#DiabetesWeek 2019… See Diabetes Differently

As the motto for Diabetes Week 2019 is “See Diabetes Differently” it’s great to be able to share an interview that Chris conducted with DigiBete (www.digibete.org) which focusses upon mindset and the approach to sport/exercise that he takes in the hope it may help others living with Diabetes. It’s different to the usual articles/content on the physical management of the condition for sport but we hope it proves to be useful!

A huge thank you to DigiBete for asking Chris and putting the time into creating this amazing video. If you want to check out their resources for people with type 1 diabetes surrounding sport & exercise head to the below link:

https://www.digibete.org/resources/sportsandexercise/

We must also thank the University of Worcester who gave Chris & DigiBete permission to shoot on their campus. Thank you!

We hope you enjoy the video and we’d love to hear your feedback on it! Please share far and wide if you enjoyed it as you never know who it may reach!

Thanks,

TDFC Team

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Our Journey with Type 1 and Football…

Another amazing story to share with the community brought to you by Karen Brown, the mother of Ellen, a young type 1 who’s having a fantastic time with her Football/Futsal at the moment. Ellen & Karen have been big advocates and supporters of our work at TDFC from the very early days so it’s brilliant to be able to share their story! No more words needed from us, over to you Karen…

“Our daughter Ellen was diagnosed at age 8 with type 1 diabetes. As you all know it hits like a bomb and the early days are hard. Somewhere amongst the haze of diagnosis we made a decision that when we got Ellen home we would stabilise her doing all of the sport she usually did. So the day after discharge we took her to school for a few hours and the following Monday she started back swimming. I sat on the edge of the pool chewing my nails hoping she would be fine. Strangely enough the year she was diagnosed is the only year she hasn’t played football (played 1 year of netball and hated it!). Ellen prefers to manage her diabetes with a pump (Medtronic) and we use CGM periodically.

Since then it has been buckets of football and within the last 4 years she has also played futsal in the off-season. It is amazing how different the two are to manage. Football often sends her low- particularly in the cold Canberra winters (we live in Australia) whereas futsal sends her high due to the adrenaline. As futsal isn’t as big in Canberra her futsal club (Boomerangs FS) travel to Sydney to play in a Sydney comp. So every Sydney game we travel between 2 ½ to 4 hours each way (depending on what side of Sydney the game is) to play. The weather in Canberra is quite dry whereas Sydney can be humid which can affect Ellen’s BGLs (sends her low) so at the half way stop en route to the game we reduce insulin if she has any carbs and put a reduced temp basal on. We find doing low carb on the morning prior to the Sydney trips much easier to manage. At least we are only fixing the humidity problem. Then during the games she heads high! Sydney games we nearly always use CGM to help keep an eye on things. If it’s a home game its breakfast as usual. After the game she eats what she wants.

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Whilst having diabetes can be tough when you are playing football and futsal, we run at it with the attitude that if we have a tough day diabetes wise we look at why and see if we can do something different. There are days when you just can’t explain why the numbers are what they are! All of her coaches and teams have been really supportive and the boys often try and guess her Blood Glucose Level – she plays in the Boys National Premier League. Ellen also chooses to celebrate her ‘diaversary’, so the team usually hangs out for the cupcakes she takes along to celebrate another year kicking the butt of diabetes.

Having diabetes hasn’t stopped Ellen from achieving in soccer and futsal. The last 12 months have been particularly rewarding!!! 12 months ago her girls futsal team won both the premiership and championship in the Sydney comp. For outdoor her BBFC U16’s team made the Grand Final and won in a penalty shootout. She then made the ACT team (regional team) to play futsal at Nationals in January – they were runners up in the Grand Final in a penalty shootout. And a couple of weeks ago at the presentation night for Boomerangs FS, Ellen was awarded female player of the year. We are pretty proud of her. Winning isn’t everything but it is great to get some wins and they have been a while coming!! Though I must say the victories are much sweeter after the effort you put in to get the diabetes right. (excuse the pun!)

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As much as it is a challenge, there have been lots of good things about having diabetes in our lives for the last 8 years. We have made a whole new bunch of friends we wouldn’t have otherwise met. Whilst it is so nice being able to converse with those who understand the challenges and learn new things from. Ellen has had the opportunity to speak at JDRF fundraisers and she was recently asked to take part in some research at ANU.

