Another amazing story to share with the community brought to you by Karen Brown, the mother of Ellen, a young type 1 who’s having a fantastic time with her Football/Futsal at the moment. Ellen & Karen have been big advocates and supporters of our work at TDFC from the very early days so it’s brilliant to be able to share their story! No more words needed from us, over to you Karen…
“Our daughter Ellen was diagnosed at age 8 with type 1 diabetes. As you all know it hits like a bomb and the early days are hard. Somewhere amongst the haze of diagnosis we made a decision that when we got Ellen home we would stabilise her doing all of the sport she usually did. So the day after discharge we took her to school for a few hours and the following Monday she started back swimming. I sat on the edge of the pool chewing my nails hoping she would be fine. Strangely enough the year she was diagnosed is the only year she hasn’t played football (played 1 year of netball and hated it!). Ellen prefers to manage her diabetes with a pump (Medtronic) and we use CGM periodically.
Since then it has been buckets of football and within the last 4 years she has also played futsal in the off-season. It is amazing how different the two are to manage. Football often sends her low- particularly in the cold Canberra winters (we live in Australia) whereas futsal sends her high due to the adrenaline. As futsal isn’t as big in Canberra her futsal club (Boomerangs FS) travel to Sydney to play in a Sydney comp. So every Sydney game we travel between 2 ½ to 4 hours each way (depending on what side of Sydney the game is) to play. The weather in Canberra is quite dry whereas Sydney can be humid which can affect Ellen’s BGLs (sends her low) so at the half way stop en route to the game we reduce insulin if she has any carbs and put a reduced temp basal on. We find doing low carb on the morning prior to the Sydney trips much easier to manage. At least we are only fixing the humidity problem. Then during the games she heads high! Sydney games we nearly always use CGM to help keep an eye on things. If it’s a home game its breakfast as usual. After the game she eats what she wants.
Whilst having diabetes can be tough when you are playing football and futsal, we run at it with the attitude that if we have a tough day diabetes wise we look at why and see if we can do something different. There are days when you just can’t explain why the numbers are what they are! All of her coaches and teams have been really supportive and the boys often try and guess her Blood Glucose Level – she plays in the Boys National Premier League. Ellen also chooses to celebrate her ‘diaversary’, so the team usually hangs out for the cupcakes she takes along to celebrate another year kicking the butt of diabetes.
Having diabetes hasn’t stopped Ellen from achieving in soccer and futsal. The last 12 months have been particularly rewarding!!! 12 months ago her girls futsal team won both the premiership and championship in the Sydney comp. For outdoor her BBFC U16’s team made the Grand Final and won in a penalty shootout. She then made the ACT team (regional team) to play futsal at Nationals in January – they were runners up in the Grand Final in a penalty shootout. And a couple of weeks ago at the presentation night for Boomerangs FS, Ellen was awarded female player of the year. We are pretty proud of her. Winning isn’t everything but it is great to get some wins and they have been a while coming!! Though I must say the victories are much sweeter after the effort you put in to get the diabetes right. (excuse the pun!)
As much as it is a challenge, there have been lots of good things about having diabetes in our lives for the last 8 years. We have made a whole new bunch of friends we wouldn’t have otherwise met. Whilst it is so nice being able to converse with those who understand the challenges and learn new things from. Ellen has had the opportunity to speak at JDRF fundraisers and she was recently asked to take part in some research at ANU.
Being part of TDFC has been a huge help though. It was so nice to hear from others who play football and be able to read about their experiences. With Ellen being a girl it was so nice to read about Noel and what she has achieved. We got to meet Zac (UK DiaEuro Player) at one of Ellen’s games in Sydney and hope to see him again soon. Whilst it’s also great to see that Chris represented his country in Futsal, which gives Ellen so much hope she can achieve the same.
To any young footballer out there, chase your dreams. Ellen’s favourite saying is “I don’t live with diabetes, diabetes lives with me”.”
