tim’s journeys you can follow them on twitter under @Tim_Ward07 & @JonoTyrrell

I’m biased as a Football/Futsal player but Craig (Staners) talks so honestly and openly about his journey in professional football with type 1 diabetes that it just fascinates me every time I’ve heard him share it. Professional sport and the “elite” are supposedly supported by infinite resources, in the way of money, people and specialists, but Staners shares a story that despite his day job being to play in front of thousands of people playing Football, the support he had throughout his career was limited. I’d always felt this with my experiences in the part time game but you just assume that the added professionalism would improve the experience that players with type 1 diabetes had. Instead talks like Craig’s continue to demonstrate that mainstream sport still hasn’t got it right from the grassroots through to the elite for people living with chronic health conditions. This is where I hope campaigns like the #WeAreUndefeatable campaign created by Sport England goes some way to addressing the issues we face. Despite what Staners has faced he’s had an amazing pro career of over 500 appearances, a Wembley playoff victory and having the opportunity to captain the England C team. All of this despite living with type 1 diabetes. He’s a very down to earth guy but what an example he sets for us all. A massive thank you buddy for coming to share your story with us again. If anyone wants to follow Staners on social media you can find him on twitter under @staners6 and on instagram under @staners10.

Our last lived experience of the day came from my partner in crime Mr. Paul Coker. His experience of living with the condition for over 40 years which combines feats of endurance along the way always provides an insightful and inspiring listen. This time we had the pleasure of listening to the story of climbing Mount Kilimanjaro for JDRF with a number of other type 1s. I’ve heard Paul talk a few times but not on this topic with so much depth. It was really interesting to see the impact altitude had on himself and others managing the condition and certainly provided some important insight into how to go about tackling that sort of challenge. Paul’s experiences of Kilimanjaro provided yet another valuable varied talk for our audience whom I’m sure gleaned so much.

Another member of our healthcare profession came to round up the day with a specific view of what it’s like as a diabetes specialist nurse (DSN). Emma Innes talked us through some of the specifics of how we should work with our specialist team, some of the recommendations from healthcare professionals for sport & exercise and how technology is making it easier. Emma now uses her experience in the field to lecture at the University of Worcester for the nursing cohort of students. Her talk helped to remind us all of the importance of working with our healthcare professionals to achieve our joint goals together. A big thank you for sharing your insight for us Emma! You can follow Emma on Twitter under @emmainnes3

Finally we finished off with a Q&A session for the audience and as I stood at the front with my fellow speakers, providing answers in the best way we could, I knew we’d delivered something special. The engagement, the faces and the thank you’s we received told us that. Now we need to consider where we go from here…. The magic of what we’ve started needs to be built upon and myself & Paul need to go away to think about how we make this grow and work for the future. Nevertheless SporT1Day was an incredible success which I certainly will look back upon with a huge amount of pride!

If you’re interested in where we go next make sure you follow @SporT1Day on twitter for updates and news from the conference. Our plans are always ongoing and if you think you’d like to see us in a different part of the country or you have an idea you’d like to share with us, you can contact TDFC, 1BloodyDrop or the SporT1Day twitter account to get through to us.

Thank you for all of the support with our conference & the wider work of TDFC and I hope you all have an amazing Christmas!

Chris

Live. Play. Inspire.

World Diabetes Day 2019 – Chris’ Message

Posted on November 14, 2019 by thediabetesfootballcommunity in Uncategorized

A day that I remind myself to thank the great Sir Frederick Banting for the gift he gave me, a chance to continue living my life despite being diagnosed with Type 1 Diabetes. His co-creation of Insulin in the 1920’s has saved millions of lives, including my own, from a life cut short by this condition. This day is about you my friend, as we celebrate your birthday and the gift you gave us.

With that extra time you’ve given me, I hope I’ve done you proud. I’ve done my best to defy the pitfalls of Diabetes and use the experiences I’ve worked hard for and been fortunate enough to have, to help others that share this condition with me. I feel that your gift to us all is one I won’t overlook or take lightly, and if I can gift anything back to others like me, then I will at least be living in a way which befits your legacy. I know I’m lucky I’m still here, with the developments of science, and in particular the incredible NHS, to thank for the life I’m able to live in 2019. Others round the world still aren’t as lucky as we are here in the UK and I’ll always be grateful for what we have.

