DiaEuro 2019 Perspective: Chris Bright (Player / Coach / Organiser)

It’s something pretty special…. The opportunity to represent your country and your condition. DiaEuro or the European Futsal Championships for people with Diabetes is into its 7thconsecutive year of competition and through this wonderful tournament we are given a unique chance to live out every kid’s dream, to play for your country.

 

But this tournament isn’t just about winning every game (yes it’s important to us all!) as there’s more than that at stake. Each team uses the tournament as a chance to make as much noise and raise as much awareness as they can, to really showcase what people with this condition can do. When you often see misconceptions and irregularities in the way people talk about Diabetes in the media and society it’s so nice to see us all come together to talk about a European event which brings positivity and enthusiasm to the word Diabetes.

 

As you can see from the titles I have for our team, I’m doing a bit of everything to make the UK team happen but I wouldn’t change it. I’ve enjoyed each one of those roles but it does make it very challenging to do them all very well! Each one brings their own pressures but for the most part I try to take it all in my own stride and ensure the project runs as smoothly as possible. I would hope the team would say that we do a good job with it but you’d have to ask them haha.

I’m still coming to terms with the fact that 18 months ago this was all a dream and here we are talking about participating in our second tournament. This project and community has changed my life and the lives of many people whom are participating every day in our activities on social media or the projects we run physically. This team has been a huge source of inspiration for our community and a place to turn for information & support for the lads living with type 1 diabetes lucky enough to be involved. This was demonstrated by the amazing local TV coverage we received regarding our participation at the tournament. Seeing our project receive this media attention is great for its continuation but most importantly for reaching others who may not have heard of the work we do and who could really benefit from it… The reason we’re here is to support others with our condition and raise greater awareness of Diabetes in a positive light. To be featured in this way is not the goal we set out for but a bi-product of the hard work we put in to help the diabetes community out there. (TV feature below)

YouTube Video 

Back to the tournament itself though… To be completely honest after the months of work building up to it, I was just so happy when we got to the accommodation in Ukraine and the rooms were all sorted out! As the man responsible for getting the squad & staff there that was the biggest relief. The stress of booking flights, speaking with the organisers, sorting out the transport & the tournament schedule, organising our players & itinerary to get there as well as all of the finances is a huge strain. I think next year I’d like to find some more help for this because it consumed my life for weeks beforehand. But crucially we got there without much of a hitch or issue!

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For much of our preparation for the tournament I’d played more of a coaching/managerial role alongside Harley to help us tactically & technically prepare. It was myself and Harley who picked the final squad, worked through the playing style & finalised our matchday approaches. However, we felt that in spite of this I’d need to contribute on the court again this year rather than from the sidelines. So with that being said and a last minute continuation of an injury to our main pivot JT, I handed over my coaching hat to Harley & JT for DiaEuro 2019. Concentrating on just playing wasn’t without it’s drama though…. I actually pulled up in a training session for my football club 10 days out from the tournament, which actually meant I had to sit out of our final training session before heading to the Ukraine….. Not ideal at all. I spent the whole week leading up to the tournament unable to train and unable to even run. I actually ran properly for the first time after pulling up, just 2 days before the tournament and it felt just about ok… I had my fingers crossed I’d be alright for the first game on the Monday.  Whatever happened with my injury though, I was determined to ensure that from an overall perspective the tournament was going to be a positive experience.

 

Once the games arrived on Monday, after a day of settling in and reviewing our tactics, we went into them optimistic we could really give a good account of ourselves. I felt for the most part we did just that! Our group draw was really tough, we faced last year’s champions Bosnia, Portugal (tipped to do well!), Slovakia (Finished 4ththe previous year) and Ireland who came into their first tournament. WHAT A GROUP. We were all so excited about the prospect of pitting our wits against the very best and having the chance to play a local derby with our friends in Ireland (which I think could be a more regular thing too 😉 )!

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Our first fixture was against my very good friends from the Portuguese team. I can’t say enough positive things about these guys. They helped me shape the project we now have for our UK team and I’ll forever remember that.  In 2017 I flew over to Portugal with Karl & Noel, to further the TDFC cause and they let us in to train and see their development. It was a special trip and Bruno, Joao and all of the boys have become great friends of ours and in both DiaEuro tournaments we’ve been involved in we’ve been drawn against them. I think it’s fitting with our connection. Unfortunately, they beat us 6-1 last year and in this year’s game it was 5-1 but as the scoreline suggests we made a better game of it and if anything it was a little harsh the margin. They have some very talented players and their technical & tactical knowledge supersedes ours by a distance but we’re catching up. We have a talented group who demonstrated throughout this year’s tournament, despite the results, that we’ve made strides forward on the court. Nevertheless, it was a tough opening defeat but we knew we had to pick ourselves up from it quickly because the day after we had 2 games. From a personal playing perspective, I had my injury playing on my mind which meant I didn’t perform at my usual level, but I knew that and just needed to build my confidence up in it to push myself the following day. It was great to see from a coach’s perspective the lads employing tactics and techniques we’d worked on all year and something we certainly continued to show throughout.