Being part of TDFC has been a huge help though. It was so nice to hear from others who play football and be able to read about their experiences. With Ellen being a girl it was so nice to read about Noel and what she has achieved. We got to meet Zac (UK DiaEuro Player) at one of Ellen’s games in Sydney and hope to see him again soon. Whilst it’s also great to see that Chris represented his country in Futsal, which gives Ellen so much hope she can achieve the same.

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To any young footballer out there, chase your dreams. Ellen’s favourite saying is “I don’t live with diabetes, diabetes lives with me”.”

 

A really great blog written by Karen Brown and a huge thank you from us for putting it together. If there’s anyone out there reading this who’d like to contribute in a similar way get in touch! We’re always on the look out for blogs and stories to share…

It’s much more than just Football or Futsal… Part 3 (Jack O’Brien)

In our third addition we share the thoughts of Jack O’Brien… Jack has a fresh outlook on the way Diabetes has impacted his life having been diagnosed quite recently! His account offers some great insight into how a newbie to type 1 Diabetes feels about the challenge of this condition coming into their life… No more words from us let Jack do the talking…

“First of all, I think I should point out that I am a relative newbie in the Diabetic world having only been Diagnosed 2 years ago today! (I wrote this on 6th Feb). DiaEuro was only the second time I was going to be away from home, and all the supposed safety that comes with that, since I was diagnosed.

To say I was nervous doesn’t really do it justice! I was fully aware that I was going to be spending the week with a group of people who have for the most part been Type 1 Diabetic for a long time. The fear or seeming like I don’t really know what I’m doing, or “messing up” all the time was playing on my mind because this was for me the first time I would be spending a prolonged period of time with other Diabetics. It’s funny how weird things like this can play on your mind! I was seriously still at a stage where I felt like it was only me who suffered from hypos because everyone else would have it under control!

The first morning we are there, we all go down to breakfast together as a squad to enjoy the spread of food that was being put on. It was this experience that alleviated all the pre concerns I had. Seeing most of us checking sugar levels and injecting insulin immediately eased my nerves. This was something that I found awkward to do beforehand.

Before you knew it, Diabetic chat was bouncing around the table. The same problems I found, others were also talking about. In a weird way, if felt so liberating! That sense of not being in something alone, that others have found ways to overcome similar situations and have come through them to find solutions was amazing for a newbie to hear.

You hear the phrase “trial and error” thrown around a lot when it comes to Diabetes, and I really understood that so much more after this journey. A corner was well and truly turned for me during this week. I am now playing sports more regularly, because I feel more confident. Understanding food on the day of playing football is something that is so important. Seeing other people using the Dexcom looked brilliant. Once I finished my trial run, I missed it so much that I signed up for 12 months.

 

 

 

 

 

The whole experience was invaluable to me. I learned more in that week than I would have done in years studying books and speaking to specialists. Seeing people who regularly play sport and manage their Diabetes gave me so many tips and ideas that I use myself now. There really is no better experience than experience itself.”

Thank you to Jack for sharing his thoughts on how TDFC has helped him and the UK DiaEuro team in particular. If you want to follow Jack on social media you can find him on Twitter @DalstonGooner … If you want to know what’s going on at Arsenal FC Jack’s your man to follow!!

It’s much more than just Football or Futsal… Part 2 (Scott Burrell)

In our second instalment of “It’s much more than just Football or Futsal” we look at the story of Scott Burrell. His journey with TDFC and type 1 Diabetes has been staggering and for those of you unaware of what Diabetes care was like without the technology that is available now, I’d urge you to read on… This is a fascinating account of how TDFC has effected and improved Scott’s life and another example of a social / community based project like ours supporting healthcare benefits and objectives for those living with the condition. No more talking from us lets hear from Scott in his own words:

“Being selected in the UK DiaEuro squad really changed my ‘diabetic life’ and that’s by no means an exaggeration! Firstly, and something a majority of the squad had said, was that they’d never met another T1 in ‘normal’ life so that was great. Like any football squad you tend to bond quite quickly with the other players but we bonded especially quickly as we all shared the condition. My knowledge of T1 has increased ten fold. It was great to share stories and bounce successes/failures off each other.