Through the work of TDFC, the honour of representing my country within Futsal and my advocacy work for the condition, I hope I do what I can to ensure the time I’ve been given back is not wasted. I’m able to live a life which I decide upon, not my condition, which is all thanks to you, Sir Frederick Banting. There is another person I want to talk about though today…

A man whom I’ve rarely mentioned publicly when talking about Diabetes is my grandfather who also lived with Type 1 Diabetes. He was diagnosed at the age of 21 in 1956 and lived 40 years with type 1 before he died in 1997. 40 years of living with the condition whilst having only the use of animal insulin and without the medical support/devices we have nowadays to help us control it. I think to do that was pretty amazing and even though we met for just a short period in my life, I’m just glad I got the chance. A man with an incredible story, who defied the odds more so than I have in my opinion, that I wish I’d have had the chance to get to know more. I was very young at the time of his passing and at this point I hadn’t been diagnosed with Type 1. I’m grateful he never saw a day where I was diagnosed with the condition (My Mum is too!) , which had potentially passed on a generation to me, because I know he’d have been devastated. But more than ever I wish he’d have seen the work that has been done through The Diabetes Football Community. In the face of what we both lived with, I’ve tried to tread a positive path, which I’m hoping many others can follow. I know he will have been extremely proud of this project and I’m sure he’s looking down smiling upon it all from wherever he is.

I wanted to talk about both of these men, whom never knew I lived with Type 1 Diabetes, because of the lasting impact that they have had on my life. A day of remembering Sir Frederick Banting felt like the right time to remember my Grandad too. A day full of positivity surrounding Diabetes that I want to dedicate to them both.

My life now consists of ensuring I do them both proud by ensuring I live a life full of positive experiences, whilst sharing the journey and helping others with the condition fulfil their potential in sport. If I can do that I’ll be a happy guy and I think they would be too. I’ve now lived with the condition half as long as my Grandad did, with this year marking 20 years. I hope by the time I hit 40 years since my diagnosis, diabetes will be something we remembered we lived with not something we continue to.

So what’s my lasting message for World Diabetes Day?

Be grateful for what we have, treat the time we have as a gift and don’t let Diabetes define the way you live your life. See it as an extra hurdle to jump not a mountain to climb.

This one is for you Grandad & Sir Frederick Banting…. I hope I’ve done your legacies proud.

If you want to see an incredibly inspiring story from Katie McLean who’s sharing her story publicly with us for the first-time head to the below link:

https://www.youtube.com/watch?v=8QbZR6alWBw

And make sure you don’t forget to pick up your tickets to #SporT1Day this Sunday at the University of Worcester (17th November 2019)… We still have a few left and you can get your hands on them on the below link:

www.eventbrite.co.uk/e/sport1day-2019-tickets-59520275747

Have a great day everyone and Happy World Diabetes Day 2019!

Chris

It’s much more than just Football or Futsal… Part 4 (Zak Brown)

Posted on March 4, 2019November 9, 2019 by thediabetesfootballcommunity in diabetes, Football, sport

In our fourth instalment we feature Zak Brown… Zak is currently living and working in Australia but has been heavily involved in all things TDFC throughout 2018 as a pivotal member of the UK DiaEuro squad, whilst also heading out to Ireland with Chris to observe the Diabetes Junior Cup… Zak’s passion for the project is evident and in this post he shares his thoughts on how being involved has helped him! No more words from us, over to you Zak:

“I think firstly and foremost, the opportunity to meet several other T1D’s with a passion for football was amazing in itself! To then be able to discuss our condition as we went through very similar schedules during DiaEuro was great – having a diabetes discussion with your team-mates was like having 10 nurses beside us, as they added great value through personal stories and specialist advice.

The access to technology was a huge thing for me personally. I was a bit skeptical of the Dexcom G6 initially, as I have been on the same insulin and blood sugar testing strategy for a number of years and been relatively consistent (HbA1c usually between 50 and 61). It took a couple of days to adapt but several months later and I wish I still had the G6. I regularly see T1D’s on social media posting about how much the Dexcom has improved their control in recent times.

The other thing which was highlighted for me was the carb counting. I have generally just guessed my insulin based on what I am eating and knowing how it has affected my sugars in the past, but to see plenty of my UK team-mates measuring the carbs on their packets of food and calculating their dinner plate in the their head was a good insight for me; and pushed me to start making more calculated guesses with my own carb intake as life and diabetes continued after the tournament.