As Day 2 arrived, I’d had an awful night’s sleep ( 3 hours roughly!) tossing and turning thinking about the day before and the day to come. But we had two games to play and I needed to get over it….. I picked myself up and went all out with the positive mindset. I was up and focussed from the off to get my mindset right to tackle those games. With the organiser’s and coaching cap taken off me by Rosie, Harley & JT I certainly felt a bit of a weight off my shoulders following a staff discussion the night before. I think it showed as we played our first fixture of the day vs Slovakia. I went into it with more confidence, having tested the injury out and having had Milly put me through some rehab/stretching too. We knew that today was the important one for performances and results as on the final day of group fixtures we’d be facing the reigning champions with a really tough task to get any kind of result. We knew it and in that first game we played like it…. We came out of the blocks firing. We threw the kitchen sink and more at Slovakia and somehow they stood firm. To this day, I still can’t quite believe that we didn’t get a result from this game (watch the highlights and you’ll also see why!). The lads were fantastic… The whole squad played to the levels we needed and the ball just didn’t quite go in the goal for us. There’s an argument we could have been more clinical but the luck just wasn’t with us and we lost 1-0. We were gutted but encouraged all at the same time. We’d just completely outplayed a team that had finished 4that DiaEuro 2018. So as much as we were disappointed with the result we’d shown to everyone what a thoroughly decent side we were.

But after 2 games we still hadn’t got any points on the board so as much as we were satisfied with our performances, we were desperate to get off the mark. No easy task though as up next was the local derby with our friends in Ireland. For me the Irish and Portuguese teams will always have a special connection with me. Portugal inspired us into the DiaEuro family and I like to think a trip that myself and Zak Brown went on to the Diabetes Ireland Junior Cup in August 2018, where we met Cathal (Ireland Team Manager), inspired their creation & participation at DiaEuro 2019. So for me it was a special moment for our teams to face each other.

 

I knew they’d recruited well with several players who’d played at a good level of Football in Ireland so we knew it was going to be a tough game. It turned out to be exactly as I’d imagined. They sat in and frustrated us as we dominated the ball. However, they looked dangerous on the counter attack. It made for quite an exciting game for the neutral but my overall feeling was that just like the Slovakia game the ball didn’t want to go in the net for us. A game full of commitment and passion ended in a 1-1 draw. We just couldn’t convert our dominance of the ball into goals and it’s where we struggled against Slovakia as well. We missed one of our star men from DiaEuro 2018 JT, who’s goals we could’ve really used this year. He’s a natural finisher in front of goal, it’s a simple as that. But, that being said I felt that we showed to everyone the strides forward we’d made as individuals and collectively. I was proud of how we’d conducted ourselves in game 2 and 3 and had it been another day we’d have won both games, but it wasn’t to be.

This left us with a mammoth task of needing a result against the reigning champions Bosnia to have a chance of staying in the competition. With our legs in absolute pieces from 3 games in 2 days we knew it was going to be a tough task. Within 5 minutes we were 3-0 down and it was every bit of the challenge we thought it would be! We gave it all we had but came up short losing the game 11-3. As we all predicted Bosnia then went onto win the tournament. The ability they have throughout the squad is frightening for an all type 1 team. One of the best teams I’ve faced collectively and individually and a huge congratulations to them for defending the title and really showcasing the levels you can achieve despite living with type 1 diabetes.

 

From our perspective going out of the tournament on goal difference at the first stage was frustrating and disappointing especially with the distance we travelled and money we’d spent to get there. We’d given it our best shot and at another tournament the ball would’ve gone in and we could’ve finished 5th/6th/7thbut it wasn’t to be. However, the strides forward off the court, within our coaching team, our tactical knowledge and overall approach was really pleasing. I couldn’t be prouder of everyone involved. I’m honoured to know each and every single one of the players and staff. Their commitment to TDFC and our vision is impeccable, and I’ll never be able to thank them enough for all that they’re doing to help push this cause to the next level.

But what can you say about trying to manage your glucose levels with 4 futsal games in 48 hours….. Reactive, guesswork and without a CGM like the Dexcom G6 I think it would be an extremely difficult challenge. I felt as though I prepared as best as I could but for me the key was always have the ability to adjust. I was always carrying Lift Glucose tabs around with me as well as my insulin pen to ensure I was able to react to any levels which were falling out of range. I mean how do you prepare for something you’ve never done before? 4 games in 48 hours is not something you’re likely to experience so I just focussed on eating well, consuming lots of carbs & protein for recovery and trying to minimise the amount of short acting insulin there was in my system for games (unless I required an adjustment!). We all did it and for the most part managed it quite well. It was quite a testing environment to have type 1 but the understanding amongst our squad and management is there to ensure we’re all comfortable in shouting up if we don’t feel right. It was a challenge that we all adapted to but one that was made easier than it could’ve been by the use of a continuous glucose monitor.

