Jon Rosser: My life with Type 1 Diabetes

I’m Jon Rosser, 27 years old from Bristol and have been a type 1 diabetic for 17 years. Being involved with TDFC has enabled me to link up with other diabetics of varying ages and share our experiences, however this is often very focussed on the present – what we are currently doing, learning or going through. Reading these blogs, I found gaining an insight into these people’s pasts and hearing of their journey has been really enlightening and valuable, even for someone who has already learned to an extent how to live with the condition. So the obvious next step was to try and somehow put down my story outlining the changes it has made to my life and the lessons I’ve learned in the hope that others can take something from it like I have done. So here goes…

My journey starts with diagnosis at the age of 10 and the very familiar story of the tell tale signs. I was always thirsty! I didn’t really notice this symptom but my dad whose late mother was a Type 1 noticed I was increasingly up and down to the kitchen tap, filling up pint glasses of water and knocking them back like no tomorrow. As a result of this I was back and forth to the toilet and it didn’t take long for him to step in. Looking back at it now I suppose I was quite fortunate that my dad noticed this going on and intervened pretty early as I can’t actually remember feeling too bad! He made me do a urine sample and booked me into the doctors. A quick ketone test and finger prick confirmed what my dad had feared and arrangements were made for me to forget about going back to school, pack a bag and get to the hospital. Being a 10 year old I can remember feeling a bit oblivious to what was actually going on, but I knew that something had ultimately shifted by the way my dad had reacted, he seemed gutted and spoke to me about how we were going to go about telling my mum when we got home. I had never even heard of diabetes and was still completely naive about what was to come. 

A few hours later I was at Southmead Hospital being admitted into the children’s ward. A flurry of nurses were showing me my bed, where the toilets were, where the common room was, a full on tour of the facilities and this was the point where I kind of started to realise that I was here to stay for a while and this whole situation was going to be the start of something that was going to change my life forever. I was on this ward for 5 days and during this time I had to learn the skills that would ultimately keep me alive. One event that sticks in my mind from this period was when a 16 year old boy got rushed into the booth next to me. Other kids on the ward were all chatting to their neighbours so I welcomed a new face to hopefully ease the boredom. However on admission his curtains were shut and I remember feeling that the nurses were actively discouraging me from trying to say hello, and no sooner had he arrived he was gone again. I didn’t find out until years later that this guy was also a diabetic and had not woken up one morning due to having a serious hypo during the night. Looking back now I realise it was the right call not to let a newly diagnosed 10 year old get wind of this! The ward had a classroom where I spent a few hours a day which was nice as it got me out of my bed, but I remember being pulled out at regular intervals to be finger pricked and stuck with syringes and this was another point where I started to realise this was going to be the new normal from now on, and I didn’t like it one bit. How was this going to work at my own school? What about at football? I was bang into scouts at this age so how will I go on the camps? Can I even still do all these things? The answer of course was yes, but the anxiety and worry about all of this was something I will always remember. 

Fast forward a bit and I’d settled into my new routines, teachers and coaches had all been really engaged in making things as easy as possible for me. But it wasn’t all plain sailing by any means. I was initially put on the 2 injections a day regime and it wasn’t long before I felt frustrated at the restrictions of this, especially when transitioning to secondary school. Having to inject my insulin at the same time morning and evening, and knowing I HAD to also eat at these times each day meant things such as after school sports fixtures, clubs, and even just hanging out with friends would all have to be arranged around my insulin and meals. It took so much planning and at times I found it exhausting and stressful. 

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I want to shift the focus largely on how I’ve dealt with my diabetes within football and sport and I guess I’ve never let it stop me, but there have been times when I felt it has hindered me. At the age of 15 I joined Forest Green Rovers from just previously playing local junior football, and the training stepped up which was great! But it was a much more competitive environment and although to a certain extent I had always tried to keep my condition under wraps (which seems to be a common theme from guys writing these blogs), in this environment I found myself doing this even more. I didn’t want to show any weakness and felt an obligation to keep up with the standards being set, often not recognising that in order to do this I needed to take time out of sessions to take on sugar or test my levels. Occasionally this led me to playing on through hypos and my standards suffered as a result. Sometimes coaches and players would confuse my hypo reactions with being lazy or uninterested, and I found trying to explain what was actually going on sounded like excuses. The fact I was still on the 2 injections a day meant that I would get home from school, have to hastily eat a carby meal (to avoid going low during training) before heading straight off to train on a full stomach which personally my body did not deal well with – I’d feel heavy and slow. It was the same with the games – we played in a floodlit league so fixtures would be midweek evenings so my preparations would never be ideal. These pressures ultimately led me to change onto the basal bolus regime and immediately after I did that I saw the benefits, not just with my football but with my day to day life. The flexibility was something I’d been longing for and I continued to play for 2 more successful seasons at Forest Green, winning individual awards at presentations and I remember feeling really proud and realising at this point that I had gotten the upper hand on my diabetes and vowed to never let it beat me.

Another event that always sticks out to me as a time where I felt I overcame the urge to keep quiet and let my diabetes win was in a tennis tournament when I was about 17. Over the course of about 6 weeks I had played a match every week and got through to the final without any diabetes related issues. In this final however I struggled from the start. There were a fair few people watching and I was putting my performance down to nerves and threw away the first set in record time. On the switch around I asked the umpire for 10 minutes just to check my sugars which for me at the time took a lot of courage, I was 3.1. I remember sitting there in front of the crowd openly testing my sugars and taking on food which is something at that age I always felt really self conscious doing. My opponent was getting restless as were his supporters watching on but I stabilised my levels and got back out there… I smashed him in the next 2 sets to win the tournament. Like I said this was a real moment of realisation that I could achieve things in sport regardless of having this condition and getting dealt hypos, and it gave me confidence to keep aiming high. 

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The next major milestone for me was gaining a place at Plymouth University. Leaving the family home to move to a new city with new people, new surroundings and new routines was pretty daunting, and when you throw diabetes into the mix it was quite a challenge. I was having to shop and cook for myself and it took a while for me to get used to having full responsibility for what I put into my body in order to maintain good control of my condition. Students’ diets are notoriously not the best so resisting the urge to follow examples of quick, convenient, often high sugar and high carb meals set by my new found friends was important and something I’m glad I focussed on, as it set me up well to continue to control my diabetes successfully. I quickly got involved with the Uni football club and was playing regularly, although the routines and rituals of a university football club were much different to what I was used to. One thing I struggled with was the fact that if we’d win on a Wednesday afternoon (and often even when we lost!) after the game it was shirt and tie and straight to the bars. A lot of these guys wouldn’t take time out to eat post match, and especially after a good win, wouldn’t go home until the next morning. Being diabetic, I felt a bit of a kill joy having to temporarily leave a buzzing group of lads for a few hours to go and get some food of substance and make sure I recovered well in terms of glucose levels, especially when there was alcohol involved! This was a small price to pay though as I found if I put my diabetes first, I would have a much better time celebrating later on knowing I’d done what I needed to do in order for my sugars to behave (as well as they could) during a night out in Plymouth’s finest establishments. These were some of my best times playing football, the social side of the club was immense and winning a varsity and a cup in my 3 years at Plymouth are things I remember for the achievements and not how my diabetes hindered me!

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The most recent landmark in my footballing life has most definitely been getting involved with TDFC. I remember turning up to the first session and experiencing an environment where everyone there would openly discuss the condition, openly test their sugars and inject insulin, there was an underlying bond straight away. I had been so used to dealing with diabetes in a changing room and on a pitch on my own – it was solely my problem, and to feel that problem shared by everyone else there was so refreshing. No feeling guilty for taking time out to test sugars, no strange looks for sticking a needle in my arm, just a feeling of understanding and support. I have played in both DiaEuro tournaments that the UK team has entered in Bratislava and Kiev, and both times were amazing experiences. Playing against some top nations and top players gives you that drive to improve and I feel since being introduced to Futsal (which I had never played before TDFC) I have learned and improved my game as well as my control of my diabetes. I have also found myself transitioning skills I’ve learnt from Futsal into my 11-a-side game which is great! I’ve also found my Saturday team mates have taken a real interest in what I’ve been involved with regarding TDFC, seeing it on my social media and things like that. One of the lads has even adopted a pre match ritual of eating glucose tablets with me before kick off and now swears by it! 