I was actually the only member on mixed insulin. I was taking Humulin M3 which was the same insulin I’d used since diagnosis in 1999! I’d been told for many years, probably close to 10, that a basal/bolus regime would be better for me, but me being a stubborn so and so I’d always thought I’d be better sticking with what I knew. Seeing all the other lads using the basal/bolus regime and many telling me how they had moved from mixed insulin and how much better it was really gave me the incentive to change.

A few months after we got back I eventually made the switch and now take Toujeo & Novo Rapid, I’m finding it much better and in hindsight wish I’d changed over many years ago. I’m certainly having less hypos which had always been a big problem for me before. As good as healthcare professionals are it was the kick from people living with the condition day in, day out which convinced me to finally change.

Finally I’m a lot more open about my Diabetes now… Growing up and even in my early 20s I’d try to hide it as much as possible, not talk about it and only tell people I was T1 if really needed. My mentality completely changed about that having been selected in the squad. I’ve now had newspaper articles written about me and appeared in a TDFC video filmed by BBC Hereford & Worcester which they shared on their social media platforms talking about the project and the condition. It actually made me feel ‘proud’ and gave me a desire to talk about diabetes for the first time…something I’d never experienced before in my time as a T1.”

Keep an eye out for more stories from some of the community and if you want to follow Scott on social media head to his twitter account @scottbufc to get in contact with him.

It’s much more than just Football or Futsal… Part 1 (Tim Ward)

In April 2018, we started something which had never been done before. We created the first ever Futsal team in the UK that contained only players that lived with Type 1 Diabetes… As much as we hoped it would inspire and raise awareness of the condition we also wanted it to change lives and demonstrate the value of doing things differently to the medical profession when looking after people with Diabetes. We think it’s done that and more! Hopefully organisations such as the NHS can see the value organisations like ours add and continue to grow their support and the opportunities to work more closely together.

However, that’s enough about what we think…. Let’s hear from Tim Ward the UK Diabetes Futsal Team Goalkeeper about how TDFC has changed his life:

“Since becoming involved in the Diabetes Football Community and representing the UK as a member of the DiaEuro Squad my view of and the way I approach and manage my diabetes has changed, dramatically and it’s all been positive.

My usual mind set for the dreaded annual review at the local Diabetes Centre was an appointment to be met with the same antipathy as some of the staff showed when I tried to discuss the dreaded topic of getting any “Flash Glucose Monitoring”?! I have had my “Lazy” pancreas now for 37 years and as you can imagine as the years pass the complications within your health and well-being can arise and you start to accept this as the inevitable. Not any more!

A group of lads with a shared love of all things Futsal and Football related (be it all with Diabetes) can be a base of support, encouragement and knowledge which goes against the stereotype many wish to portray, but this is exactly what I have found.

Gone is the stigma of testing my blood glucose levels in the changing room before a game, or taking in extra carbohydrates if my levels drop while playing.

I have found answers to questions that the local clinics were unable or unwilling to give, I have experienced flash monitoring which has had an amazing effect on my knowledge of how my diet and eating habits affect my levels and how to better manage them to keep within the optimum levels. I have through the members of the squad learned new diet ideas of more fibrous carbohydrates, of when and how to inject and different options on the insulin to use.  I now know that there are a myriad of options available to me to not just perform better in a sporting context but also live a healthier more energized life of less hypos, a better hba1c and greater trust in my own body.

The greatest impact has been that I do not have to be ashamed of my condition, it is not a weakness, don’t believe it and don’t let others convince you that it is. It is simply a bad hand dealt. Make the most of that hand, TDFC can and will support you in any way they can.

TDFC and especially the players, coaches and management of the DiaEuro squad have taught me through words, actions or just a smile and a nod that when you’re ready to play, take a deep breath, tie your boots, test your blood and go and beat whatever is in front of you, because you can.”

If you want to follow Tim on social media head to his twitter: @Tim_Ward07 or to his instagram: @timward16 and make sure you keep an eye out on the blog as we release more player thoughts on how TDFC has impacted their lives in the coming weeks.

Diabetes, Football and Me

It’s great to be able to share stories of our community and when we asked Zak if he’d like to write for the blog he was really keen… If you’d like to write something for us please get in touch! Anyway, over to Zak…

Hi, my name is Zak. I am 26 years old and a PE Teacher from Lancashire, England but currently living in Sydney, Australia.

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Football has always been a huge part of my life and being diagnosed with Type 1 Diabetes aged 14 did not change this one bit.