 

As anyone who knows me or has heard me talk about DiaEuro before, I will always say that it is much much more than just a Futsal tournament for people with Diabetes. It forges bonds and friendships with people across Europe who share the same challenge. We come together to demonstrate what people with the condition can do through the medium of Futsal. It’s a unique experience which has us travelling to destinations all over Europe to experience different cultures and ways of managing the condition as well as playing the sport. It’s a tournament and message I believe strongly in…. I hope that in the future we can continue to develop it as a product and receive greater recognition & awareness of it. It was fitting that the final ceremony was conducted at the Olympic stadium and Ukrainian TV were there to film it. For me this tournament deserves that, the talent, commitment and statement that this tournament makes is epic… I just wish we could see our condition represented like this more regularly and through other sports too!

For me, another tournament and another step forward. Results may not have shown that but with the project, coaching and players there was every reason to come away from Ukraine full of optimism.  I take great pride in representing my country and condition. For me it’s a special feeling which is hard to explain but one I hope I can continue to do on and off the court for many years to come.

 

Finally, I want to say a huge thank you to the players, Harley, JT, Milly and Rosie for all of their hard work and commitment in Ukraine. Without your efforts the experience wouldn’t have been what it was so thank you again for all that you do…. Whilst we must also say a big thank you to our sponsors Dexcom, Lift & JL Property Solutions who’s support we couldn’t have done without. Thank you so much for everything you did to help us get there!

 

And with my final words of this post I just want to look ahead to the 2 exciting projects still to come in 2019….

 

We have our children’s participation event and sessions based from the new Worcestershire FA HQ launching in autumn/ winter 2019, where we will for the first time encourage active participation in Football for children with type 1 diabetes, with support from adults and coaches fully aware of how to manage the condition. Hopefully an exciting step change for our community and if you want to register your interest in what’s ahead head to the below survey monkey:

 

https://www.surveymonkey.com/r/BR88G9P

 

Whilst we also have the #SporT1Day conference on the 17thof November at the University of Worcester to come. A number of talented and inspiring individuals living with type 1 diabetes sharing their experiences and management techniques for their sports whilst managing the condition they live with. A fascinating insight and learning environment for anyone looking to expand their knowledge, further their exercise and sporting goals or even just get started.  A wonderful day and you can find more info on the below link:

 

https://www.worc.ac.uk/about/events/sport1day-2019-by-1bloodydrop

 

Thank you for reading this lengthy post!

 

Chris

DiaEuro Player Perspective: Richie Grimes (Ireland)

It’s strange being asked to put down in words what my experience was like in Kiev. When Chris Bright asked me initially to say a few words for the TDFC website I said yes immediately, “that’s grand, no problem”. But fast forward a week and I still haven’t written anything down yet (sorry Chris).

So here we go……

I heard about trials taking place for the first ever Irish Diabetic football team in November 2018. My manager from my 11 a side team made me aware of it and said I should go for it. My initial reaction was to say no. At the ripe old age of 34, my dreams of pulling on a green jersey and representing my country were just that….. dreams. I don’t know what changed my mind but I decided to head up one night and check it out.

Driving home after that first session I thought to myself, ‘My god, Futsal is NOT like football at all’. But I loved it.

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We met up and trained once a month after that. I would’ve loved to have trained every week but it just wasn’t a viable option. People were making huge sacrifices to make it even once a month, coming from all over the country to be there.

There was so much work to be done and literally no time to do it. All of the players had played football at some level, but I don’t think anybody had played Futsal before. The differences in both games are huge. It’s essentially like playing basketball with your feet. Trying to get used to Futsal as a team was very challenging and we suffered big time when playing friendly matches against experienced Futsal teams.

My respect and thanks have to go out to Alban our coach, because he had the patience of a saint. I’m sure he had thoughts of strangling one or two of us at times (not naming names).

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The final squad was announced a couple of months before the tournament. I was buzzing to be apart of it all but to be honest it didn’t seem real to me at that stage.

Because the team wasn’t recognised by the FAI or Sport Ireland, we had to do all of the fundraising ourselves to get to Kiev. This was something I hated having to do as it meant broadcasting it all over social media and I didn’t like having to go on Facebook with the cap in hand, and ask for donations.

To be fair, the response we got was nothing short of incredible. I was overwhelmed by it. I expected people to throw maybe a fiver or a tenner my way. But we had loads of donations of €50s, €100s etc. A guy I went to college with who I hadn’t seen in 10 years, donated €100. Absolute madness. I mailed him straight away to thank him and said it was too much. He mentioned to me that he had cousins who were recently diagnosed with Type 1 diabetes and he knew it was hard. So a massive thank you to all who donated to us.

Looking back, it was strange during our training sessions because we never really mentioned that we were all diabetic. Any conversations about insulin or hypos or Libres were brief and short. Because our time together was so limited, it was all about the football, or all about the Futsal I should say. Towards the end we had a running joke where we wondered if we were even diabetic.

That all changed once we set off for Ukraine. When we met at Dublin airport in our Ireland tracksuits, it finally hit home and it felt real. We were going to the EUROS!!!

I had never been in an environment before where diabetes was openly discussed by everybody in the room. Bloods were checked, insulin injected, pumps were being used. It was an experience to say the least. Everybody followed the same general guidelines and principles of what should be done being a diabetic, but each person had their own little way of doing things. There was no definitive right way or wrong way to do it.