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So that’s my story (so far!) of my life, football and sport with type 1 diabetes. My message to anyone maybe struggling to adapt to life and sport with diabetes is not to hide it, be open and honest about the problems you may encounter, it’s not a weakness! Although it presents challenges I feel diabetes has made me stronger in many ways, especially with discipline and will power… so keep at it!

Thanks all!

Jon

Instagram: @rossergram

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Scott Burrell: My Story with Type 1 Diabetes

Disclaimer – Some of what you’ll read in Scott’s journey portrays difficulties, mistakes and challenges that have shaped who he is. As human beings we cannot go through life without making difficult decisions, but through doing this, we learn and evolve into who we were meant to be. But please be warned that some of Scott’s journey touches on some of those difficulties, mistakes, challenges and emotions that some may find tough to read.

It’s an extremely powerful, emotive and truthful account of how life has been for one of our own and we hope you enjoy the read.

Over to Scott to take us on his journey…

“My name is Scott Burrell, I’m 31 years old and have been a Type 1 Diabetic for 20 and a half of those 31 years! I remember my diagnosis day/week incredibly well considering I was only 11 years-old. It was the October half-term (so yes strictly speaking I’ve been T1 for longer than 20 and a half years now!) and I wasn’t going down to the village green to play football with my friends. I hadn’t been on any day of the break as I’d been laid on the sofa at home, this was very much out of character as usually I would be down that green every single evening in the summer and every day during school holidays playing football. I was drinking ridiculous amounts, drinking things I would never usually drink and even at one point freezing fizzy drinks (all full sugar in those days!) in an attempt to ‘freeze out’ the acid! The crazy mind of an 11 year old child! It had got to the point where I was going for a drink every 5-10 minutes and going to the toilet 6 or 7 times an hour. My parents called a doctor out on the Wednesday night as I had deteriorated again quite quickly, I did a urine test which was no problem at all as I was going to the toilet so regularly and as soon as that was done the doctor advised my parents to take me to the hospital ASAP. My dad drove the three of us to Pilgrim Hospital, Boston, Lincs (fantastic hospital for T1 care by the way!) and before I knew it I was on the ward strapped up to many drips and cables looking very much like a scene from Casualty was about to be shot…without the tomato sauce for blood! My mmol on the finger prick was 34.7 (normal range between 4 – 10 mmols ) and I was diagnosed T1 straight away. I don’t recall having ever heard the word diabetes before let alone having any idea what it was.

I remained in hospital for the next four nights and left on the Sunday. I’d had to take on so much information during this time I’m sure like everybody in this situation. I remember not being allowed to leave hospital until I’d done an injection myself, I was desperate to leave so reluctantly did one into my right quad which was a favoured injection site of mine for many, many years. This was so horrible and painful but the price I had to pay if I wanted to leave the hospital ward. I was on a twice daily mixed insulin, Humulin M3 and took this before breakfast and before evening meal. It combined 30% fast acting and 70% long acting. My parents were advised to practice on each other with water and I was told I could gain practice by injecting into an orange! I’m sure times have changed an awful lot now!

I would say initially I was doing pretty well as a T1, I tested fairly regularly, always logged my results in the log book, never missed an injection, tried as best I could and my hba1c was always in the 6-8 range so fairly acceptable. I hid my diabetes as much as I could. I always had breakfast and dinner at home so had no need to take any insulin to school with me and this suited me, I was different. As far as I knew I was the only T1 in my year and possibly in the school at the time however if there was another keeping it secret like myself then I wouldn’t know anyway. I had told a couple of close friends that I’d been in hospital and that I now had Type 1 Diabetes but similar to myself none of them had any idea what it was. The teaching staff were aware and I remember the first time I had to discuss this with a teacher, I was petrified. I was in the changing room for PE and was told by the hospital to have a fun size Mars bar before any sport, of course eating was banned in school classrooms and changing rooms so this would have been very out of place. I asked the teacher as quietly as I could if I could have said Mars bar because ‘I have diabetes’ and was greeted with a yes straight away. I tried to conceal eating this as much as possible from the rest of the group and seemed to succeed in doing so. This doesn’t seem like a lot but for me it signified difference. I didn’t want to be different. I wanted to be a normal 11 year old!

Fast forward a few years and I struggled during my teenage years with T1. I thought I was invincible and that it wasn’t something I needed to be concerned with. I very rarely tested, at my worst I did maybe one or two finger prick tests a month at times when I had played football, all other times I would just disregard testing. I didn’t think it was relevant, I didn’t care what my glucose levels were. I did however take my injections and never missed a single one. Before any appointments at the hospital with the DSN I would just make up readings (different coloured pens for authenticity of course!) in my log book and if I felt myself going hypo I would just eat, usually chocolate as we were told that was good for hypos then or Lucozade tablets which were very similar to the Lift tabs now. I recall one poignant day was actually on a family day trip to London, I would have been about 13 years-old at this point and we were in McDonalds having dinner, my dad had ordered a selection of items and we were to take what we wanted from the table in the busy upstairs seating area. I went to the toilets to do my injection only to find that they were out of order. I went back to the table and just sat down, I didn’t take any food and started crying. My dad was asking me what was up, but I didn’t answer, I continued crying and was very upset. I had nowhere private to inject so therefore made the decision that I would just not eat. I was that insistent on keeping my diabetes a secret I wasn’t prepared to sit in a restaurant and allow people to see me doing an injection, that’s not normal, or so I thought aged 13. Jumping ahead slightly here, I later found out much later that a lot of my injections were almost a waste of time anyway as I was injecting into non-recommended sites on my body. Looking back, I would imagine I was high (mmol above 10) for a majority of the time. If/when I did do an injection into a ‘good’ site this would bring me back into range as I seemed to be injecting quite a large amount of M3, way more than what I needed in reality, 40 units twice a day. In today’s MDI terms that worked out to be 56 units of slow release a day and 24 units of fast acting…far too much insulin for a skinny teen!

I didn’t want to be seen as different, I hid T1 from my life as much as I could, I would only ever inject in private and didn’t want to know about it as much as I didn’t want people to know I had it. This really was a complete car crash in how to manage Type 1 Diabetes.

In my late teens and early 20s not a great deal had changed. I was still hiding my diabetes as much as I possibly could, and it was still affecting my life in a negative way. I would tell anybody who absolutely needed to know that I was Type 1 such as employers but apart from that I was still very shy and reclusive about talking about it, showing any sign of it in public or acting on it in public. I have way too many hypo stories from this age bracket and I’m going to explain a couple of the most ridiculous. I say ridiculous in the sense of looking back now and realising how different things could have been had I been more open about having Type 1 Diabetes, of course at that age I still wanted to be seen as ‘normal’, I was just the same as everybody else….I was invincible! Mentally I wasn’t strong enough to accept I had diabetes. When I was around 19 years old a good friend of mine was managing the local Domino’s Pizza, he’d offered me some delivery work at weekends which was ideal for a bit of extra cash. I was getting on fine with these deliveries but recall one specifically. I was driving to do the delivery but suddenly realised my glucose was dropping very low and very quickly. I never carried any hypo treatments with me in those days, I didn’t want to be different and have people question why I was carrying sweets or glucose tablets. I was struggling to find the address for this delivery because I was going hypo and having no treatments on me the only option, I had was to start eating the delivery myself. I tucked into some of the breaded chicken wing type things which really are a terrible hypo treatment as they’re a very slow release carb and that’s just on the breaded part…I had no other option though it was a case of needs must! I waited around for a little while, found the address and delivered the food, I don’t believe any complaint was made about the box of chicken wings being a few short! Looking back that was an utterly absurd moment for myself as a human, I could have dealt with that so much easier if I’d had hypo treatments in my car or on me, still fighting that mental battle of not giving diabetes the respect it needs of course I didn’t take that easy option. Going into my 20s I still had battles with myself against diabetes. It became a battle, me verses it. I’d have hypos on nights out and am incredibly grateful to the wonderful group of friends I have around me as I’ve been helped on many occasion, I’d have hypos during games of football, I’d have hypos during work, to put it simply I could have a hypo any time through lack of care. It was type 1 diabetes that ‘thing’ I refused to accept. I’m sure during these times I had many, many hypers (high blood sugars) too but of course these are less noticeable and as I wasn’t prepared to give diabetes attention, I wasn’t testing so I wouldn’t know what my levels were. In my head I thought the way to ‘win’ verses diabetes was to simply ignore it! I’m very sorry to say that on three or four occasions I’d had hypos where ambulances had needed to be called and paramedics would ‘save’ me. I always apologised profusely to them once I’d come round and felt very guilty that tax payer money was being wasted on me purely because I wasn’t strong enough mentally to accept I had a condition which needed care from myself.

