Our Journey with Type 1 and Football…

Another amazing story to share with the community brought to you by Karen Brown, the mother of Ellen, a young type 1 who’s having a fantastic time with her Football/Futsal at the moment. Ellen & Karen have been big advocates and supporters of our work at TDFC from the very early days so it’s brilliant to be able to share their story! No more words needed from us, over to you Karen…

“Our daughter Ellen was diagnosed at age 8 with type 1 diabetes. As you all know it hits like a bomb and the early days are hard. Somewhere amongst the haze of diagnosis we made a decision that when we got Ellen home we would stabilise her doing all of the sport she usually did. So the day after discharge we took her to school for a few hours and the following Monday she started back swimming. I sat on the edge of the pool chewing my nails hoping she would be fine. Strangely enough the year she was diagnosed is the only year she hasn’t played football (played 1 year of netball and hated it!). Ellen prefers to manage her diabetes with a pump (Medtronic) and we use CGM periodically.

Since then it has been buckets of football and within the last 4 years she has also played futsal in the off-season. It is amazing how different the two are to manage. Football often sends her low- particularly in the cold Canberra winters (we live in Australia) whereas futsal sends her high due to the adrenaline. As futsal isn’t as big in Canberra her futsal club (Boomerangs FS) travel to Sydney to play in a Sydney comp. So every Sydney game we travel between 2 ½ to 4 hours each way (depending on what side of Sydney the game is) to play. The weather in Canberra is quite dry whereas Sydney can be humid which can affect Ellen’s BGLs (sends her low) so at the half way stop en route to the game we reduce insulin if she has any carbs and put a reduced temp basal on. We find doing low carb on the morning prior to the Sydney trips much easier to manage. At least we are only fixing the humidity problem. Then during the games she heads high! Sydney games we nearly always use CGM to help keep an eye on things. If it’s a home game its breakfast as usual. After the game she eats what she wants.

Ellen Brown Picture 3

Whilst having diabetes can be tough when you are playing football and futsal, we run at it with the attitude that if we have a tough day diabetes wise we look at why and see if we can do something different. There are days when you just can’t explain why the numbers are what they are! All of her coaches and teams have been really supportive and the boys often try and guess her Blood Glucose Level – she plays in the Boys National Premier League. Ellen also chooses to celebrate her ‘diaversary’, so the team usually hangs out for the cupcakes she takes along to celebrate another year kicking the butt of diabetes.

Having diabetes hasn’t stopped Ellen from achieving in soccer and futsal. The last 12 months have been particularly rewarding!!! 12 months ago her girls futsal team won both the premiership and championship in the Sydney comp. For outdoor her BBFC U16’s team made the Grand Final and won in a penalty shootout. She then made the ACT team (regional team) to play futsal at Nationals in January – they were runners up in the Grand Final in a penalty shootout. And a couple of weeks ago at the presentation night for Boomerangs FS, Ellen was awarded female player of the year. We are pretty proud of her. Winning isn’t everything but it is great to get some wins and they have been a while coming!! Though I must say the victories are much sweeter after the effort you put in to get the diabetes right. (excuse the pun!)

Ellen Brown Picture 1

As much as it is a challenge, there have been lots of good things about having diabetes in our lives for the last 8 years. We have made a whole new bunch of friends we wouldn’t have otherwise met. Whilst it is so nice being able to converse with those who understand the challenges and learn new things from. Ellen has had the opportunity to speak at JDRF fundraisers and she was recently asked to take part in some research at ANU.

Being part of TDFC has been a huge help though. It was so nice to hear from others who play football and be able to read about their experiences. With Ellen being a girl it was so nice to read about Noel and what she has achieved. We got to meet Zac (UK DiaEuro Player) at one of Ellen’s games in Sydney and hope to see him again soon. Whilst it’s also great to see that Chris represented his country in Futsal, which gives Ellen so much hope she can achieve the same.

Ellen Brown Picture 4

To any young footballer out there, chase your dreams. Ellen’s favourite saying is “I don’t live with diabetes, diabetes lives with me”.”