A really great blog written by Karen Brown and a huge thank you from us for putting it together. If there’s anyone out there reading this who’d like to contribute in a similar way get in touch! We’re always on the look out for blogs and stories to share…
In our fourth instalment we feature Zak Brown… Zak is currently living and working in Australia but has been heavily involved in all things TDFC throughout 2018 as a pivotal member of the UK DiaEuro squad, whilst also heading out to Ireland with Chris to observe the Diabetes Junior Cup… Zak’s passion for the project is evident and in this post he shares his thoughts on how being involved has helped him! No more words from us, over to you Zak:
“I think firstly and foremost, the opportunity to meet several other T1D’s with a passion for football was amazing in itself! To then be able to discuss our condition as we went through very similar schedules during DiaEuro was great – having a diabetes discussion with your team-mates was like having 10 nurses beside us, as they added great value through personal stories and specialist advice.
The access to technology was a huge thing for me personally. I was a bit skeptical of the Dexcom G6 initially, as I have been on the same insulin and blood sugar testing strategy for a number of years and been relatively consistent (HbA1c usually between 50 and 61). It took a couple of days to adapt but several months later and I wish I still had the G6. I regularly see T1D’s on social media posting about how much the Dexcom has improved their control in recent times.
The other thing which was highlighted for me was the carb counting. I have generally just guessed my insulin based on what I am eating and knowing how it has affected my sugars in the past, but to see plenty of my UK team-mates measuring the carbs on their packets of food and calculating their dinner plate in the their head was a good insight for me; and pushed me to start making more calculated guesses with my own carb intake as life and diabetes continued after the tournament.
Whilst I wouldn’t say the experience has directly improved my control yet, I think it has acted as a gateway for me to access more information, attend diabetes meet-ups and possibly gain access to modern technology, which I expect will have a direct improvement on my Type 1 Diabetes control moving forward! Only time will tell…
UK DiaEuro 2018 Player”
If you want to follow Zak’s journey on social media head to his twitter @mrzakbrown or his instagram @zakbtown
In our third addition we share the thoughts of Jack O’Brien… Jack has a fresh outlook on the way Diabetes has impacted his life having been diagnosed quite recently! His account offers some great insight into how a newbie to type 1 Diabetes feels about the challenge of this condition coming into their life… No more words from us let Jack do the talking…
“First of all, I think I should point out that I am a relative newbie in the Diabetic world having only been Diagnosed 2 years ago today! (I wrote this on 6th Feb). DiaEuro was only the second time I was going to be away from home, and all the supposed safety that comes with that, since I was diagnosed.
To say I was nervous doesn’t really do it justice! I was fully aware that I was going to be spending the week with a group of people who have for the most part been Type 1 Diabetic for a long time. The fear or seeming like I don’t really know what I’m doing, or “messing up” all the time was playing on my mind because this was for me the first time I would be spending a prolonged period of time with other Diabetics. It’s funny how weird things like this can play on your mind! I was seriously still at a stage where I felt like it was only me who suffered from hypos because everyone else would have it under control!
The first morning we are there, we all go down to breakfast together as a squad to enjoy the spread of food that was being put on. It was this experience that alleviated all the pre concerns I had. Seeing most of us checking sugar levels and injecting insulin immediately eased my nerves. This was something that I found awkward to do beforehand.
Before you knew it, Diabetic chat was bouncing around the table. The same problems I found, others were also talking about. In a weird way, if felt so liberating! That sense of not being in something alone, that others have found ways to overcome similar situations and have come through them to find solutions was amazing for a newbie to hear.
You hear the phrase “trial and error” thrown around a lot when it comes to Diabetes, and I really understood that so much more after this journey. A corner was well and truly turned for me during this week. I am now playing sports more regularly, because I feel more confident. Understanding food on the day of playing football is something that is so important. Seeing other people using the Dexcom looked brilliant. Once I finished my trial run, I missed it so much that I signed up for 12 months.