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In my mid 20s I had attended the regular diabetic retinopathy screening (photos to look for potential nerve damage in the back of your eyes) at my local hospital and later received a letter to say that I had the very early stages of retinopathy. This was my first encounter with any potential complication from diabetes and I became very worried. My eyesight has always been very good so to receive that was a huge shock and a big wake-up call that I must now start taking care of my diabetes. Losing my sight at such a young age was something I didn’t even want to consider. I did some research online and spoke to some other T1s I’d found online who had had the same letter and was advised that it was nothing to worry about too much as it was a generic letter sent if you had even one slightly enlarged blood vessel in the back of your eye. All you can do is keep good control and things shouldn’t progress any further. This was my first engagement with the Diabetes Online Community (#GBdoc #doc) and I was so pleased that I’d done that. This was the first time I’d ever had any contact with any other person with Type 1 and it had helped me a lot, talking about diabetes was something I’d never done before.

Just after this I’d seen posts from a guy called Chris Bright looking for people who were Type 1 and also played football. This was ideal for me as I met both criteria massively. I was a Type 1 diabetic and a football nut! I’d messaged Chris a few times and discussed his plans with starting TDFC and was thrilled when there were enough people and interest for us all to meet in person over at the now base, University of Worcester. I was quite nervous and really wasn’t sure what to expect but set off early morning and got myself over to Worcester. There were around 19 in attendance and after some introductions in one of the meeting rooms we got into the sports hall and began a well-coached session. Other than a work colleague from my early 20s I’d never had a conversation with another T1 before let alone played football with one! This isn’t an over the top saying but this day felt like the first day of the rest of my life. I’d had so many conversations with so many different people about diabetes, something I’d never ever done before. I was no longer alone, I had a support network, there were other people out there just like me, they loved football and also had Type 1 Diabetes. There were also some sections of the media in attendance and I’d ended up doing an interview for the BBC which later appeared on their Facebook page! In the space of a day I’ve gone from seeing diabetes as the enemy, something I’d let hold me back in life both mentally and physically to engaging with it for the first time and speaking openly to a TV camera & journalist regarding it! The clip itself has had over 9,000 views which still shocks me to this day, you can catch it yourself here – https://www.facebook.com/bbcherefordandworcester/videos/2003662723039459/

Scott in Sofia

Driving home from that session I felt so infused, I’d learnt so much, met some great people and taken in so much information about how I can manage my diabetes better. This started an overhaul for me with the condition. I was still on the mixed insulin, the same stuff I was given on diagnosis day 18 years ago and had now seen first-hand that life would be so much better changing this. I did this and noticed a difference immediately. My control was better, I was aware of new technologies to track blood glucose which made it easier to track hypos and generally manage my condition better. I genuinely could not speak highly enough of what this session did for me. For the first time ever, I was comfortable being diabetic. I would inject in public, I would talk and engage about the condition rather than just ignore it, I would seek to improve wherever I could. Anybody new coming into my life I would make aware very quickly that I was a Type 1 Diabetic, this really was a watershed moment for me. I’d now taken control of a condition which for many years had completely taken control of me.

We had further meet-ups and training sessions with The Diabetes Football Community and I loved these sessions, great friends were made amongst the group we and we all loved the fact we were in the company of other Type 1s. We were lucky enough to be able to represent the UK at DiaEuro in 2018 and 2019, I was very fortunate to be selected in both of these squads and that for me was incredible. I was now being selected on a national level for an international sporting competition for people with Type 1 Diabetes. Three years ago, I refused to accept I had the condition, now I’m representing my country with it! Spending a week in Bratislava in 2018 and a week in Kiev in 2019 with the squad competing for the UK helped my mental health massively. I was with other T1s 24/7, seeing how they lived their lives with the condition, what could I learn, what could I do differently as well as playing futsal and having a lot of fun.

To summarise my relationship with Type 1 Diabetes since getting involved with TDFC would be quite hard to put into words. I love football/futsal but it’s completely changed my life for the better regardless of the sport. I’m happy injecting anywhere now, I’ve done injections on the Tube platforms in London, I’ve done injections on planes, I’m completely open with everybody I know and meet about my diabetes and I discuss my diabetes. Friends I’ve had for 10-20 years plus have also commented on what a positive change it’s been for me. I’ve even had the privilege of meeting a younger Type 1, Ollie Carr and having a really good chat with him and his mum about the condition. If someone had told me four or five years ago I’d be publicly speaking about my diabetes and going around others houses to do the same I’d be shocked, I’m so pleased this happened though. It felt incredibly fulfilling to pass my knowledge and information on how I manage T1 and sports to a young family.

Scott with Ollie
I’ve met many other T1s through the online community and also been involved in some T1 running events which is something I’ve really gotten into over the last year. I took part in an attempt via Paul Coker and OneBloodyDrop to break a world record for the most people with Type 1 Diabetes at the Swansea Half Marathon, I somehow finished the first finisher out of the Type 1’s with virtually no specific running training and this gave me a real boost to take up running more seriously. I’ve ran with other Type 1s outside of that event and met some other amazing people through running (as well as ran with amazing people!), my diabetes has never been so well controlled because of this too. If I’d never got involved with TDFC I’m not sure I would have taken up running too so it’s another massive positive for me.

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To sum up I’m proud of who I am now, I’m proud that I control the condition rather than it controlling me and I’m very happy to have met so many amazing people through TDFC. If it was not for these people and having that community, I’m not sure I’d be here today. It’s given me opportunities I never thought I’d have but most of all it’s made me a better, healthier (both mentally and physically) person and that for me is absolutely priceless.

It’s good to talk.”

Rob Fletcher: A recent Diagnosis Story

I’m Rob Fletcher, and I wanted to write down some thoughts from the beginning of my diabetes journey. I see a lot of people (especially with-it being Diabetes Week recently) sharing their long-term experiences and what has changed for them in how they manage themselves and their condition, but very little from people who are just starting out on this. It may be because like I did, people think they don’t have a lot to share, but maybe that is what needs sharing sometimes. So, here’s my journey so far (I may get carried away and make this into an essay – I’ve never actually put this down anywhere).

In the summer of 2018, there were signals that I didn’t pick up, they may have been related to diabetes, they may not (and I’ll never know for sure) but they were some of the tell-tale signs. I needed the loo a little more regularly and long drives were really hard to manage due to toilet breaks. However, it was that autumn when things got a bit more serious for me.

I am a primary school teacher, and in September 2018 I started to feel exhausted after every day. This felt almost expected, autumn term is tough, and I had a few big school events I was responsible for organising and running. I was 31 – maybe it was just a sign of getting old, maybe I was working a bit hard, maybe it was working with a different group of children – I am excellent at finding excuses for things, especially if my excuses mean that ‘nothing is really the matter’. As we rolled into October my half an hour walk to work was taking between 45 minutes to an hour. I was starting to get little cramps and I needed the toilet a lot, I could rarely make it through a lesson. At this point I no longer thought it was stress but maybe a urine infection or a virus of some kind. My wife was telling me I should go to the doctor, but I guess I didn’t want to hear what they may say so I convinced myself that I would be fine, my parents wanted me to go to a doctor but I palmed them off with my self-convinced nonchalance.

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My vision had become blurred, it felt like I was walking through treacle, my urine had begun to smell so bad that I believed we might have a problem with our drains. I felt awful. I had a job interview in this period, so the fact that I couldn’t stop sweating must have been down to my nerves right? On October 10th (My school was doing Book Day), dressed as Fantastic Mr Fox, I was teaching sat on some cardboard boxes at the front of my class, I couldn’t find the energy in me to stand up, and this was unlike me – I love to throw myself into my teaching and around my classroom. My TA at the time noticed all this and got the assistant head to come who quickly sent me home. Even at this point I was in denial, “I’m sure it’s nothing!” I told my wife as she went to work on Thursday morning, she told me in no uncertain terms that if I didn’t go to the dr that day there would be trouble! I got my appointment and off I trudged.

The dr gave me a urine test, took one look at it and told me that he normally would say that he thinks it could be this, but in my case,  he was absolutely certain – “You have diabetes.” I was walking distance from the hospital so I trudged off round the corner explained who I was (the dr called ahead) to reception, called my wife, and before I could sit down they called me through.