Whilst I wouldn’t say the experience has directly improved my control yet, I think it has acted as a gateway for me to access more information, attend diabetes meet-ups and possibly gain access to modern technology, which I expect will have a direct improvement on my Type 1 Diabetes control moving forward! Only time will tell…

Zak Brown

UK DiaEuro 2018 Player”

If you want to follow Zak’s journey on social media head to his twitter @mrzakbrown or his instagram @zakbtown

It’s much more than just Football or Futsal… Part 3 (Jack O’Brien)

Posted on February 22, 2019November 9, 2019 by thediabetesfootballcommunity in Uncategorized

In our third addition we share the thoughts of Jack O’Brien… Jack has a fresh outlook on the way Diabetes has impacted his life having been diagnosed quite recently! His account offers some great insight into how a newbie to type 1 Diabetes feels about the challenge of this condition coming into their life… No more words from us let Jack do the talking…

“First of all, I think I should point out that I am a relative newbie in the Diabetic world having only been Diagnosed 2 years ago today! (I wrote this on 6^thFeb). DiaEuro was only the second time I was going to be away from home, and all the supposed safety that comes with that, since I was diagnosed.

To say I was nervous doesn’t really do it justice! I was fully aware that I was going to be spending the week with a group of people who have for the most part been Type 1 Diabetic for a long time. The fear or seeming like I don’t really know what I’m doing, or “messing up” all the time was playing on my mind because this was for me the first time I would be spending a prolonged period of time with other Diabetics. It’s funny how weird things like this can play on your mind! I was seriously still at a stage where I felt like it was only me who suffered from hypos because everyone else would have it under control!

The first morning we are there, we all go down to breakfast together as a squad to enjoy the spread of food that was being put on. It was this experience that alleviated all the pre concerns I had. Seeing most of us checking sugar levels and injecting insulin immediately eased my nerves. This was something that I found awkward to do beforehand.

Before you knew it, Diabetic chat was bouncing around the table. The same problems I found, others were also talking about. In a weird way, if felt so liberating! That sense of not being in something alone, that others have found ways to overcome similar situations and have come through them to find solutions was amazing for a newbie to hear.

You hear the phrase “trial and error” thrown around a lot when it comes to Diabetes, and I really understood that so much more after this journey. A corner was well and truly turned for me during this week. I am now playing sports more regularly, because I feel more confident. Understanding food on the day of playing football is something that is so important. Seeing other people using the Dexcom looked brilliant. Once I finished my trial run, I missed it so much that I signed up for 12 months.

The whole experience was invaluable to me. I learned more in that week than I would have done in years studying books and speaking to specialists. Seeing people who regularly play sport and manage their Diabetes gave me so many tips and ideas that I use myself now. There really is no better experience than experience itself.”

Thank you to Jack for sharing his thoughts on how TDFC has helped him and the UK DiaEuro team in particular. If you want to follow Jack on social media you can find him on Twitter @DalstonGooner … If you want to know what’s going on at Arsenal FC Jack’s your man to follow!!

It’s much more than just Football or Futsal… Part 2 (Scott Burrell)

Posted on February 13, 2019November 9, 2019 by thediabetesfootballcommunity in Uncategorized

In our second instalment of “It’s much more than just Football or Futsal” we look at the story of Scott Burrell. His journey with TDFC and type 1 Diabetes has been staggering and for those of you unaware of what Diabetes care was like without the technology that is available now, I’d urge you to read on… This is a fascinating account of how TDFC has effected and improved Scott’s life and another example of a social / community based project like ours supporting healthcare benefits and objectives for those living with the condition. No more talking from us lets hear from Scott in his own words:

“Being selected in the UK DiaEuro squad really changed my ‘diabetic life’ and that’s by no means an exaggeration! Firstly, and something a majority of the squad had said, was that they’d never met another T1 in ‘normal’ life so that was great. Like any football squad you tend to bond quite quickly with the other players but we bonded especially quickly as we all shared the condition. My knowledge of T1 has increased ten fold. It was great to share stories and bounce successes/failures off each other.

I was actually the only member on mixed insulin. I was taking Humulin M3 which was the same insulin I’d used since diagnosis in 1999! I’d been told for many years, probably close to 10, that a basal/bolus regime would be better for me, but me being a stubborn so and so I’d always thought I’d be better sticking with what I knew. Seeing all the other lads using the basal/bolus regime and many telling me how they had moved from mixed insulin and how much better it was really gave me the incentive to change.