The whole experience was invaluable to me. I learned more in that week than I would have done in years studying books and speaking to specialists. Seeing people who regularly play sport and manage their Diabetes gave me so many tips and ideas that I use myself now. There really is no better experience than experience itself.”
Thank you to Jack for sharing his thoughts on how TDFC has helped him and the UK DiaEuro team in particular. If you want to follow Jack on social media you can find him on Twitter @DalstonGooner … If you want to know what’s going on at Arsenal FC Jack’s your man to follow!!
In our second instalment of “It’s much more than just Football or Futsal” we look at the story of Scott Burrell. His journey with TDFC and type 1 Diabetes has been staggering and for those of you unaware of what Diabetes care was like without the technology that is available now, I’d urge you to read on… This is a fascinating account of how TDFC has effected and improved Scott’s life and another example of a social / community based project like ours supporting healthcare benefits and objectives for those living with the condition. No more talking from us lets hear from Scott in his own words:
“Being selected in the UK DiaEuro squad really changed my ‘diabetic life’ and that’s by no means an exaggeration! Firstly, and something a majority of the squad had said, was that they’d never met another T1 in ‘normal’ life so that was great. Like any football squad you tend to bond quite quickly with the other players but we bonded especially quickly as we all shared the condition. My knowledge of T1 has increased ten fold. It was great to share stories and bounce successes/failures off each other.
I was actually the only member on mixed insulin. I was taking Humulin M3 which was the same insulin I’d used since diagnosis in 1999! I’d been told for many years, probably close to 10, that a basal/bolus regime would be better for me, but me being a stubborn so and so I’d always thought I’d be better sticking with what I knew. Seeing all the other lads using the basal/bolus regime and many telling me how they had moved from mixed insulin and how much better it was really gave me the incentive to change.
A few months after we got back I eventually made the switch and now take Toujeo & Novo Rapid, I’m finding it much better and in hindsight wish I’d changed over many years ago. I’m certainly having less hypos which had always been a big problem for me before. As good as healthcare professionals are it was the kick from people living with the condition day in, day out which convinced me to finally change.
Finally I’m a lot more open about my Diabetes now… Growing up and even in my early 20s I’d try to hide it as much as possible, not talk about it and only tell people I was T1 if really needed. My mentality completely changed about that having been selected in the squad. I’ve now had newspaper articles written about me and appeared in a TDFC video filmed by BBC Hereford & Worcester which they shared on their social media platforms talking about the project and the condition. It actually made me feel ‘proud’ and gave me a desire to talk about diabetes for the first time…something I’d never experienced before in my time as a T1.”
Keep an eye out for more stories from some of the community and if you want to follow Scott on social media head to his twitter account @scottbufc to get in contact with him.
It’s crazy to think that it was only 9 months ago that I heard about the TDFC project. Via the community, I’ve met some really top people and represented the UK at DiaEuro 2018. An amazing journey so far, but what does the year ahead look like?
I’d already bought into the vision of TDFC before participating for the UK team at DiaEuro in Bratislava this summer. However, as a type 1 diabetic for 7 years now, I was stunned with how much more I learnt about the condition during the course of the tournament. I didn’t even have to try. Diabetes related chitchat would pop up naturally all the time. I gained loads of great insight on how to manage the condition whilst playing sport and life in general. My control was the best it had been in years too, and that seemed the case for multiple players.
The whole experience got us thinking – the platform for diabetics with a passion for playing football to meet up and learn from each other really does need expanding. It could bring so much good for diabetics new and old. Our experience was proof of it!
On the final day of DiaEuro 2018, whilst watching Bosnia cruise to victory in the final, we found out something very interesting. We learnt that the Bosnian team compete on a weekly basis in the 2nd division of the Bosnian Futsal League. That’s mega impressive: an entire team of diabetics playing (and winning) against high level non-diabetic team’s week in week out. This didn’t just give them the edge to win DiaEuro, it’s allowed them to raise the profile of diabetes and help to break down any perceived barriers to participation, a key goal of TDFC.