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The next part of this feels very blurry looking back. I remember my wife arriving, and I remember all the staff being very concerned, I had blood sugars of 37 and ketones of 7, I was in DKA. The hospital staff told me they hadn’t seen someone with my bloodwork conscious before. I remember my wife looking scared.

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To cut the scary part of this experience short I spent 3 days in hospital getting my sugars settled and learning how to inject myself and check my levels and generally how to manage type 1 diabetes. Then I started what feels like a totally different phase of life. Genuinely nothing seems the same.

 

In terms of diet I changed very little, I had been a vegan for about 10 months at this point, the dietician told me I didn’t need to counter for most of my diet just processed carbs and root veg. I changed out white potato for sweet potato, white rice for brown rice (the internet said it was a good idea) and I went about managing what I knew was the rest of my life. I recall people saying they wouldn’t be able to do it, or that they were very surprised with how well I was taking it, but for me I didn’t have a choice so I may as well do it in good spirits and determination. There were times I got it wrong, big nighttime hypos, pizza (that’s a mad one! I still don’t know how to handle pizza) there were frustrations, there were sore fingers but generally I got on with it.

I think it was as New Years rolled around that I started to feel the mental health effects of a life changing illness. I felt guilty about what my wife might have to go through (I think I still do a bit), I felt lonely, but I didn’t want to go and sit in a support group. I didn’t want to feel different, but I did feel different – every little head rush, every pins and needles, if I was tired or a bit giggly all felt like ‘that’s diabetes’. I became nostalgic for times before my diagnosis. I had got to thinking about playing football again, partly as nostalgia (I did well as a kid, then had played off and on since) but also to get back my fitness – this felt like something important as a diabetic.

It was by searching for diabetic football I got put in touch with Bryn who had just set up TDFC London playing futsal (I had never heard of futsal before – but I was up for learning). It has been, without doubt, the best part of being diabetic for me. I gained a ‘support group’ in London that was actually just a group of guys playing futsal, and I got to learn how to be a goalkeeper again (which I love). I’m quite shy and not ‘a lad’ so I kept myself back a bit from the group but took on as much information as I could, then the opportunity came to train with the UK diabetic futsal squad in Worcester. The car journey up 4 of us spoke the whole way about troubles, shared experiences and advice with each other. This and all of the future journeys was another chance to get to know these brilliant men and to learn about my condition. On top of that I got to play futsal at an even higher level. Chris Bright has to take so much credit for starting TDFC and putting together this incredible team of guys who care as much about each other as we do about futsal.

It was at one of the UK camps where I realised how far I had let my fitness slip. I love to have a target, so I booked myself onto a half marathon, raised money for Diabetes UK and almost a year to the day of my diagnosis with type 1 I ran my first half marathon. I genuinely couldn’t have been prouder of where I’d got to in my first 12 months of diabetes.

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There are so many things I have gained from playing with TDFC: a group of mates, a love of a new sport, better fitness, so much more knowledge of type 1 diabetes, I even got my freestyle libre based on advice from one of those car journeys. I still have frustrations, I am of course still learning – I find it hard to manage my meal spikes, but I am learning.

I have grown as a person due to this illness. I understand more about when people feel in denial, when people feel scared about the future, I feel so empowered when I meet a type 1 child who needs to talk to someone about it – I would never have had this without diabetes.

I am excited for the future: I am excited to overcome my future challenges, I am excited to play futsal (when we can again), I am excited to help other diabetics. Would I choose to have it, absolutely not. Am I scared of it, sometimes. Does it worry me everyday? Absolutely not, I am getting there slowly but surely.

Managing Type 1 Diabetes for Football & Futsal in 2020…

The new year is always a chance to take a fresh look at things and alter the path or journey we’re on…. At the start of every year I try to look at the context I’m surrounded by and set myself new goals or challenges which drive my motivation for what’s ahead.

But what I thought I’d do, to help some of you out there who might be thinking about starting a journey with Football/Futsal & Type 1 Diabetes or taking it up a level, is give you some insight around how I manage my condition. 2019 was a pretty good year for me with my sport so it’s probably a good time to share with you some of the ways I go about trying to get the best from my glucose levels to allow me to play to the best of my ability.

So I thought I’d outline some of the ideas, most of which I shared at the #SporT1Day conference, to hopefully provide some insight and support to anyone out there who might need it.

Here’s my general thoughts on what I try to do or think about for my management before any sport or exercise:

  • A plan of how to approach the sport/exercise/game – What type of exercise is it (interval, aerobic, anaerobic etc)? Intensity? Duration? Time of day? Timing of meals? Last Bolus?
  • Consistency of Routine – If it’s working, I keep using it.
  • Good night’s sleep.
  • Plenty of time between pre match meal insulin dose and starting the game (3 hours + ideally)
  • Lots of Testing – As much as you can or utilising a CGM such as the Dexcom G6 which has been the best I’ve used so far. This way you can learn about the effects of types of exercises, intensities, durations etc on your glucose levels.
  • Small adjustments of insulin & carbs to try and find the right glucose level for your best performance or for you to just enjoy it.
  • I aim for 7-8 mmols throughout the duration of any game to try and achieve my best performances.
  • Having my quick acting hypo treatments and insulin available and accessible for any adjustment I might need.
  • Consider the weather… Is it cold or hot? They usually play a part in how our glucose levels respond.
  • Am I in good general health? Have I been ill recently? Can play a part in less predictable glucose levels.
  • Keeping on top of my hydration… I find my levels drop more quickly if I’m dehydrated.
  •  Stress Levels – Do I feel nervous? Am I calm? Sometimes bigger games cause a bigger adrenaline spike in glucose levels. Do I need to account for this?
  • Have I fuelled up well before the exercise? Have I eaten enough calories/carbs in general for the energy I’m going to expend.
  • Always consider how much activity you’ve been doing around the particular sport or exercise you’re about to take part in, because the more active you are, the more sensitive to insulin you are!

Below are some of the generic details about my day to day management…

• My daily carb intake is around 180g. ( + or – depending on activity levels). I’m on MDI and CGM, No pump.
• Carb Ratios are roughly 1:15 g breakfast, 1:10g lunch, 1:7.5 g for dinner.
Much of what I’ve said above is linked to a generic way I tackle my Football or Futsal but there are some subtle differences I employ between the two because the intensity of the two sports is very different. This has a drastic impact on the reaction of my glucose levels and the way I manage them during and afterwards especially. So I’ll show you some of the key differences below:
Football (Example is preparation towards a Saturday 3pm Kick Off)
  • Aiming to be 7-8mmols to start the game and throughout.
  • Ensuring my pre-game meal & bolus is 3 hours before kick off.
  • Reducing pre-game meal bolus by roughly 10%.
  • Half time testing and adjusting based on level. If I’m below 9mmols I’ll take on 10g of carbs to cater for the second half dip and even more if my levels are below 5mmols. These choices very much depend on length of time you’re going to play and how hard the game is. If it’s a tough game with a lot of chasing then I sometimes have an extra 5-10g of carbs. If I’m over 13mmols I’ll take on a unit of insulin.
  • Post game meal I reduce my bolus by 25-50% depending on how much I’ve played and the intensity of the game.
  • I try to make my post-game meal both full of protein and carbohydrate to help with the recovery of glycogen stores and muscle growth/repair.
  • I will have a bed-time snack of 10-15g without a bolus to try and alleviate the nocturnal hypo risk. (If I’ve played a whole 90 minutes, I’ll scale all of this back if I’ve played less than that)
  • I don’t adjust my basal insulin because I use Tresiba, which is an ultra-long acting insulin and this will have no effect on my risk of a nocturnal hypo.