A few months after we got back I eventually made the switch and now take Toujeo & Novo Rapid, I’m finding it much better and in hindsight wish I’d changed over many years ago. I’m certainly having less hypos which had always been a big problem for me before. As good as healthcare professionals are it was the kick from people living with the condition day in, day out which convinced me to finally change.

Finally I’m a lot more open about my Diabetes now… Growing up and even in my early 20s I’d try to hide it as much as possible, not talk about it and only tell people I was T1 if really needed. My mentality completely changed about that having been selected in the squad. I’ve now had newspaper articles written about me and appeared in a TDFC video filmed by BBC Hereford & Worcester which they shared on their social media platforms talking about the project and the condition. It actually made me feel ‘proud’ and gave me a desire to talk about diabetes for the first time…something I’d never experienced before in my time as a T1.”

Keep an eye out for more stories from some of the community and if you want to follow Scott on social media head to his twitter account @scottbufc to get in contact with him.

Diabetes, Football and Me

Posted on January 9, 2019November 9, 2019 by thediabetesfootballcommunity in diabetes, Football, sport

It’s great to be able to share stories of our community and when we asked Zak if he’d like to write for the blog he was really keen… If you’d like to write something for us please get in touch! Anyway, over to Zak…

Hi, my name is Zak. I am 26 years old and a PE Teacher from Lancashire, England but currently living in Sydney, Australia.

Football has always been a huge part of my life and being diagnosed with Type 1 Diabetes aged 14 did not change this one bit.

Despite my Dad’s initial fears that I may not be able to play football in the same way, we were reassured by the nurses at Blackburn Hospital that I could continue my number one hobby soon enough. Sure enough, after a few minor adjustments and some extra pre-game preparation, I lined up for my team just two weeks after diagnosis! I remember it so vividly, tucking into a couple of digestive biscuits at half time to keep my blood sugars up and cramping up towards the end of the game.

I know that many people have struggled to keep up their previous lifestyles after diagnosis, through fear of hypos/hypers or by misinformed advice, but it’s something that has never stopped me from doing anything I like… except for one thing – scuba diving.

I have tried to Scuba Dive twice in Thailand and Australia but not been accepted both times. Without a doctor’s letter of approval after taking private health exams via a registered “dive doctor”, unfortunately I had to stick to snorkeling. I’d be interested to hear about other people’s experiences with scuba diving so please get in contact if you have a story or info worth sharing!

And despite the scuba setback, I have done kayaking, bungee jumps, overnight treks, 100km bike rides and many many more adventurous activities!

Having diabetes has its obvious challenges and hurdles we face day in, day out, but it has given me some great experiences that I will cherish for a long time to come…

I have been fortunate to represent Great Britain in the Junior Diabetes Cup held in Geneva, Switzerland. In my first year (2009), we won the tournament in a nail-biting penalty shootout against Slovakia. I was due to be the next penalty taker and I can’t describe the relief I felt at not having to take one! I went back again the next year and was nominated to be captain, which was an incredible honour. Despite finishing the top scorer in the tournament, we lost 1-0 in the final to Slovakia who got their sweet revenge (excuse the pun).

Then in September 2016, I decided to move to Australia to give life a go “down under”. I have found a great football team here in Sydney and have represented Australia at the Mini Football World Cup in Tunisia, playing in front of a packed stadium of 3000 fans under the floodlights! I spent a bit of time pre-tournament learning the national anthem so that I didn’t have to mime awkwardly whilst on camera! I was also part of the UK’s first diabetic futsal team to play in DiaEuro 2018, which was an amazing experience both on and off the court. To meet so many other diabetics with a passion as big as mine for football was incredible, you can imagine how many stories were shared during that week!

A few adjustments have been made after moving to Australia, most notably with my prescriptions and dealing with heat of up to 40 degrees during summer! I have to pay for my diabetes supplies here, which makes me appreciate just how good the NHS is back home. Playing football in the heat took some trial and error too. My suncream is now just as important to pack as my insulin on a Saturday afternoon!

Two and a half years down the line and I’m still enjoying life here. I’ve met one other sporting diabetic superstar and her family in Sydney – my namesakes the Brown’s have been great at handling Ellen’s diabetes whilst she competes at the highest level of futsal in Australia at U17 and all age women’s level. I hope to meet and chat to a few other sporty diabetics in the near future, so if you’ve read this and want to add anything of your own then please step forward!