I bombarded the lads with question after question, and we swapped loads of stories of how diabetes has affected our day-to-day lives. One of my favourite topics was discussing favourite foods to treat a hypo, and I got some weird responses in return.

It was refreshing to see everybody so open about it, and honestly it was the first time since I was diagnosed 4 years ago where I actually felt normal.

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Kiev was brilliant. I don’t think I have laughed so much in my life ever. Our free time consisted of walking to supermarkets looking for food, and winding each other up. The two lads I roomed with, Mark and Aidan, were straight up mental cases. Although we’d essentially just met, I felt like I’d known them for years and nobody got a free pass when it came to being made fun of. It was brilliant.

Each night at 11pm, everybody would come down to Room 36, gather around one  mobile phone to watch a dodgy stream of Love Island and drink cups of tea. Looking back it was all very romantic.

The tournament itself was just special. I was asked by Alban to captain the team and I was bursting with pride to lead the lads out. Hearing Amhran na Bhfiann belting out before each game was a memory I will never ever forget.

Our first game was against the reigning champions Bosnia. An excellent team with tons of experience. It finished 3-0 but we were happy with our performance and we gave a good account of ourselves after a nervous start. The next morning we faced Portugal, a very skilful and tricky team. We scored first and played really well throughout. Ultimately their class shone through in a 6-2 win, but we did have chances.

Later that day came the UK game. It goes without saying that it was a huge match and one that neither team wanted to be on the losing side of. They came out of the blocks really quickly and hit us with everything. To our credit we hung in and defended well as a unit. Our gameplan was to keep it tight and take our chances on the break. We went 1-0 up with a well worked goal. Again the UK hit us with everything they had and equalised towards the end. It finished 1-1. The UK lads will say they deserved to win it, and they could have easily won it. But we also had chances too and I think a draw was a fair result in the end. Until next time.

Having played almost 2 full matches with no breaks, I was physically exhausted and just delighted there were no more games that day.

The last game of the group we played Slovakia. A strong physical side who wore us down in the end. We took an early lead again but the game finished in a 3-1 defeat.  That was the only game I felt that got away because I thought we were evenly matched.

Physically we were drained going into the last day playoff games. We came up against a very good Hungary team and just didn’t have the energy to compete. It finished 3-0 but we gave it everything.

In our last game we beat Bulgaria 4-0 to finish 7thplace overall. I didn’t want the tournament to end and felt we were improving as each game passed. I was proud of every single one of our lads. We left everything out on the pitch and couldn’t have given anymore. We did the country proud.

On a personal note I was delighted to chip in with a goal against Portugal and Slovakia.

I also particularly enjoyed at the end of each match, where both teams would pose for a photo together. Regardless of the results or when tensions boiled over, we still did it with a smile. It showed a togetherness and great sportsmanship and that’s what it’s all about at the end of the day.

As a team we didn’t get to do much sightseeing in Kiev but we did manage to do a stadium tour of the Olympic Stadium, which was very cool. After feeling the effects of the post tournament celebrations, it probably wasn’t the best idea to run a 100m race on the track in searing heat. It felt like we were running with parachutes on our backs, however I still managed to pip them on the line to win in a ‘respectable’ time of about 20seconds, ahem (video proof below!).

Before I go, I want to give a special thanks to Cathal Fleming who made all of this happen. The time and effort he put in to organising the squad and getting us to Kiev was amazing. When he first thought of the idea to make an Ireland Futsal team, I’m sure he had aspirations of playing outfield and scoring a few goals. But we had no goalkeeper and he ended up playing in goal for us. By the end of the week he was deservedly voted our player of the tournament, which is a testament to the man.

He is currently trying to develop our team further by entering us into our national Futsal league, which can only make us better. If there are any diabetics reading this who live in Ireland and love football, please come and try it out, and thank me later.

I had one of the best weeks of my life and I have genuinely made friends for life in that Ireland squad. An incredible bunch of lads. Can’t wait for next year already.

Thanks

Richie Grimes

Ps. I guess this means I’m a blogger now? BABY WE DID IT!!!

DiaEuro 2019: UK Player Perspective (Jon Peach)

I have just fulfilled the dream of every schoolboy and girl who loves sport. I have represented my country at an international tournament. Belting out the national anthem before each game as loud and proud as I could, wearing the union Jack on my kit – this is something I have always dreamed of, but never really thought could happen. But it has. And it has happened with an amazing bunch of team mates, all with the same thing in common. Diabetes.

Since I was diagnosed with diabetes age 5, I have had a love hate relationship with it. When I’m on top of it, and I’m winning, I love it. However, far too often it gets the better of me and I hate it. However, if it wasn’t for diabetes, I wouldn’t have met such an amazing community of people.