Futsal

  • I like to start the game at 5mmols if I can, because despite being lower,  I’m still likely to need a small bolus before the game or at half time to manage my levels rising as a result of the higher intensity and expected spike.
  • Because of the roll on, roll off substitutions within Futsal, there’s a lot more opportunity for adjustment. So I always come off from the court and immediately check my CGM and look for the trend arrows and glucose level.
  • I always tend to carry a bit of short acting insulin in my system because for me within Futsal, knowing I have frequent breaks and the likely impact of the intensity (levels rising), I’d rather be lower and taking on some glucose, as it reacts quicker than my insulin, than being too high and waiting for my insulin to kick in. The important factor for me is having a glucose level which allows for performance, not the number of adjustments I have to make.
  • I will always have a protein bar/snack post game of around 20g of carbs because I tend to have a sharp drop in my levels post game. Probably as a result of carrying short – acting insulin during my sport and the intensity.
  • I don’t make any bolus adjustments post – game to my meals. Again I’ll eat a meal heavy in protein and carbohydrate.
  • No basal adjustments as a result of using tresiba.
  • If I want a bed-time snack I’ll bolus for it with a small reduction of 25%.
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I really hope that this is a useful post for people out there trying to tackle football or futsal for the first time, or who might be finding it challenging currently. If something from this article helps someone out there get more from their performance or just allows them to enjoy it more I’ll be happy!! Please give it a share if you can because I’m sure you’ll know someone who may also find this useful.
I’ve also added my slides from the #SporT1Day Conference to the bottom of this post if you wanted to see what I shared on the day, which also has much of this detail in.
Thanks for reading and I wish you all a happy and healthy new year! Please also be aware of the below disclaimer.
Chris
Disclaimer – Always remember that this a personal perspective and is not endorsed by a medical professional. So any advice or ideas you take from this post is at your own risk and should always be cleared by your diabetes team. 

Chris Bright Presentation 2019 ( #SporT1Day Conference )

What happened at SporT1Day 2019…

Well….. Where do I start?

I suppose it’s taken me a little while to get this written down with the vast amount of things on my plate in the last month but we got there eventually!

A culmination of months of behind the scenes work, emails, phone calls, marketing and raising awareness of what we were putting on came to fruition on November 17th. There was no better timing than to host it 3 days after World Diabetes Day as a statement of support for one of the most important days in the calendar.

Before I talk about the event itself, I need to thank the University of Worcester for allowing us to host the last 2 SporT1Day conferences within their facilities. I have a brilliant relationship with so many people at the university and their continued support for me, the conference and The Diabetes Football Community is incredible. I will always have a strong affinity to my university for how they’ve encouraged & facilitated the projects we’ve come up with and I just hope I represent their values & ethos in the work I now do. A huge thank you must also go to Dexcom & Roche for sponsoring the conference and supporting with refreshments & the programme.

I also must say a huge thank you to Paul, who shares this joint vision to drive education in sport for people with type 1 diabetes. A mate of mine whom I’ve been able to co-create something special alongside. Thank you buddy… We’re on some journey with this and I can’t wait to see what we can do next.

But lastly before talking about the day a final thank you to the incredible speakers, paul’s family and my own family for helping us deliver the day. Without you it wouldn’t have been possible.

An early start for myself, the family and one of our speakers Alex Richards, as we made our way down to the university. I was definitely less nervous than the first time round after having the experience of last year’s conference already under the belt. After setting it up the best we could based upon the volunteers and resources we have available for this kind of event we were all really excited to start seeing people arrive.

As soon as you see people arriving with their tickets it’s an incredible feeling to know that all of the planning you’ve put in place is about to happen but it’s also the moment when you realise there’s a show to put on.

We kicked off the day with the incredible Professor Partha Kar, who really needs no introduction. An amazing man, who through his determination, passion and ability has helped drive a transformation in the way type 1 diabetes is both viewed and supported within the NHS. Partha gave us a talk about the focus and direction the NHS England Diabetes programme is heading in whilst demonstrating the incredible developments and uptake of technology across the country. Having someone of Partha’s credentials attend the conference was a huge compliment and I really do owe him (He’s got me down for a couple of beers the next time I see him!). @parthaskar on Twitter

We’d planned the day to give our audience a chance to take on the recommendations and thoughts of the healthcare professionals at the beginning and end of the day. We felt this would be a good way of allowing people to pick up some tips before listening to some of the experiences of our athletes and people living with type 1 diabetes throughout the rest of the day.

After the excitement of Partha’s opening we then had the pleasure of having 2 of the leading healthcare professionals in exercise and type 1 diabetes within the country, whom lead on the EXTOD programme (www.extod.org), talk to us about the science of managing blood glucose levels through particular types of physical activities and sport. Dr Alistair Lumb and Dr Parth Narendran have been imperative in driving attempts to improve the knowledge of other healthcare professionals across the country through EXTOD and having them share the knowledge and framework at SporT1day was a privilege. You can always tell when a topic and talk has captivated an audience by the response at the end…… Let’s just say we could’ve been there a lot longer with the questions. A huge thank you for coming along guys and I look forward to working with you in the future on some exciting ideas! @DrAliLumb & @parthnarendran on Twitter.

Following an opening of theory from the healthcare professionals we started to delve into some of the experiences of those living with the condition, who are putting this knowledge into practice day in and day out. So first up was Brian Hoadley or Type1Bri ( www.type1bri.com). A really top bloke, who encouraged me to share my journey and who had a huge impact on me personally as I became aware of the diabetes online community. He’s been a great friend of mine who’s always supported the work of TDFC from the very beginning. It was an honour to have Bri share his own inspirational journey of running the London marathon less than a year after being someone who didn’t do any exercise. To do that in under a year is epic for anyone, but made even more special and inspiring when you’re able to do it with type 1 diabetes. Bri shared the journey he went on, how he did it and the effect it had on him and his diabetes. A brilliant talk and achievement from Bri. So pleased we all got to hear it. @Type1Bri on Twitter

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Next to the centre of our SporT1Day stage was Alex Richards. A very good friend of mine who’s work in sports psychology has taken a special interest in the experiences of people with type 1 diabetes in sport and exercise. Alex gave us a talk about perfectionism and it’s challenges to both athletes and those of us living with type 1. It was very poignantly linked to the goals we set ourselves and how most of us look towards outcome goals rather than process goals. Interestingly, those outcome goals are often out of our control to some extent, as winning trophies, representing teams or qualifying into tournaments relies on coaches, other players and beating the opposition which you can’t actually impact upon. His talk fascinated me having spent much of my life with this idea of perfectionism rooted inside of me and my focus on outcome goals, that I couldn’t always impact upon. Top work Al and I think there was a large proportion of the audience desperate for a chat about the presentation and keen to grab hold of the slides afterwards! It says it all about how interesting the talk was. @alex_acr on Twitter

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Then we moved onto the incredible Melanie Gray. Now Mel will always have a special place in the history of TDFC as she was someone I spoke to when I was thinking about putting myself out there to share my individual experiences as well as creating TDFC in the early part of 2017. So to have her along to speak at our joint conference with 1BloodyDrop was an honour. Mel has been an inspiration to so many within the diabetes community as an international sprinter with the condition who has gone onto share her story widely through her renowned blog, advocacy work and now her role as a dietician. As an experienced speaker with a vast knowledge of her sport and how to manage type 1 diabetes within it, it was a brilliant watch and listen. I think anyone in the audience on the day would’ve enjoyed the insight surrounding Mel’s management which complimented talking about her work, which has had her featured in a nike campaign during the London 2012 olympics, seen her become a London 2012 olympics torch bearer whilst also developing her own peer support group Blue Circle Diabetes.  If you want to take a closer look at what she’s up to head to www.lifesportdiabetes.co.uk to check out her blog and thank you Mel for supporting our conference.

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We then had a chance to take a breath! It was lunch…. Now for everyone else it means take a breath and grab some food but for me, paul and a couple of the speakers who’d already spoken it was an opportunity to speak to members of the audience. So lunch went in the blink of an eye but we had so much more to come….