G’day

Zak

If you want to find Zak on social media head over to his Twitter @mrzakbrown or his Instagram @zakbtown

2018… Looking back to look forward

Posted on December 23, 2018November 9, 2019 by thediabetesfootballcommunity in diabetes, Football, sport

Firstly I’d like to wish all of our followers, volunteers, players, coaches and anyone involved in the TDFC family a Merry Christmas and a happy new year!

What a year it has been…. We’ve done some incredible things in 2018 and I really just wanted to summarise what’s happened, thank some of the amazing people who have helped us make it happen and look forward to what 2019 might bring for The Diabetes Football Community.

So where do I start…

For me one of the most important projects to highlight and look back on was one of the first in 2018. The 24 hours in the life of a Diabetic Footballer ( #WalkInOurBoots) was an important awareness and education project which showcased the Andrewartha family and Mitch’s battles with type 1 as a young footballer. This video fills me with immense pride every time I watch it. For me it encapsulates everything about living with type 1 and wanting to play football during childhood. It showcases the immense physical and emotional strain it puts on the family, as well as the incredible amount of preparation and determination needed from Mitch and his parents to get him out there playing on a Saturday. Every time I watch it back I’m inspired, moved and so grateful to the community we’ve created for supporting our ideas and projects. We do it for you and we couldn’t do it without you!

A massive thank you to Dave, Faye & Mitch for agreeing to do the documentary and their amazing performances! Also a huge thank you must go to Ferenc Nagy who filmed and edited the video. A great job buddy…. If you want to check out the documentary head over to the below link where you can find the video:

https://www.youtube.com/watch?v=ZWjlrLbvWr4&t=39s

The #WalkInOurBoots campaign was just the start!!! We then focussed on creating the first ever all Diabetes team to represent the UK and compete at the European Futsal Championships for people with diabetes (DiaEuro, www.diaeuro.org )… We don’t like to do things by halves! From the outset I knew it would be ambitious and extremely challenging to not only recruit players living with diabetes, but also to recruit members of the “staff” team who were willing to give up their time for nothing other than the experience (thank you to Harley, Paul & Jahna)! But what about the money?!! It’s quite expensive to get 14 people on a plane with kit and a roof over their head for a week!! A massive thank you must go to our sponsors Dexcom, Gluco and Havas Lynx for supporting the project in 2018 as we couldn’t have done it without you! As I look back now… A year ago it was an idea in my head which I’d just started to share on social media…. A year later and we’ve played in our first tournament and are planning for our second…. Sometimes I have to pinch myself to check it’s all been real! It was an incredible journey and achievement to create the team, manage the project and play in the tournament. Being stood alongside my 10 fellow type 1’s to represent our country and our condition was something I’ll never ever forget. Scoring 2 goals in our first win just topped it all off for me…. It still feels like a dream to me. I’ve made lifelong friends through this project and I hope the community draws a huge amount of inspiration from what we were able to achieve! With everyone’s support I hope this is a project and team I hope we can continue for many years to come…

https://www.youtube.com/watch?v=Sf8n6LSLRRM

Whilst we were busy planning for DiaEuro we also joined forces with 1BloodyDrop and the University of Worcester to deliver the first Type 1 Diabetes and Sports conference in the UK led by people with Diabetes for people with Diabetes ( #SporT1Day ). An idea conjured up by myself and Paul Coker, we wanted to bring people together to further the knowledge of sport and exercise management for those living with type 1 diabetes. We tried our best to bring in speakers which demonstrated a variety of sports, approaches and experiences to offer a rounded view of type 1 management in sport and exercise. The line up included type 1 professional athletes, university lecturers, a psychologist and sporty individuals keen to share their experience of managing the condition. It really was a special event which I loved hosting and presenting at. I hope that everyone attended continues to utilise the strategies shared on the day and due to the overwhelmingly positive feedback we received it’s something myself, Paul and the University are looking at re-creating in 2019 so keep your eyes peeled for that. A huge thank you to those who attended and to 1BloodyDrop and the University of Worcester for co-creating this amazing event! If you want to read up on the 2018 conference check out the below blog post:

(https://thediabetesfootballcommunity.com/2018/05/28/the-first-sport1day-conference-organisers-perspective-chris-bright/ )

I feel that whilst we try to support people with the condition through advice, education and support through the community’s projects and members, I’ve always felt we need to try and drive change in a mainstream environment to counteract the stigma and stereotypes myself and many others have experienced. To do this I felt it was important to bring stakeholders in the Diabetes and Football world together to strive for change. In July 2018, we had the first Diabetes Steering group meeting led by the Worcestershire FA to do just that. We’ve invited the local university, the local NHS, members and volunteers involved in The Diabetes Football Community as well as parents of a child living with type 1 to join us within the group. Our remit is very much about trying to improve the knowledge and awareness of Diabetes within Football to improve the inclusivity of those living with the condition within the game. So far we’ve had 2 very positive meetings with some brilliant ideas coming up which we hope to develop forward into 2019. It’s a hugely positive step in the right direction which I’m sure will see tangible results for the whole community in the not too distant future!!