A year aģo, I watched on as Chris took the first ever UK team to the 2018 DiaEuros. I hadn’t kicked a ball in 3 years and had retired due to persistent injuries. 10 operations had taken their toll on my body and I’d had enough. However, this was an amazing project that he had set up, and one I wanted to be involved in. But my knowledge of futsal was incredibly limited. However, I didn’t want to be going along all the time if I wasn’t playing. So I decided to rejoin my old 11 a side team in Bristol as well as coming along to all the training sessions with TDFC. I had no intention of putting myself forward for the DiaEuro squad, but wanted to be part of the project. I was enjoying going along to the sessions, and when Chris asked for the final time who wanted to be part of the squad, I had a decision to make; did I want to put myself forward?!  I’d heard so many positive things from the previous year that I thought I would. I had no expectation that I’d come close to going, but the thought of it was too good to not try out for. Fast forward a few months and I had been chosen to go to the Ukraine!

My only experience of going away with other diabetics was a kids camp I went on with my family when I was young. While I don’t remember much about it, I didn’t really enjoy it!! This was different though. Every one of us was type 1 diabetic, but we also loved sport, especially football, and in this case futsal. We were able to share stories and help each other out where necessary. Advice was always there if needed, and there was such a range in terms of years of having diabetes. We talked about levels before sporting performance, treatments, different types of insulin….In fact diabetes was quite often one of the main  subjects we talked about (as well as football!)

Meals were a challenge, as it was a buffet every meal, we weren’t entirely sure of the carbohydrate content. Some managed it better than others, which was great to see. There was often talk of how much insulin people had given themselves, as well as at what point people gave their insulin.

Going in to the tournament, I thought my bloodsugar control was fairly good. However, being around other diabetics 24-7, I learnt that there is always room for improvement. People who felt 9 was too high to have our blood glucose for a game inspired me to think differently. Whereas before, I might have ignored that, I soon realised that this wasn’t okay, and starting a game with a blood glucose level of 10 might impact upon  my performance. I also learnt better treatment of hypos. Too often I over eat and then end up shooting sky high. However, watching other diabetics being patient having had a couple of tablets or some of the amazing lift liquid products we’d been given helped me massively.

We were also incredibly fortunate to have the use of the dexcom G6 for the tournament, which helped my blood glucose levels no end. I started off setting the high alarm at 16, but by the end of the tournament, I had moved it to 10.5. This wasn’t necessarily to treat, but to be aware. It also helped by having arrows, single and double, showing which way my levels were going and at what rate. We have been able to keep this going since returning from Ukraine, and I’m now aware via an alarm when my levels are getting to 4.2, meaning I can treat it before I actually go low.

So after a week where I’ve been so proud to represent my country at futsal, I have also got tips and seen first hand how others also manage their diabetes. Inspired by others, not just from our team and country.

On the playing side of the tournament, sadly the results didn’t reflect the performances we put in. We were well beaten 5-1 by a very good Portugal team in our first game, but the second day was a tough one to take. We outplayed Slovakia but went down 1-0, then again outplayed Ireland, but only managed a 1-1 draw. We had chances, but just couldn’t seem to score the goals. We moved the ball around and the rotations that we’d worked on were going well, but not the results. The next day we were soundly beaten 11-3 by eventual champions Bosnia. By this point we were struggling physically having played the last game on day 2 (our 2nd game that day) and then the first game on day 3. But that’s sport, and we all love it!

The organisation and management was great. We’d get a text the night before telling us our plans, meeting times and what we had to wear or have with us the next day. We then also got one from the amazing physio, Milly, asking if anyone needed treatments, fixing or taping up the next day. As I was sharing a room with fellow old man and captain Tim, Milly spent her fair share of time in our room sorting us out so we could even get out of bed, let alone play!! We had enough kit to be able to have some taken to the laundrette whilst still having enough to wear around and about, train in and travel to and from matches.

There was also a bit of time for sightseeing. We looked around Kiev, and some of the squad were lucky enough to visit Chernobyl on the last day, which was an amazing cultural experience. Without doubt, this is my sporting highlight of my career. Representing my country at a major tournament. But with an amazing group of people who just seem to bond so well. And we all happen to have shown that diabetes can’t hold you back!

My Story: Kendall Higgs

At The Diabetes Football Community we love to share the stories of those of you who follow us. With the diverse nature of the community we support it’s always amazing to share stories from all over the world. So here we are bringing you a story from Kendall who’s based in the USA. No more words from us other than to say if you enjoyed reading Kendall’s blog please give it a share. Over to you Kendall…..

“My name is Kendall Higgs, I’m from Loxahatchee, Florida , and I’m 20 years old. I fell in love with the game of soccer at four years old. I remember feeling unstoppable with the ball at my feet. On August 3rd, 2009 my world changed. I got diagnosed with Type 1 Diabetes at 10 years old. The first three questions I would ask anyone who came into my hospital room was 1. Can I still play soccer 2. Can I still drink milk 3. Am I going to die.. in that order 😂 to some people, my priorities may have been a little off.. but for me, if I couldn’t play soccer anymore, I might as well be dead. Even though most doctors told me I most likely couldn’t continue to play, I did it anyways. I refused to allow something to take over my life. I traveled to Costa Rica at 14 and Brazil at 16 to play soccer with region 3 ODP (Olympic Development Program)

I graduated early from high school and went to University of Pittsburgh in 2017. After 3 semesters there I transferred and now play at Kennesaw State University in Kennesaw, Georgia. Soccer has been my way to connect to people, to new places, and to different cultures. When I’m not playing soccer, I feel out of place.. and at first my T1D contributed to that “out of place” feeling. I didn’t want to embrace my Diabetes..I wanted to pretend I didn’t have it. It wasn’t until this past year that I really started to take care of myself and to fully embrace my disease. I recently started T1D1 Diabetic Athletes as a way to spread awareness, give a platform to other diabetic athletes, and to show young, aspiring T1D athletes that it does not limit, control, or lessen their ability to be successful.