Our afternoon had a heavy tinge of football within it as 2 of the UK Diabetes Futsal squad shared their stories about getting involved in TDFC and their feelings towards the team. Having Tim and JT, share their thoughts so publicly about how TDFC has helped them through their involvement in our team was pretty special. I didn’t tell them what to say either!!! So for them to show their overwhelming support for what we do and showcase it so brilliantly to the audience was amazing. The power of peer support for people with chronic health conditions should never be overlooked and I firmly believe that its power can drive holistic improvements for people with conditions like type 1 diabetes. Listening to Tim and JT certainly made me feel that this is the case. After they’d both shared their stories it was a chance for me to briefly talk about how I manage my condition around my sport, some of the techniques and ideas I’ve adopted, as well as showcasing what TDFC has been up to and what’s planned for the future. To be honest, it was quite nice to just have a small part in the talking side of things such was the level of organisation required! Hopefully my small snapshot in the day was a worthwhile 10-15 minutes amongst the stars of the show. As we grabbed our coffees, we readied ourselves for Craig Stanley to take to the stage. If you wanted to hear more on JT or Tim’s journeys you can follow them on twitter under @Tim_Ward07 & @JonoTyrrell

I’m biased as a Football/Futsal player but Craig (Staners) talks so honestly and openly about his journey in professional football with type 1 diabetes that it just fascinates me every time I’ve heard him share it. Professional sport and the “elite” are supposedly supported by infinite resources, in the way of money, people and specialists, but Staners shares a story that despite his day job being to play in front of thousands of people playing Football, the support he had throughout his career was limited. I’d always felt this with my experiences in the part time game but you just assume that the added professionalism would improve the experience that players with type 1 diabetes had. Instead talks like Craig’s continue to demonstrate that mainstream sport still hasn’t got it right from the grassroots through to the elite for people living with chronic health conditions. This is where I hope campaigns like the #WeAreUndefeatable campaign created by Sport England goes some way to addressing the issues we face. Despite what Staners has faced he’s had an amazing pro career of over 500 appearances, a Wembley playoff victory and having the opportunity to captain the England C team. All of this despite living with type 1 diabetes. He’s a very down to earth guy but what an example he sets for us all. A massive thank you buddy for coming to share your story with us again. If anyone wants to follow Staners on social media you can find him on twitter under @staners6 and on instagram under @staners10.

Our last lived experience of the day came from my partner in crime Mr. Paul Coker. His experience of living with the condition for over 40 years which combines feats of endurance along the way always provides an insightful and inspiring listen. This time we had the pleasure of listening to the story of climbing Mount Kilimanjaro for JDRF with a number of other type 1s. I’ve heard Paul talk a few times but not on this topic with so much depth. It was really interesting to see the impact altitude had on himself and others managing the condition and certainly provided some important insight into how to go about tackling that sort of challenge. Paul’s experiences of Kilimanjaro provided yet another valuable varied talk for our audience whom I’m sure gleaned so much.

Another member of our healthcare profession came to round up the day with a specific view of what it’s like as a diabetes specialist nurse (DSN). Emma Innes talked us through some of the specifics of how we should work with our specialist team, some of the recommendations from healthcare professionals for sport & exercise and how technology is making it easier. Emma now uses her experience in the field to lecture at the University of Worcester for the nursing cohort of students. Her talk helped to remind us all of the importance of working with our healthcare professionals to achieve our joint goals together. A big thank you for sharing your insight for us Emma! You can follow Emma on Twitter under @emmainnes3

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Finally we finished off with a Q&A session for the audience and as I stood at the front with my fellow speakers, providing answers in the best way we could, I knew we’d delivered something special. The engagement, the faces and the thank you’s we received told us that. Now we need to consider where we go from here…. The magic of what we’ve started needs to be built upon and myself & Paul need to go away to think about how we make this grow and work for the future. Nevertheless SporT1Day was an incredible success which I certainly will look back upon with a huge amount of pride!

If you’re interested in where we go next make sure you follow @SporT1Day on twitter for updates and news from the conference. Our plans are always ongoing and if you think you’d like to see us in a different part of the country or you have an idea you’d like to share with us, you can contact TDFC, 1BloodyDrop or the SporT1Day twitter account to get through to us.

Thank you for all of the support with our conference & the wider work of TDFC and I hope you all have an amazing Christmas!

Chris

Live. Play. Inspire.

DiaEuro 2019 Perspective: Chris Bright (Player / Coach / Organiser)

It’s something pretty special…. The opportunity to represent your country and your condition. DiaEuro or the European Futsal Championships for people with Diabetes is into its 7thconsecutive year of competition and through this wonderful tournament we are given a unique chance to live out every kid’s dream, to play for your country.

 

But this tournament isn’t just about winning every game (yes it’s important to us all!) as there’s more than that at stake. Each team uses the tournament as a chance to make as much noise and raise as much awareness as they can, to really showcase what people with this condition can do. When you often see misconceptions and irregularities in the way people talk about Diabetes in the media and society it’s so nice to see us all come together to talk about a European event which brings positivity and enthusiasm to the word Diabetes.

 

As you can see from the titles I have for our team, I’m doing a bit of everything to make the UK team happen but I wouldn’t change it. I’ve enjoyed each one of those roles but it does make it very challenging to do them all very well! Each one brings their own pressures but for the most part I try to take it all in my own stride and ensure the project runs as smoothly as possible. I would hope the team would say that we do a good job with it but you’d have to ask them haha.

I’m still coming to terms with the fact that 18 months ago this was all a dream and here we are talking about participating in our second tournament. This project and community has changed my life and the lives of many people whom are participating every day in our activities on social media or the projects we run physically. This team has been a huge source of inspiration for our community and a place to turn for information & support for the lads living with type 1 diabetes lucky enough to be involved. This was demonstrated by the amazing local TV coverage we received regarding our participation at the tournament. Seeing our project receive this media attention is great for its continuation but most importantly for reaching others who may not have heard of the work we do and who could really benefit from it… The reason we’re here is to support others with our condition and raise greater awareness of Diabetes in a positive light. To be featured in this way is not the goal we set out for but a bi-product of the hard work we put in to help the diabetes community out there. (TV feature below)

YouTube Video 

Back to the tournament itself though… To be completely honest after the months of work building up to it, I was just so happy when we got to the accommodation in Ukraine and the rooms were all sorted out! As the man responsible for getting the squad & staff there that was the biggest relief. The stress of booking flights, speaking with the organisers, sorting out the transport & the tournament schedule, organising our players & itinerary to get there as well as all of the finances is a huge strain. I think next year I’d like to find some more help for this because it consumed my life for weeks beforehand. But crucially we got there without much of a hitch or issue!

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For much of our preparation for the tournament I’d played more of a coaching/managerial role alongside Harley to help us tactically & technically prepare. It was myself and Harley who picked the final squad, worked through the playing style & finalised our matchday approaches. However, we felt that in spite of this I’d need to contribute on the court again this year rather than from the sidelines. So with that being said and a last minute continuation of an injury to our main pivot JT, I handed over my coaching hat to Harley & JT for DiaEuro 2019. Concentrating on just playing wasn’t without it’s drama though…. I actually pulled up in a training session for my football club 10 days out from the tournament, which actually meant I had to sit out of our final training session before heading to the Ukraine….. Not ideal at all. I spent the whole week leading up to the tournament unable to train and unable to even run. I actually ran properly for the first time after pulling up, just 2 days before the tournament and it felt just about ok… I had my fingers crossed I’d be alright for the first game on the Monday.  Whatever happened with my injury though, I was determined to ensure that from an overall perspective the tournament was going to be a positive experience.

 

Once the games arrived on Monday, after a day of settling in and reviewing our tactics, we went into them optimistic we could really give a good account of ourselves. I felt for the most part we did just that! Our group draw was really tough, we faced last year’s champions Bosnia, Portugal (tipped to do well!), Slovakia (Finished 4ththe previous year) and Ireland who came into their first tournament. WHAT A GROUP. We were all so excited about the prospect of pitting our wits against the very best and having the chance to play a local derby with our friends in Ireland (which I think could be a more regular thing too 😉 )!

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Our first fixture was against my very good friends from the Portuguese team. I can’t say enough positive things about these guys. They helped me shape the project we now have for our UK team and I’ll forever remember that.  In 2017 I flew over to Portugal with Karl & Noel, to further the TDFC cause and they let us in to train and see their development. It was a special trip and Bruno, Joao and all of the boys have become great friends of ours and in both DiaEuro tournaments we’ve been involved in we’ve been drawn against them. I think it’s fitting with our connection. Unfortunately, they beat us 6-1 last year and in this year’s game it was 5-1 but as the scoreline suggests we made a better game of it and if anything it was a little harsh the margin. They have some very talented players and their technical & tactical knowledge supersedes ours by a distance but we’re catching up. We have a talented group who demonstrated throughout this year’s tournament, despite the results, that we’ve made strides forward on the court. Nevertheless, it was a tough opening defeat but we knew we had to pick ourselves up from it quickly because the day after we had 2 games. From a personal playing perspective, I had my injury playing on my mind which meant I didn’t perform at my usual level, but I knew that and just needed to build my confidence up in it to push myself the following day. It was great to see from a coach’s perspective the lads employing tactics and techniques we’d worked on all year and something we certainly continued to show throughout.