 

Despite my Dad’s initial fears that I may not be able to play football in the same way, we were reassured by the nurses at Blackburn Hospital that I could continue my number one hobby soon enough. Sure enough, after a few minor adjustments and some extra pre-game preparation, I lined up for my team just two weeks after diagnosis! I remember it so vividly, tucking into a couple of digestive biscuits at half time to keep my blood sugars up and cramping up towards the end of the game.

 

I know that many people have struggled to keep up their previous lifestyles after diagnosis, through fear of hypos/hypers or by misinformed advice, but it’s something that has never stopped me from doing anything I like… except for one thing – scuba diving.

 

I have tried to Scuba Dive twice in Thailand and Australia but not been accepted both times. Without a doctor’s letter of approval after taking private health exams via a registered “dive doctor”, unfortunately I had to stick to snorkeling. I’d be interested to hear about other people’s experiences with scuba diving so please get in contact if you have a story or info worth sharing!

 

And despite the scuba setback, I have done kayaking, bungee jumps, overnight treks, 100km bike rides and many many more adventurous activities!

 

Having diabetes has its obvious challenges and hurdles we face day in, day out, but it has given me some great experiences that I will cherish for a long time to come…

 

I have been fortunate to represent Great Britain in the Junior Diabetes Cup held in Geneva, Switzerland. In my first year (2009), we won the tournament in a nail-biting penalty shootout against Slovakia. I was due to be the next penalty taker and I can’t describe the relief I felt at not having to take one! I went back again the next year and was nominated to be captain, which was an incredible honour. Despite finishing the top scorer in the tournament, we lost 1-0 in the final to Slovakia who got their sweet revenge (excuse the pun).

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Then in September 2016, I decided to move to Australia to give life a go “down under”. I have found a great football team here in Sydney and have represented Australia at the Mini Football World Cup in Tunisia, playing in front of a packed stadium of 3000 fans under the floodlights! I spent a bit of time pre-tournament learning the national anthem so that I didn’t have to mime awkwardly whilst on camera! I was also part of the UK’s first diabetic futsal team to play in DiaEuro 2018, which was an amazing experience both on and off the court. To meet so many other diabetics with a passion as big as mine for football was incredible, you can imagine how many stories were shared during that week!

 

A few adjustments have been made after moving to Australia, most notably with my prescriptions and dealing with heat of up to 40 degrees during summer! I have to pay for my diabetes supplies here, which makes me appreciate just how good the NHS is back home. Playing football in the heat took some trial and error too. My suncream is now just as important to pack as my insulin on a Saturday afternoon!

 

Two and a half years down the line and I’m still enjoying life here. I’ve met one other sporting diabetic superstar and her family in Sydney – my namesakes the Brown’s have been great at handling Ellen’s diabetes whilst she competes at the highest level of futsal in Australia at U17 and all age women’s level. I hope to meet and chat to a few other sporty diabetics in the near future, so if you’ve read this and want to add anything of your own then please step forward!

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G’day

Zak

If you want to find Zak on social media head over to his Twitter @mrzakbrown or his Instagram @zakbtown

New Year, New Goals, Same Motivation?

At the start of every year I find myself reflecting on what’s happened over the previous 12 months and looking forward to what the next 12 bring my way. I don’t think I’m alone in the way that I do this with the hundreds of posts I see online, all referring to the end of one year and the beginning of the next. It’s a period of transition which in my eyes allows me to reset my thinking and the batteries. It gives me an excuse to think about the positive changes I can make to my life in the New Year and the impact I can have on the future, as I know I can’t affect what’s happened in the past.

However, the start of the New Year in the U.K is often grey, cold and somewhat uninspiring for those looking to get active for the first time, or who have had a break over the festive period. Combine that with a challenging period of over indulgence in Food and drink that tests the blood glucose levels of people with Diabetes, and you can see why it may be a struggle to get into a new regime during the New Year.

Diabetes is a condition which is renowned for testing even the most positive people in their approach to life, so it’s important to consider its pitfalls when finding your motivation to get active or play sport. How do you combat negativity around your condition which affects your mindset and approach to daily activities and exercise?