Post DiaEuro, with a strong desire to help TDFC grow and see the UK team improve at the next DiaEuro tournament, we decided to develop a new project – to set up the first all diabetic futsal/football team to compete in the English futsal/football pyramid.
Futsal/Football? Futsal (to begin with)
Club name? TDFC London
Over the past few months, we’ve laid down the foundations to get the project underway. Some great conversations with the London Futsal League, in combination with an opening for new teams to join the new season in February 2019, means we’re only weeks away from launching!
If you are at all interested in joining TDFC London, whether it be as a player, coach, sponsor or supporter (the more fans the better), contact email@example.com to find out how to get involved.
Hopefully this is just the start of things to come. It would be amazing to one day see the platform expand to provide opportunities for men and women of all ages, all over the country.
Check out this short video of the UK DiaEuro Journey in 2018… A huge thank you to our main sponsor Dexcom who’s support was vital in getting us there and to everyone else who played their part. We couldn’t have done it without your contributions!
We want to continue this journey into 2019 so if you want to get involved in sponsoring, fundraising, playing, organising or supporting in any way please get in touch!
As it’s the end of #DiabetesWeek I thought it would be the perfect opportunity to share a blog about the completion of my 2017/18 season… A season of complete contrasts!
July 2017… As pre – season begins for most players and clubs involved in Football, I was in a plaster cast contemplating how this had all played out. Two 5th metatarsal fractures in 6 months and an operation later and I was staring down another 2 months until I could walk again, let alone run! The worst injury I’d experienced in my sporting career.
But anyone who knows me well, knows I don’t give up in the face of a challenge… This was a hard one but I was up for it!
The season was well underway by the time I could walk again on the 1st of September but after months of crutching around the local gym and using a handbike to do cardio, I was just so pleased to be back on 2 feet again. The key with injuries like this I’ve found is to celebrate the small wins as you progress towards your old self again… If you don’t give yourself the recognition of improvement it’s going to be a really hard mental and physical battle!
It wasn’t long after walking again that I was given the all clear to do some light jogging, which was a huge step in my mind, as I put some serious stress on the bone for the first time since the op. With any injury that keeps you out for this period of time the deterioration in muscle strength in your whole leg is a massive problem to also overcome as well as the concern for the injury itself. I had a LOT of rehabilitation work to do but as I was accepted onto the Sports Scholarship scheme at the University of Worcester (www.worc.ac.uk) I knew I was going to have access to great facilities and people to support me on this journey back.
After 5 – 6 weeks of strength and conditioning, constant physiotherapy and some Futsal training sessions with the university futsal club, things looked to be progressing nicely in October. I was getting used to my team mates, new surroundings at the university and the demands of the sport on my body again. I enjoyed it but things were painful… I spent a lot of the first 2/3 months in pain playing as my foot was weak and the muscles supporting it weren’t much stronger!
The first game back was towards the end of October, and when I say game, I mean 2 minutes on court just to see how things felt!! That’s the beauty of Futsal, you can roll on and roll off quickly with substitutions… It felt alright but I think it was a false sense of reality as I was still a long way off at this stage! There’s a lot of fear when you’re coming back after a torrid time which is hard to explain, naturally the body just tries to protect it so you move in a way which is not efficient or conducive of high performance. It took a good 2/3 months to get over this and I’d argue I’m still not fully there!!!
As things progressed and improved, I returned to my first national team Futsal camp in November 2018, almost a year after breaking my foot on international duty. It was a great moment for me to see the lads again after spending so much time on the sidelines… I knew it was a tough ask to compete with the boys and their levels having only been able to run for just over a month and still playing in pain. Despite this I felt I gave a good account of myself but ultimately I didn’t have the fitness and games in the tank to really challenge for a place in the Wales Home Nations squad in 2017 as I narrowly missed out. Tough to take but understandable.