As Day 2 arrived, I’d had an awful night’s sleep ( 3 hours roughly!) tossing and turning thinking about the day before and the day to come. But we had two games to play and I needed to get over it….. I picked myself up and went all out with the positive mindset. I was up and focussed from the off to get my mindset right to tackle those games. With the organiser’s and coaching cap taken off me by Rosie, Harley & JT I certainly felt a bit of a weight off my shoulders following a staff discussion the night before. I think it showed as we played our first fixture of the day vs Slovakia. I went into it with more confidence, having tested the injury out and having had Milly put me through some rehab/stretching too. We knew that today was the important one for performances and results as on the final day of group fixtures we’d be facing the reigning champions with a really tough task to get any kind of result. We knew it and in that first game we played like it…. We came out of the blocks firing. We threw the kitchen sink and more at Slovakia and somehow they stood firm. To this day, I still can’t quite believe that we didn’t get a result from this game (watch the highlights and you’ll also see why!). The lads were fantastic… The whole squad played to the levels we needed and the ball just didn’t quite go in the goal for us. There’s an argument we could have been more clinical but the luck just wasn’t with us and we lost 1-0. We were gutted but encouraged all at the same time. We’d just completely outplayed a team that had finished 4that DiaEuro 2018. So as much as we were disappointed with the result we’d shown to everyone what a thoroughly decent side we were.

But after 2 games we still hadn’t got any points on the board so as much as we were satisfied with our performances, we were desperate to get off the mark. No easy task though as up next was the local derby with our friends in Ireland. For me the Irish and Portuguese teams will always have a special connection with me. Portugal inspired us into the DiaEuro family and I like to think a trip that myself and Zak Brown went on to the Diabetes Ireland Junior Cup in August 2018, where we met Cathal (Ireland Team Manager), inspired their creation & participation at DiaEuro 2019. So for me it was a special moment for our teams to face each other.

 

I knew they’d recruited well with several players who’d played at a good level of Football in Ireland so we knew it was going to be a tough game. It turned out to be exactly as I’d imagined. They sat in and frustrated us as we dominated the ball. However, they looked dangerous on the counter attack. It made for quite an exciting game for the neutral but my overall feeling was that just like the Slovakia game the ball didn’t want to go in the net for us. A game full of commitment and passion ended in a 1-1 draw. We just couldn’t convert our dominance of the ball into goals and it’s where we struggled against Slovakia as well. We missed one of our star men from DiaEuro 2018 JT, who’s goals we could’ve really used this year. He’s a natural finisher in front of goal, it’s a simple as that. But, that being said I felt that we showed to everyone the strides forward we’d made as individuals and collectively. I was proud of how we’d conducted ourselves in game 2 and 3 and had it been another day we’d have won both games, but it wasn’t to be.

This left us with a mammoth task of needing a result against the reigning champions Bosnia to have a chance of staying in the competition. With our legs in absolute pieces from 3 games in 2 days we knew it was going to be a tough task. Within 5 minutes we were 3-0 down and it was every bit of the challenge we thought it would be! We gave it all we had but came up short losing the game 11-3. As we all predicted Bosnia then went onto win the tournament. The ability they have throughout the squad is frightening for an all type 1 team. One of the best teams I’ve faced collectively and individually and a huge congratulations to them for defending the title and really showcasing the levels you can achieve despite living with type 1 diabetes.

 

From our perspective going out of the tournament on goal difference at the first stage was frustrating and disappointing especially with the distance we travelled and money we’d spent to get there. We’d given it our best shot and at another tournament the ball would’ve gone in and we could’ve finished 5th/6th/7thbut it wasn’t to be. However, the strides forward off the court, within our coaching team, our tactical knowledge and overall approach was really pleasing. I couldn’t be prouder of everyone involved. I’m honoured to know each and every single one of the players and staff. Their commitment to TDFC and our vision is impeccable, and I’ll never be able to thank them enough for all that they’re doing to help push this cause to the next level.

But what can you say about trying to manage your glucose levels with 4 futsal games in 48 hours….. Reactive, guesswork and without a CGM like the Dexcom G6 I think it would be an extremely difficult challenge. I felt as though I prepared as best as I could but for me the key was always have the ability to adjust. I was always carrying Lift Glucose tabs around with me as well as my insulin pen to ensure I was able to react to any levels which were falling out of range. I mean how do you prepare for something you’ve never done before? 4 games in 48 hours is not something you’re likely to experience so I just focussed on eating well, consuming lots of carbs & protein for recovery and trying to minimise the amount of short acting insulin there was in my system for games (unless I required an adjustment!). We all did it and for the most part managed it quite well. It was quite a testing environment to have type 1 but the understanding amongst our squad and management is there to ensure we’re all comfortable in shouting up if we don’t feel right. It was a challenge that we all adapted to but one that was made easier than it could’ve been by the use of a continuous glucose monitor.

 

As anyone who knows me or has heard me talk about DiaEuro before, I will always say that it is much much more than just a Futsal tournament for people with Diabetes. It forges bonds and friendships with people across Europe who share the same challenge. We come together to demonstrate what people with the condition can do through the medium of Futsal. It’s a unique experience which has us travelling to destinations all over Europe to experience different cultures and ways of managing the condition as well as playing the sport. It’s a tournament and message I believe strongly in…. I hope that in the future we can continue to develop it as a product and receive greater recognition & awareness of it. It was fitting that the final ceremony was conducted at the Olympic stadium and Ukrainian TV were there to film it. For me this tournament deserves that, the talent, commitment and statement that this tournament makes is epic… I just wish we could see our condition represented like this more regularly and through other sports too!

For me, another tournament and another step forward. Results may not have shown that but with the project, coaching and players there was every reason to come away from Ukraine full of optimism.  I take great pride in representing my country and condition. For me it’s a special feeling which is hard to explain but one I hope I can continue to do on and off the court for many years to come.

 

Finally, I want to say a huge thank you to the players, Harley, JT, Milly and Rosie for all of their hard work and commitment in Ukraine. Without your efforts the experience wouldn’t have been what it was so thank you again for all that you do…. Whilst we must also say a big thank you to our sponsors Dexcom, Lift & JL Property Solutions who’s support we couldn’t have done without. Thank you so much for everything you did to help us get there!

 

And with my final words of this post I just want to look ahead to the 2 exciting projects still to come in 2019….

 

We have our children’s participation event and sessions based from the new Worcestershire FA HQ launching in autumn/ winter 2019, where we will for the first time encourage active participation in Football for children with type 1 diabetes, with support from adults and coaches fully aware of how to manage the condition. Hopefully an exciting step change for our community and if you want to register your interest in what’s ahead head to the below survey monkey:

 

https://www.surveymonkey.com/r/BR88G9P

 

Whilst we also have the #SporT1Day conference on the 17thof November at the University of Worcester to come. A number of talented and inspiring individuals living with type 1 diabetes sharing their experiences and management techniques for their sports whilst managing the condition they live with. A fascinating insight and learning environment for anyone looking to expand their knowledge, further their exercise and sporting goals or even just get started.  A wonderful day and you can find more info on the below link:

 

https://www.worc.ac.uk/about/events/sport1day-2019-by-1bloodydrop

 

Thank you for reading this lengthy post!

 

Chris

#DiabetesWeek 2019… See Diabetes Differently

As the motto for Diabetes Week 2019 is “See Diabetes Differently” it’s great to be able to share an interview that Chris conducted with DigiBete (www.digibete.org) which focusses upon mindset and the approach to sport/exercise that he takes in the hope it may help others living with Diabetes. It’s different to the usual articles/content on the physical management of the condition for sport but we hope it proves to be useful!

A huge thank you to DigiBete for asking Chris and putting the time into creating this amazing video. If you want to check out their resources for people with type 1 diabetes surrounding sport & exercise head to the below link:

https://www.digibete.org/resources/sportsandexercise/

We must also thank the University of Worcester who gave Chris & DigiBete permission to shoot on their campus. Thank you!

We hope you enjoy the video and we’d love to hear your feedback on it! Please share far and wide if you enjoyed it as you never know who it may reach!

Thanks,

TDFC Team

Mo’s Story with TDFC so far…

Mo, is one of the newest members of the Diabetes Football community family having recently finding us! We wanted to get his initial thoughts on what it’s been like since he joined in with our Adult diabetes Futsal teams in Worcester and London. No more words from us over to Mo to tell us about the experience so far.