Around the time of our first meeting I also went over to Ireland on a scouting mission… Myself and Zak Brown (Our UK DiaEuro Manager’s Player of the Tournament), had spotted online about a junior small sided football tournament taking place in Dublin for children with diabetes and with the nature of what TDFC does it was something we couldn’t afford to miss… Ever since I started TDFC up the support of parents and children coping with type 1 diabetes has been incredible and this was an opportunity for us to do some fact finding for the future… I want us to deliver a project which really gives back to this group of people and I promise that we’re planning something for 2019, I just need to get my masters out of the way first!!! Diabetes Ireland did an amazing job at delivering their tournament and celebrating the successes of the children who took part. I was just so glad we were able to attend on the day and thank you for your hospitality… If you’d like to read up more on this check out the below blog post:

https://thediabetesfootballcommunity.com/2018/09/10/diabetes-junior-cup-2018/

I think one of our last projects is perfect for this time of year! If you need any inspiration around this festive period or you’re finding things tough I urge you to watch our World Diabetes Day video below… The kids did an amazing job at sharing their thoughts and they get me every time! It’s very special seeing the way the community has come together to support what was an idea floating around in my head. This is all about you, the people who interact with us, and as long as we continue to hit the mark by educating, supporting and inspiring you, I’ll be delighted! Thank you to everyone who contributed to this video!

https://www.youtube.com/watch?v=C353oCtYH2U

A year I will never forget and one that has shaped the future for TDFC. We’ve become an official registered community interest organisation which has furthered the ambition and potential reach for the future, we’ve received recognition on local BBC radio stations and social media, we’ve exhibited up and down the country at conferences in the Diabetes world and continued to grow our social media presence throughout 2018. None of this is possible without the continued support of people in the Diabetes community so all I’d ask is if you like what we do, please keep sharing, raising awareness and getting in contact with us. We will always need support and funding to make our goals happen so whether you like, share and retweet our posts or you’re able to help us with sponsorship or donating to the cause everything is valuable and we appreciate it so much.

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But let me give you a sneak peak at what we’re thinking for 2019…

There will be more of the same but hopefully with some exciting new developments alongside projects we already have in place.

The UK DiaEuro Adult team will be continuing with an emphasis on the DiaEuro tournament in 2019 whilst also creating opportunities to play against our near neighbours in Ireland who are creating their own team. I’m seeing an exciting future for our local rivalry!!! Another exciting participation opportunity for the adult type 1’s in the London area is the creation of TDFC London, project managed by our man Bryn White to take part in the London Futsal League (https://www.facebook.com/LondonFutsalLeague/) as an all diabetes team for the very first time. They will be kicking off for their first competitive game in February 2019, so keep an eye out for the developments on our social media and if you’d like to help support them, get involved with the project, play in the team or sponsor please do get in touch!

As I mentioned we hope to re-create the #SporT1Day conference in 2019 that takes on the feedback from last year to offer a bigger and better event! I’ll be working with Paul and the university to see when and how we go about doing this over the coming months… As always any ideas you may have make sure you get in touch.

As I alluded to within the Ireland trip I mentioned earlier it’s definitely time we tried to put a participation opportunity together for our type 1 kids and their parents out there. I’d like us to work towards delivering a day/tournament in 2019 but this will as always rely on support from the community, sponsors and volunteers to make it happen but it’s something I’m really passionate about creating, so let’s give it a shot!

Lastly, I’d suggest that our emphasis around education will be pushed further as we continue to develop the Diabetes Steering group and partnerships with other organisations to champion education on diabetes throughout different walks of life. We’re really keen to ensure we develop resources and tools to drive further understanding and awareness within mainstream environments/sport whether that is with the FA, schools or clubs. If you have any ideas about how we might do this we’re all ears.