Within this journey I have realized that soccer isn’t my only way to connect to people.. T1D has allowed me to connect to others battling the same illness, to learn, to empower, and so much more. I am so grateful to be apart of the T1D community.”

A big thank you from all of us at TDFC for sharing your story Kendall and if anyone else would like to share theirs please get in touch !

#DiabetesWeek 2019… See Diabetes Differently

As the motto for Diabetes Week 2019 is “See Diabetes Differently” it’s great to be able to share an interview that Chris conducted with DigiBete (www.digibete.org) which focusses upon mindset and the approach to sport/exercise that he takes in the hope it may help others living with Diabetes. It’s different to the usual articles/content on the physical management of the condition for sport but we hope it proves to be useful!

A huge thank you to DigiBete for asking Chris and putting the time into creating this amazing video. If you want to check out their resources for people with type 1 diabetes surrounding sport & exercise head to the below link:

https://www.digibete.org/resources/sportsandexercise/

We must also thank the University of Worcester who gave Chris & DigiBete permission to shoot on their campus. Thank you!

We hope you enjoy the video and we’d love to hear your feedback on it! Please share far and wide if you enjoyed it as you never know who it may reach!

Thanks,

TDFC Team

Our Journey with Type 1 and Football…

Another amazing story to share with the community brought to you by Karen Brown, the mother of Ellen, a young type 1 who’s having a fantastic time with her Football/Futsal at the moment. Ellen & Karen have been big advocates and supporters of our work at TDFC from the very early days so it’s brilliant to be able to share their story! No more words needed from us, over to you Karen…

“Our daughter Ellen was diagnosed at age 8 with type 1 diabetes. As you all know it hits like a bomb and the early days are hard. Somewhere amongst the haze of diagnosis we made a decision that when we got Ellen home we would stabilise her doing all of the sport she usually did. So the day after discharge we took her to school for a few hours and the following Monday she started back swimming. I sat on the edge of the pool chewing my nails hoping she would be fine. Strangely enough the year she was diagnosed is the only year she hasn’t played football (played 1 year of netball and hated it!). Ellen prefers to manage her diabetes with a pump (Medtronic) and we use CGM periodically.

Since then it has been buckets of football and within the last 4 years she has also played futsal in the off-season. It is amazing how different the two are to manage. Football often sends her low- particularly in the cold Canberra winters (we live in Australia) whereas futsal sends her high due to the adrenaline. As futsal isn’t as big in Canberra her futsal club (Boomerangs FS) travel to Sydney to play in a Sydney comp. So every Sydney game we travel between 2 ½ to 4 hours each way (depending on what side of Sydney the game is) to play. The weather in Canberra is quite dry whereas Sydney can be humid which can affect Ellen’s BGLs (sends her low) so at the half way stop en route to the game we reduce insulin if she has any carbs and put a reduced temp basal on. We find doing low carb on the morning prior to the Sydney trips much easier to manage. At least we are only fixing the humidity problem. Then during the games she heads high! Sydney games we nearly always use CGM to help keep an eye on things. If it’s a home game its breakfast as usual. After the game she eats what she wants.

Ellen Brown Picture 3

Whilst having diabetes can be tough when you are playing football and futsal, we run at it with the attitude that if we have a tough day diabetes wise we look at why and see if we can do something different. There are days when you just can’t explain why the numbers are what they are! All of her coaches and teams have been really supportive and the boys often try and guess her Blood Glucose Level – she plays in the Boys National Premier League. Ellen also chooses to celebrate her ‘diaversary’, so the team usually hangs out for the cupcakes she takes along to celebrate another year kicking the butt of diabetes.

Having diabetes hasn’t stopped Ellen from achieving in soccer and futsal. The last 12 months have been particularly rewarding!!! 12 months ago her girls futsal team won both the premiership and championship in the Sydney comp. For outdoor her BBFC U16’s team made the Grand Final and won in a penalty shootout. She then made the ACT team (regional team) to play futsal at Nationals in January – they were runners up in the Grand Final in a penalty shootout. And a couple of weeks ago at the presentation night for Boomerangs FS, Ellen was awarded female player of the year. We are pretty proud of her. Winning isn’t everything but it is great to get some wins and they have been a while coming!! Though I must say the victories are much sweeter after the effort you put in to get the diabetes right. (excuse the pun!)

Ellen Brown Picture 1

As much as it is a challenge, there have been lots of good things about having diabetes in our lives for the last 8 years. We have made a whole new bunch of friends we wouldn’t have otherwise met. Whilst it is so nice being able to converse with those who understand the challenges and learn new things from. Ellen has had the opportunity to speak at JDRF fundraisers and she was recently asked to take part in some research at ANU.