“I came across the diabetes football community by chance; having attended a type 1 diabetes technology event where Chris Bright presented.

Since that point in time it’s been brilliant, as you’ll see from reading on.

I was diagnosed age 2.5, some 27 years back. Throughout my school life I was always held back from sport as teachers wouldn’t risk me having a hypo. I felt left out many times, but it did spur on a desire to ask “why not?”. I always used to challenge restrictions brought on by society and more often than not was able to prove people wrong.

Through this, I played a lot of sport and it helped me during those early years keep good control of my diabetes and pick up a few hobbies. I also had an amazing paediatric team which inspired me to pursue a career in healthcare (hospital pharmacy).

However, back then diabetes communities were relatively scattered and so I did not know many other type 1’s. I managed the condition entirely on my own, taking on the burdens of life without having a community to share it with.

The diabetes football community totally changed this. The very first training session was brilliant! It was professionally organised, I met fellow type 1’s with respectfully unique stories and had tonnes of fun in a competitive environment. The best bit was having the knowledge that you had each other’s backs if anyone had a hypo (something I had never experienced before in my life).

The toughest thing for me to process as part of my diabetes is my job. I feel heartbroken on many days when I treat people with diabetes who have not been fortunate with their health outcomes. Many are in situations that cannot be reversed and a huge number suffer from mental health problems directly relating to the burden of managing diabetes. I often feel that many of these issues could have been prevented if people were in the right environment and had a drive to manage their condition well.

This is probably what I value most about this community. I feel that it provides an environment for people to enjoy sport, push themselves, feel supported and ultimately get better. It’s unique in this regard. I’m glad I’m part of this project as I feel it’s got a long way to go yet!

Furthermore, throughout my life I’ve always been the sportiest person with Diabetes I knew of. On the first training session, I was surrounded by stronger, faster, more skilful and fitter individuals. This has motivated me to up my game, and also to work hard to try out for the national team next year.

I’ve had the privilege to be part of the London Futsal team that started this year and have already learnt so much from the invaluable experience of other members. We’ve already made history by taking part in a league game against an all deaf team.

Can’t wait to see what the future brings!”

A great account from Muhammad on his initial thoughts on the magic of TDFC and the way we encourage, inspire and support our players with Diabetes to keep going no matter the challenges the condition puts in front of us!

Thanks Mo. 🙂

Our Journey with Type 1 and Football…

Another amazing story to share with the community brought to you by Karen Brown, the mother of Ellen, a young type 1 who’s having a fantastic time with her Football/Futsal at the moment. Ellen & Karen have been big advocates and supporters of our work at TDFC from the very early days so it’s brilliant to be able to share their story! No more words needed from us, over to you Karen…

“Our daughter Ellen was diagnosed at age 8 with type 1 diabetes. As you all know it hits like a bomb and the early days are hard. Somewhere amongst the haze of diagnosis we made a decision that when we got Ellen home we would stabilise her doing all of the sport she usually did. So the day after discharge we took her to school for a few hours and the following Monday she started back swimming. I sat on the edge of the pool chewing my nails hoping she would be fine. Strangely enough the year she was diagnosed is the only year she hasn’t played football (played 1 year of netball and hated it!). Ellen prefers to manage her diabetes with a pump (Medtronic) and we use CGM periodically.

Since then it has been buckets of football and within the last 4 years she has also played futsal in the off-season. It is amazing how different the two are to manage. Football often sends her low- particularly in the cold Canberra winters (we live in Australia) whereas futsal sends her high due to the adrenaline. As futsal isn’t as big in Canberra her futsal club (Boomerangs FS) travel to Sydney to play in a Sydney comp. So every Sydney game we travel between 2 ½ to 4 hours each way (depending on what side of Sydney the game is) to play. The weather in Canberra is quite dry whereas Sydney can be humid which can affect Ellen’s BGLs (sends her low) so at the half way stop en route to the game we reduce insulin if she has any carbs and put a reduced temp basal on. We find doing low carb on the morning prior to the Sydney trips much easier to manage. At least we are only fixing the humidity problem. Then during the games she heads high! Sydney games we nearly always use CGM to help keep an eye on things. If it’s a home game its breakfast as usual. After the game she eats what she wants.

Ellen Brown Picture 3

Whilst having diabetes can be tough when you are playing football and futsal, we run at it with the attitude that if we have a tough day diabetes wise we look at why and see if we can do something different. There are days when you just can’t explain why the numbers are what they are! All of her coaches and teams have been really supportive and the boys often try and guess her Blood Glucose Level – she plays in the Boys National Premier League. Ellen also chooses to celebrate her ‘diaversary’, so the team usually hangs out for the cupcakes she takes along to celebrate another year kicking the butt of diabetes.

Having diabetes hasn’t stopped Ellen from achieving in soccer and futsal. The last 12 months have been particularly rewarding!!! 12 months ago her girls futsal team won both the premiership and championship in the Sydney comp. For outdoor her BBFC U16’s team made the Grand Final and won in a penalty shootout. She then made the ACT team (regional team) to play futsal at Nationals in January – they were runners up in the Grand Final in a penalty shootout. And a couple of weeks ago at the presentation night for Boomerangs FS, Ellen was awarded female player of the year. We are pretty proud of her. Winning isn’t everything but it is great to get some wins and they have been a while coming!! Though I must say the victories are much sweeter after the effort you put in to get the diabetes right. (excuse the pun!)

Ellen Brown Picture 1

As much as it is a challenge, there have been lots of good things about having diabetes in our lives for the last 8 years. We have made a whole new bunch of friends we wouldn’t have otherwise met. Whilst it is so nice being able to converse with those who understand the challenges and learn new things from. Ellen has had the opportunity to speak at JDRF fundraisers and she was recently asked to take part in some research at ANU.

Being part of TDFC has been a huge help though. It was so nice to hear from others who play football and be able to read about their experiences. With Ellen being a girl it was so nice to read about Noel and what she has achieved. We got to meet Zac (UK DiaEuro Player) at one of Ellen’s games in Sydney and hope to see him again soon. Whilst it’s also great to see that Chris represented his country in Futsal, which gives Ellen so much hope she can achieve the same.

Ellen Brown Picture 4

To any young footballer out there, chase your dreams. Ellen’s favourite saying is “I don’t live with diabetes, diabetes lives with me”.”

 

A really great blog written by Karen Brown and a huge thank you from us for putting it together. If there’s anyone out there reading this who’d like to contribute in a similar way get in touch! We’re always on the look out for blogs and stories to share…

It’s much more than just Football or Futsal… Part 4 (Zak Brown)

In our fourth instalment we feature Zak Brown… Zak is currently living and working in Australia but has been heavily involved in all things TDFC throughout 2018 as a pivotal member of the UK DiaEuro squad, whilst also heading out to Ireland with Chris to observe the Diabetes Junior Cup… Zak’s passion for the project is evident and in this post he shares his thoughts on how being involved has helped him! No more words from us, over to you Zak:

“I think firstly and foremost, the opportunity to meet several other T1D’s with a passion for football was amazing in itself! To then be able to discuss our condition as we went through very similar schedules during DiaEuro was great – having a diabetes discussion with your team-mates was like having 10 nurses beside us, as they added great value through personal stories and specialist advice.

The access to technology was a huge thing for me personally. I was a bit skeptical of the Dexcom G6 initially, as I have been on the same insulin and blood sugar testing strategy for a number of years and been relatively consistent (HbA1c usually between 50 and 61). It took a couple of days to adapt but several months later and I wish I still had the G6. I regularly see T1D’s on social media posting about how much the Dexcom has improved their control in recent times.

The other thing which was highlighted for me was the carb counting. I have generally just guessed my insulin based on what I am eating and knowing how it has affected my sugars in the past, but to see plenty of my UK team-mates measuring the carbs on their packets of food and calculating their dinner plate in the their head was a good insight for me; and pushed me to start making more calculated guesses with my own carb intake as life and diabetes continued after the tournament.

Whilst I wouldn’t say the experience has directly improved my control yet, I think it has acted as a gateway for me to access more information, attend diabetes meet-ups and possibly gain access to modern technology, which I expect will have a direct improvement on my Type 1 Diabetes control moving forward! Only time will tell…

Zak Brown

UK DiaEuro 2018 Player”

If you want to follow Zak’s journey on social media head to his twitter @mrzakbrown or his instagram @zakbtown