But whilst the Wales boys were playing in Edinburgh, I had the opportunity to attend the England Universities Trials in London. Another great opportunity to push myself against good players and towards my ultimate goal of full fitness and playing at the levels I knew I could achieve. It was a hard session considering where I was at in terms of fitness but I was really glad I did it. It ultimately led to selection in the squad later that month which was great! The management of my glucose levels and getting them right for games/occasions was now starting to become important again as I was more involved whilst playing more and more game time. You’d think the old ways would work?! A year after the last time I played sport at that level and my body certainly didn’t play ball!! My levels were shooting up to levels I’d not seen at a Futsal game before and crashing more dramatically than I remembered. I think there’s a certain amount of trial and error in everything we do as Type 1’s but it’s about reducing the number of errors we make that will allow us to enjoy our sport. For a good couple of months I made plenty!
As the festive season approached I also took the decision to get back to playing Football. I’d missed it and it was time to use the sport to help me get fit in December and January as the Futsal season tends to go quiet at that time. My old manager Quentin Townsend had inquired about my fitness a month or two earlier and I’d put it off to ensure my body was in a good enough place to cope with Football when I finally said yes! I signed for Pershore Town FC and played my first football match in 20 months on 19th December 2017 in a friendly vs Worcester City FC.
Before I knew it I’d played in 3 games in a week and it was like I hadn’t been away! There’s nothing like being thrown in at the deep end but I was just pleased to get back out there again. I’ve got to say a big thanks to the lads who made it so easy for me to fit into the squad half way through the season and enjoy the second half of it. If I’m honest the transition with my Diabetes back into Football was much easier than with Futsal… Because I’ve played Football for a lot longer it feels a little more natural in terms of the routine I go through to manage type 1, so there was only really 1 and a half games from the 16 appearances I made where I’d say things weren’t quite right!
I spent a lot of time learning about how to manage my diabetes around sport again… 12 months away is a long time and plenty of things change during that time.
But as I moved into 2018 things were looking really promising following the call up to the England Universities squad and with regular weekly game time. This was huge! I was playing a 90 minute game on a Saturday and then playing Futsal on a Sunday for about 4/5 weeks on the bounce and after that I was flying into the business end of the season.
My season was all about pushing myself in Futsal and enjoying the game time in football. I wanted to come out of the season with some silverware with the university team with both the league and cup in our grasp. As we negotiated our semi final with a really tight 9-8 win vs a well drilled Loughborough 2’s team, I had a cup final to prepare for as well as a north vs south challenge cup as part of the England Universities squad.
Unfortunately we were unable to chase down the league title after a couple of disappointing results which meant we finished up as runners up in our division but we still had the cup to play for.
To go from that cup final and into the North vs South challenge cup just a couple of weeks later was absolutely class and well timed… I could feel I was on a roll and feeling good, so for me it was great to see the good form continue as I ended up as the top goal scorer in the tournament and with a Team South win 9-3 across the two games (6-2 & 3-1). I was finally able to show my ability as a result of the body being closer to a state which could showcase it! After this tournament and a couple of good results with Pershore, I pretty much knew the only meaningful game left in my season was the annual varsity ding dong derby between the University of Worcester and the University of Gloucestershire.