I don’t have a definitive answer… However myself and Alex will try to offer you some insight in how to approach the New Year, set new goals, how to find your motivation and most importantly, maintain it:

  • First of all, it’s about what motivates you to get active? Is it external praise? The sense of achievement from within yourself? Money? Fun and enjoyment? Becoming Healthier?  There’s a whole array of things which may drive you to make a change. In my life it’s about the sense of achievement I get from ticking off goals and the enjoyment I get from playing sport.  But for you, it’s important to understand what’s driving you to get active or stay active and use that to continually fuel your motivation.

  • Secondly, I never set Diabetes related goals… I’m not sure if that will shock people or not, but it’s how I work as an individual. I’ve always had the attitude that as long as I maintain acceptable control which allows me to perform to the best of my ability in my sport, and it doesn’t affect my every day activities, that’s good enough for me. If I give it too much focus in my life it will consume it, so I choose to position it on the backseat of my life and not the front seat.
  • I like to break my goals into categories… I tend to place any objectives or goals into sections which reflect the direction of my life. So for example in 2018 I’ve got goals for my Personal life, my sport and my career. It helps me organise myself and the direction I’m trying to head towards in all walks of my life.
  • I set 2 or 3 goals in each section which I believe are achievable within the timescale of 2018…It’s important you don’t try and change too much as you’re unlikely to be able to achieve too many goals, which may disappoint you in the long run. Be realistic in the expectations you set yourself.
  • The goals I set are the big things I want to achieve, but each week I’ll set myself much smaller ones which underpin the progress towards the bigger ones. For example it might be reducing my 5k running time, or lifting a heavier weight in the gym. Neither of which are part of my overall objectives but both will contribute to hopefully successfully achieving 2018’s goals. Those smaller goals can be so important when you’re having a tough week with the Diabetes in feeling that sense of achievement we need to keep us going. I think it it’s important in driving the continuation of exercise and keeping those good habits.

Of course my motivation and the tools I’ve used are transferable, but on the next section of this post I’m handing over to Alex who’s going to take a look at it from his perspective as he’s spent a considerable amount of time studying sports psychology.

 

“I want to talk to you guys about goals. Goals can help keep you motivated throughout the year, especially when the initial motivation that often comes with the New Year begins to fade. All goals are not created equal and the better goals you set the greater chance you have of continuing to make progress throughout the New Year. The rest of this post will give you some do’s and don’ts when setting some goals.

DO – Make sure the goals you set are in the form of actions and behaviours. If you want to increase the amount of exercise you do this year, how are you going to do that? Perhaps you want go to the gym more? How many times a week will you go? An example of a good goal in here would be, “I’ll go to the gym twice a week this year”. You could make this even better by deciding which days you will go to the gym. Once you’ve achieved this goal you may decide to add another night.

DON’T – Carrying on from the first suggestion, do not and I mean never ever, set vague goals. So if you find yourself saying something like, I’m going to take my football more seriously this year, refer back to the first do. If you have ever found yourself starting something for a few weeks and then slowly but surely reverting back to old habits, vague goals may well be the reason why. Vague goals can also be thought of as wishful thinking.

DON’T – A goal that can’t be measured is not a great goal to set. Setting a goal that you can measure allows you to check your progress as you set out to achieve your something and lets you know when you have been successful. If you want to improve your diabetes management this year, perhaps set a target for where you would like your HBA1C score to be for your next consultation. It’s really important to mention here, that goals concerning your HBA1C score should be set with gradual improvement in mind, not drastic changes.

DO – Set goals that are positive. This is a simple but powerful tip; it’s really important to focus on what we want to happen rather than what we’d like to avoid. When you’re setting goals, try and make them about increasing behaviours rather than decreasing behaviours. So if you have a goal regarding your nutrition, make your goal about starting to eat things that are going to help you lead a healthier life instead of stop eating foods that don’t help you lead the lifestyle you would like. Being positive in your goal setting will help you decide on the actions that will help you get there (remember the first do).

Since I have just suggested to make your goals positive, I am going to finish on a do rather than a don’t. My advice to you all, setting goals will increase the chance that any resolutions you’ve made will continue past January. Goal setting is key to long lasting motivation and it will also let you see how far you’ve come. Once you see yourself making progress I hope this will also increase your motivation to continue. Happy New Year folks!

Alex.

If anyone wants some more in-depth advice regarding setting goals for the New Year, don’t hesitate to get in contact with me via email.

alexrichards35@gmail.com”

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