Being part of TDFC has been a huge help though. It was so nice to hear from others who play football and be able to read about their experiences. With Ellen being a girl it was so nice to read about Noel and what she has achieved. We got to meet Zac (UK DiaEuro Player) at one of Ellen’s games in Sydney and hope to see him again soon. Whilst it’s also great to see that Chris represented his country in Futsal, which gives Ellen so much hope she can achieve the same.

Ellen Brown Picture 4

To any young footballer out there, chase your dreams. Ellen’s favourite saying is “I don’t live with diabetes, diabetes lives with me”.”

 

A really great blog written by Karen Brown and a huge thank you from us for putting it together. If there’s anyone out there reading this who’d like to contribute in a similar way get in touch! We’re always on the look out for blogs and stories to share…

It’s much more than just Football or Futsal… Part 4 (Zak Brown)

In our fourth instalment we feature Zak Brown… Zak is currently living and working in Australia but has been heavily involved in all things TDFC throughout 2018 as a pivotal member of the UK DiaEuro squad, whilst also heading out to Ireland with Chris to observe the Diabetes Junior Cup… Zak’s passion for the project is evident and in this post he shares his thoughts on how being involved has helped him! No more words from us, over to you Zak:

“I think firstly and foremost, the opportunity to meet several other T1D’s with a passion for football was amazing in itself! To then be able to discuss our condition as we went through very similar schedules during DiaEuro was great – having a diabetes discussion with your team-mates was like having 10 nurses beside us, as they added great value through personal stories and specialist advice.

The access to technology was a huge thing for me personally. I was a bit skeptical of the Dexcom G6 initially, as I have been on the same insulin and blood sugar testing strategy for a number of years and been relatively consistent (HbA1c usually between 50 and 61). It took a couple of days to adapt but several months later and I wish I still had the G6. I regularly see T1D’s on social media posting about how much the Dexcom has improved their control in recent times.

The other thing which was highlighted for me was the carb counting. I have generally just guessed my insulin based on what I am eating and knowing how it has affected my sugars in the past, but to see plenty of my UK team-mates measuring the carbs on their packets of food and calculating their dinner plate in the their head was a good insight for me; and pushed me to start making more calculated guesses with my own carb intake as life and diabetes continued after the tournament.

Whilst I wouldn’t say the experience has directly improved my control yet, I think it has acted as a gateway for me to access more information, attend diabetes meet-ups and possibly gain access to modern technology, which I expect will have a direct improvement on my Type 1 Diabetes control moving forward! Only time will tell…

Zak Brown

UK DiaEuro 2018 Player”

If you want to follow Zak’s journey on social media head to his twitter @mrzakbrown or his instagram @zakbtown

It’s much more than just Football or Futsal… Part 3 (Jack O’Brien)

In our third addition we share the thoughts of Jack O’Brien… Jack has a fresh outlook on the way Diabetes has impacted his life having been diagnosed quite recently! His account offers some great insight into how a newbie to type 1 Diabetes feels about the challenge of this condition coming into their life… No more words from us let Jack do the talking…

“First of all, I think I should point out that I am a relative newbie in the Diabetic world having only been Diagnosed 2 years ago today! (I wrote this on 6th Feb). DiaEuro was only the second time I was going to be away from home, and all the supposed safety that comes with that, since I was diagnosed.

To say I was nervous doesn’t really do it justice! I was fully aware that I was going to be spending the week with a group of people who have for the most part been Type 1 Diabetic for a long time. The fear or seeming like I don’t really know what I’m doing, or “messing up” all the time was playing on my mind because this was for me the first time I would be spending a prolonged period of time with other Diabetics. It’s funny how weird things like this can play on your mind! I was seriously still at a stage where I felt like it was only me who suffered from hypos because everyone else would have it under control!

The first morning we are there, we all go down to breakfast together as a squad to enjoy the spread of food that was being put on. It was this experience that alleviated all the pre concerns I had. Seeing most of us checking sugar levels and injecting insulin immediately eased my nerves. This was something that I found awkward to do beforehand.

Before you knew it, Diabetic chat was bouncing around the table. The same problems I found, others were also talking about. In a weird way, if felt so liberating! That sense of not being in something alone, that others have found ways to overcome similar situations and have come through them to find solutions was amazing for a newbie to hear.

You hear the phrase “trial and error” thrown around a lot when it comes to Diabetes, and I really understood that so much more after this journey. A corner was well and truly turned for me during this week. I am now playing sports more regularly, because I feel more confident. Understanding food on the day of playing football is something that is so important. Seeing other people using the Dexcom looked brilliant. Once I finished my trial run, I missed it so much that I signed up for 12 months.

 

 

 

 

 

The whole experience was invaluable to me. I learned more in that week than I would have done in years studying books and speaking to specialists. Seeing people who regularly play sport and manage their Diabetes gave me so many tips and ideas that I use myself now. There really is no better experience than experience itself.”