Varsity is a big deal for the students at the university you represent and winning the game you’re involved in is all that matters in the month of April! Luckily for us we entered the game in good form and were really confident that if our big players turned up we’d win the game… So it turned out to be the case. We ran out 8-3 winners and the team played a really good game in which we controlled it from the start to finish. It was a cracking way to finish the season off and undoubtedly contributed to the way we were rewarded at the end of season awards night…
The University 1st team were given the “Team of the Year” award for our cup and league exploits, whilst my individual contribution to those performances and my representation of the university with the England universities squad led to me being awarded “Male Athlete of the Year”. An award I didn’t feel worthy enough of winning but one I was extremely grateful and very lucky and proud to have received! When last year’s winner was an Olympian and former commonwealth champion Matt Hudson-Smith (https://en.wikipedia.org/wiki/Matthew_Hudson-Smith), you can see why I didn’t feel like I wasn’t worthy of this level of recognition haha! Incredible all the same though…
I honestly couldn’t be prouder to have ticked all of that off this season, despite not actually being 100% at any point. The key was that after all that time away from the sport I found my love for it again, the smile on my face was back when I played and I don’t think I’ve enjoyed playing like I did in 2017/18, since I was a kid. Sometimes the adversity can set you up for what’s next and I think the injury taught me a lot about fun and enjoyment that maybe I was missing beforehand!
I think this line sums up the approach I’ve taken over the last season and one in which I’ll try to continue for the rest of my playing career:
“Train like it’s the most important thing in the world, play like you couldn’t care less!”
However, one thing that I wanted to finish on surrounding Diabetes… After 12 months of being injured and focussing on my Diabetes more and more my Hba1c was 50 but as I returned to playing it went back up to 64… A really challenging question is…. What’s more important? I was called up to the England Universities squad, scored 5 goals in a cup final winning performance, won varsity and I won male athlete of the year at my university, yet my Diabetes control was worse. There’s no doubt my sport, the demands on my body and the responses my glucose levels have to exercise complicate overall control of the condition as my intensities of exercise differ so drastically!
I’d love to have some feedback on this… Because I honestly don’t know the answer but my choices have always involved enjoying life experiences over prioritising perfect Diabetic control but I’d love to hear what you think…
Finally I’d just like to thank a number of people who’ve supported me hugely throughout this season, my family for your continued support, to Dan Allen (https://www.instagram.com/da_training_and_performance/), Jamie Harrison and Marc Scriven for their strength and conditioning support, to Sally Smith and Lewis Miller for putting me back together each week with their sports therapy support, to the University for their providing great facility access and lastly to my teammates and coaches who’ve made me feel welcome and whom have played well so often this season! We win and lose as a team….
All in all a progressive season after one of the hardest periods of my sporting career with so much to look forward to in the 2018/19 season!
After months of phone calls, organising, negotiating and talking about #SporT1Day, May the 13th 2018 has been and gone…….But what a day!!! It was our first foray into creating an event which provided education and inspiration in one big dose! Before I even start talking about the day I’d like to say a big thank you to Paul Coker at www.1bloodydrop.com and the University of Worcester (www.worc.ac.uk) for partnering with TDFC to deliver the conference. I’d also like to extend the thank you to those people who helped us organise, run the day and tidy up afterwards!
Building up to it I’d spent the previous week stressed, writing my presentation and critiquing everything myself and Paul had put in place as I strove for perfection… I knew deep down this wasn’t possible but I wanted the event to look as professional as possible whilst delivering the overall objective of giving the attendees tips, guidance and education about Type 1 Diabetes management in sport. I think we did a good job at trying to deliver that!!!
The day itself was an absolute whirlwind for me but I loved every minute of it…
I arrived with Alex at about 8:30 to ensure that we had the venue looking smart and the registration process in place… It took us half an hour, but by 9 am we had it all sorted! At this time myself and Paul took up our places on the registration desk to welcome the delegates, check them in and give them their goodie bags! It was great to see so many smiley faces with an early start on a Sunday but I could sense the excitement in the attendees and in myself and Paul.
10 o’clock came around quick! This was the moment myself and Paul opened up the conference and after we’d rounded everyone up and guided them to the room it was time to begin the proceedings! We were keen to introduce and stress the importance of learning and education in our opening, with as few words as possible, due to the amazing speakers we’d lined up.
Following the warm-up we started as we meant to go on… With a cracker!