Right… I’ve talked far too much on this blog but I felt it was important to demonstrate the amazing work we’ve achieved in 2018, our amazing community and the ambition we have for the future. The wave is coming and growing in size. Patient led initiatives like ours are beginning to help shape the way people are supported with chronic medical conditions and I couldn’t be prouder to be the founder of this one…

A favourite saying of mine at the moment is dream big, then dream bigger. If we can achieve all of this in one year, myself and TDFC need to set our sights on doing it bigger and better in 2019! Which is exactly what we intend to do.

Lastly to anyone out there who might be reading this, in any part of the globe, if you like what we’re doing or want to get involved please get in touch! We know that our work isn’t confined to the UK where we’re based and the ideas we generate are mostly what we come up with! If you’d like to help in any way or work with us, you know where we are.

As always a huge thank you to the directors and volunteers who give up their time to support our cause, we couldn’t do it without you! Let’s make 2019 bigger and better than what has gone before.

Merry Christmas and a Happy New Year!

Chris

Food Series Part 1 – Healthy Eating: Getting the balance right

Posted on August 22, 2018November 9, 2019 by thediabetesfootballcommunity in Uncategorized

My name is Jo Hanna and I am one of the Diabetes Dietitians working at Poole Hospital but also a huge exercise enthusiast! I’ve been a Dietitian for 8 years now and working in diabetes for 5. Secretly I always wanted to be a Sports Dietitian working for Manchester United! I grew up playing football and most of my childhood was spent as the token girl in the team, even playing for Dorset under 12s. Football was my true passion but sadly for me at the time football was still considered a ‘boys sport’ and once I reached the age of 12 I was told by my school I could no longer play football with the boys. I was devastated by this at the time and although I got back into football at University it was too late for me so I ended up running instead. I have pushed myself in this area, winning 6 of the Dorset Road League races last year in addition to my greatest achievement, a sub 3 hour London marathon.

Exercise for me, as I’m sure it is for many of you is my stress release and plays a huge part in my self-esteem and social life. It therefore really saddens me that 36% of people living with type 1 diabetes view exercising to be a challenge. To be honest I’m surprised it’s not higher! I decided along with our consultant Mike Masding that it was worth trying to target this group in a specific exercise clinic to allow tailored advice around nutrition and insulin adjustment, to enable those struggling to enjoy their exercise and de-stress rather than the opposite. Training as I well know is challenging enough without throwing diabetes into the mix! I’m keen to ‘even the playing field’ in any way I can.

I decided I wanted to write for the TDFC to see if I can help advise the wider sporting community and given my passion for football in particular I thought this would be the perfect place. It’s inspiring to see the UK’s first all Diabetic Futsal team (Click for Players’ Blog) competing this summer as well as the results they achieved. I work with children and teenagers with diabetes too and feel these players are a great role model.

My aim is to write a different blog every few weeks with a few tips and hints to help you get your fueling right both pre, during and after. Often we tend to base our advice around timing and quantity of carbohydrates but as I have come to understand the quality of the carbohydrates and protein and fluid intake are also key components I would like to cover. I’m keen to help and advise in any way I can so please if you have any particular topics you would like covered just let me know.

Firstly today let’s consider your overall daily intake as it’s always best to review this whether you have diabetes or not if you’re serious about your sport. Often I’m finding overall carbohydrate intakes are inadequate as the focus tends to be around the actual activity itself. Football is a classic example of a sport that can actually result in quite stable readings at the time due to the fact there is a mixture of slower jogging and sprints. The bigger risk here is hypos after the game or training due to depleted glycogen and increased metabolism, this is a really important aspect to consider when avoiding the dreaded nocturnal hypos. To help avoid this ideally if you’re training regularly you need 50% of your intake to come from carbohydrates (including fruit).Protein should contribute approximately 25% of your diet (timing is key with this) and the other 25% should come from your vegetables and salad. Fat is likely to come alongside your carbs and protein intake but can also be a useful tool in helping to alter the timing of peak absorption of glucose from any carbohydrate. Don’t forget your fluid either as even if you have your glucose levels perfect if you’re dehydrated, even by 2% this will impair your performance.

Over my next blogs we can look at;

Carbohydrates-type and quantity pre, during and post (this might be a few blogs).
Protein -why it’s important and timing of this.
Fruit and vegetables-why these are important too
Fluid-getting this right

Feel free to contact me at Joanna.hanna@poole.nhs.uk