 

A really great blog written by Karen Brown and a huge thank you from us for putting it together. If there’s anyone out there reading this who’d like to contribute in a similar way get in touch! We’re always on the look out for blogs and stories to share…

Diabetes Junior Cup 2018

It’s been a while since I got myself 5 or 10 minutes to write something for the blog but I felt my recent trip to the Diabetes Junior Cup was well worth finding it…

I thought to convey the trip I’d pose myself a few questions which helped me tell the story and purpose behind why I felt TDFC should reach out and connect with this event.

Where did you go?

So myself and Zak (One of the UK players from the DiaEuro team) flew to Dublin, Ireland to visit the Diabetes Junior Cup at the National sports centre in Blanchardstown. What a great facility that is by the way! So many sports located in one central location to support Ireland’s athletes and their international ambitions. It was a pleasure to visit…

 

When was it?

We were in Ireland from Thursday to Saturday over the UK bank holiday weekend at the end of August 2018.

Who did you meet?

Across the 48 hours we met a number of people involved in various different projects supporting people with Diabetes in the country. Firstly we met with Cathal, whom after seeing TDFC’s work with the UK all diabetes Futsal team that went to DiaEuro, is keen to replicate it and create a team for Ireland ready for the 2019 tournament. It was brilliant to see his enthusiasm for the idea and the inspiration that the UK team provided him. I really hope they can pull it off over there as it would be an amazing “friendly” rivalry to have between the UK & Ireland!

Secondly we met up with a Kate Gajewska and a group of type 1’s in downtown Dublin to chat about all things diabetes over some food and drinks. Sharing experiences with the condition are a form of therapy I find and if you can laugh about it whilst completely understanding what others are going through it diminishes the negativity of what Diabetes can do. It was really nice to catch up with Kate whom I know through the work of the League of DiAthletes (www.leagueofdiathletes.com) and it’s always great to hear new perspectives on the condition from a different, albeit similar, country and culture.

Lastly we had the Diabetes Junior Cup event day where we met some senior members of the Diabetes Ireland team whom gave up their Saturday to support this worthwhile cause. We had a brilliant opportunity to discuss the event, their plans for the future, our work and how people with Diabetes are supported in Ireland.

I have to say a massive thank you to everyone we met on the trip. We were made to feel very welcome! A special thank you to Kate who managed to give us more than our fair share of lifts around Dublin.

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Why did you go?

The key reason we went was for the Junior Cup event which was designed to bring children with type 1 diabetes together to give them the opportunity to share their experience and make friends. Having lived with Type 1 for 19 years and not really shared what it was like for 17 of those years, I really wish I had sooner. This event was another perfect example of how we can provide peer support in the diabetes community.

Not only was it good for the kids to come together they got to have a lot of fun too! But I’m sure it was also beneficial for parents to discuss with others the stresses of supporting a child with the condition. Having this kind of event is a wonderful representation of how the community comes together to help each other.

With such a close link to what we do at The Diabetes Football Community I felt it was really important we were there to learn, network and support such a fantastic football event for people with Diabetes. The learning and friends we made whilst there will hopefully lead to promising future collaborations and events for the benefit of children, parents and adults living with Diabetes who share our passion for Football!

It was also great to be able to give our Irish friends an idea of what it took to get the UK diabetes Futsal team off the ground during the time we were there, in the hope that they can replicate that for next year! Fingers crossed we will be competing against each other in the near future!

If you want to check out myself and Zak’s story on the day head over to the below link:

https://www.instagram.com/stories/highlights/17955933319120338/

What does the future look like as a result of your trip…?

The hope is that through developing links with this event and Diabetes Ireland (www.diabetes.ie ), TDFC may in future be in a position to put on this kind of event in the UK for children with type 1 Diabetes. As always it takes a great deal of organisation and support to get something like this off the ground but we’re hoping that the community will support us in trying to make a football participation camp/tournament for children with diabetes happen.

If anyone in the community would like to support us in trying to make this happen in 2019 please do get in touch via our email address:

thediabetesfootballcommunity@gmail.com