Thank you to Jack for sharing his thoughts on how TDFC has helped him and the UK DiaEuro team in particular. If you want to follow Jack on social media you can find him on Twitter @DalstonGooner … If you want to know what’s going on at Arsenal FC Jack’s your man to follow!!

It’s much more than just Football or Futsal… Part 2 (Scott Burrell)

In our second instalment of “It’s much more than just Football or Futsal” we look at the story of Scott Burrell. His journey with TDFC and type 1 Diabetes has been staggering and for those of you unaware of what Diabetes care was like without the technology that is available now, I’d urge you to read on… This is a fascinating account of how TDFC has effected and improved Scott’s life and another example of a social / community based project like ours supporting healthcare benefits and objectives for those living with the condition. No more talking from us lets hear from Scott in his own words:

“Being selected in the UK DiaEuro squad really changed my ‘diabetic life’ and that’s by no means an exaggeration! Firstly, and something a majority of the squad had said, was that they’d never met another T1 in ‘normal’ life so that was great. Like any football squad you tend to bond quite quickly with the other players but we bonded especially quickly as we all shared the condition. My knowledge of T1 has increased ten fold. It was great to share stories and bounce successes/failures off each other.

I was actually the only member on mixed insulin. I was taking Humulin M3 which was the same insulin I’d used since diagnosis in 1999! I’d been told for many years, probably close to 10, that a basal/bolus regime would be better for me, but me being a stubborn so and so I’d always thought I’d be better sticking with what I knew. Seeing all the other lads using the basal/bolus regime and many telling me how they had moved from mixed insulin and how much better it was really gave me the incentive to change.

A few months after we got back I eventually made the switch and now take Toujeo & Novo Rapid, I’m finding it much better and in hindsight wish I’d changed over many years ago. I’m certainly having less hypos which had always been a big problem for me before. As good as healthcare professionals are it was the kick from people living with the condition day in, day out which convinced me to finally change.

Finally I’m a lot more open about my Diabetes now… Growing up and even in my early 20s I’d try to hide it as much as possible, not talk about it and only tell people I was T1 if really needed. My mentality completely changed about that having been selected in the squad. I’ve now had newspaper articles written about me and appeared in a TDFC video filmed by BBC Hereford & Worcester which they shared on their social media platforms talking about the project and the condition. It actually made me feel ‘proud’ and gave me a desire to talk about diabetes for the first time…something I’d never experienced before in my time as a T1.”

Keep an eye out for more stories from some of the community and if you want to follow Scott on social media head to his twitter account @scottbufc to get in contact with him.

It’s much more than just Football or Futsal… Part 1 (Tim Ward)

In April 2018, we started something which had never been done before. We created the first ever Futsal team in the UK that contained only players that lived with Type 1 Diabetes… As much as we hoped it would inspire and raise awareness of the condition we also wanted it to change lives and demonstrate the value of doing things differently to the medical profession when looking after people with Diabetes. We think it’s done that and more! Hopefully organisations such as the NHS can see the value organisations like ours add and continue to grow their support and the opportunities to work more closely together.

However, that’s enough about what we think…. Let’s hear from Tim Ward the UK Diabetes Futsal Team Goalkeeper about how TDFC has changed his life:

“Since becoming involved in the Diabetes Football Community and representing the UK as a member of the DiaEuro Squad my view of and the way I approach and manage my diabetes has changed, dramatically and it’s all been positive.

My usual mind set for the dreaded annual review at the local Diabetes Centre was an appointment to be met with the same antipathy as some of the staff showed when I tried to discuss the dreaded topic of getting any “Flash Glucose Monitoring”?! I have had my “Lazy” pancreas now for 37 years and as you can imagine as the years pass the complications within your health and well-being can arise and you start to accept this as the inevitable. Not any more!

A group of lads with a shared love of all things Futsal and Football related (be it all with Diabetes) can be a base of support, encouragement and knowledge which goes against the stereotype many wish to portray, but this is exactly what I have found.

Gone is the stigma of testing my blood glucose levels in the changing room before a game, or taking in extra carbohydrates if my levels drop while playing.

I have found answers to questions that the local clinics were unable or unwilling to give, I have experienced flash monitoring which has had an amazing effect on my knowledge of how my diet and eating habits affect my levels and how to better manage them to keep within the optimum levels. I have through the members of the squad learned new diet ideas of more fibrous carbohydrates, of when and how to inject and different options on the insulin to use.  I now know that there are a myriad of options available to me to not just perform better in a sporting context but also live a healthier more energized life of less hypos, a better hba1c and greater trust in my own body.

The greatest impact has been that I do not have to be ashamed of my condition, it is not a weakness, don’t believe it and don’t let others convince you that it is. It is simply a bad hand dealt. Make the most of that hand, TDFC can and will support you in any way they can.

TDFC and especially the players, coaches and management of the DiaEuro squad have taught me through words, actions or just a smile and a nod that when you’re ready to play, take a deep breath, tie your boots, test your blood and go and beat whatever is in front of you, because you can.”

If you want to follow Tim on social media head to his twitter: @Tim_Ward07 or to his instagram: @timward16 and make sure you keep an eye out on the blog as we release more player thoughts on how TDFC has impacted their lives in the coming weeks.