I’d spent the last few months getting to know Chris Pennell and his work with the Type 1 Diabetes academy based at Worcester Warriors, so it was only natural I should ask the first Type 1 Diabetic to score a try for England, to be the first speaker at #SporT1Day. Like Chris’ career, he did not disappoint!! We heard stories of Chris’ life and his approach to Diabetes management, which caused a stir in the room, whilst he talked about the endeavours of being a professional athlete with a chronic medical condition.
2 comments really stood out to me from Chris’ talk… The first was his reference to himself as a “plastic Diabetic” which he explained was because he felt he’d had an easy ride by being diagnosed as a 19 year old after the difficult years of school and being a teenager. I felt this was a direct reflection of Chris’ work with Type 1 Children in his academy and the stories he’s heard from countless families about the battles they face… It is difficult but we come through it stronger.
Despite the amazement in the room at Chris’ dietary approach to type 1 combined with his athletic lifestyle, I actually felt he made a really interesting comment about becoming a better Rugby player because of living with the condition and the discipline it taught him. An interesting concept I’m sure many type 1 Diabetics won’t have considered. I’ve always thanked the condition for making me more determined and motivated to achieve whilst I understand the impact it’s had on my ability to plan and organise, so it wasn’t too much of a shock to hear Chris say that but I wonder how many others in the audience were expecting it? It was fascinating listening to Chris’ story and I can’t thank him enough for agreeing to share it with us! I appreciate it mate.
After Chris shared his experiences for us it was the turn of Matt Cook, our Sports Nutrition expert and senior lecturer from the institute of sport and exercise science at the University of Worcester. Matt isn’t an expert in type 1 Diabetes but I felt he did a great job in demonstrating the academic literature out there and how it corresponds with Type 1 Diabetes. It gave plenty of our audience quite literally “food for thought” as he demonstrated the recommendations and gaps in understanding for people living with the condition from his sports nutrition perspective… I really enjoy getting the perspective’s of people who aren’t well accustomed to the condition as it brings an unbiased representation of the facts, which is important for those of us living in the world of Diabetes. Matt did a great job of positioning what we do and don’t know about the condition in relation to sports nutrition and management and I think the whole room got a lot from his talk. Thank you Matt!
Following a really quick coffee break… We moved onto the “Legends” of the type 1 diabetes world, Mr. Paul Coker, my co-organiser, and Mr. Pete Davies a man whom has lived with Diabetes over double my own lifetime! They both have epic stories to tell which I’d struggle to do justice with words so I’ll just try and describe the theme of their talks. I’d seen Paul speak a couple of times at other events about running 40 half marathons in one year to celebrate 40 years living with Type 1 Diabetes, but this was the first time he wanted to break down his routines and try and give the audience something tangible to take away and utilise in their own exercise regimes. I was watching many members of the audience frantically scribbling down, which was a huge indication of the quality of the information Paul was delivering. I think we all learnt something from Paul’s presentation. We won’t mention the fire alarm going off (a minor hiccup!).
We then met the man who’s surpassed 60 years of living with Type 1 Diabetes, Pete Davies. What a guy and wow has he seen some change over the years! I saw Pete speak at TAD (Talking About Diabetes Conference) just a couple of weeks prior to our event and his talk was super inspiring so I was just pleased we’d secured him for our first conference. His presentation involved demonstrating the changes in Diabetes care over time as well as the amazing treks and expeditions that he’s been involved in. I think everyone in the room felt very lucky to have the access to technology surrounding Diabetes care that we now have within society. I certainly did! It’s a huge eye opener to think that 50/60 years ago people living with type 1 Diabetes weren’t expected to live much beyond 40 which is something I’ve certainly taken for granted! A quality presentation from Pete and a huge personal thank you from me for your support for the event!
After we’d spent the lunch break talking about the morning’s talks, I was preparing to take to the stage for mine! After watching some of the amazing presentations during the morning I felt I had a lot to live up to… The approach I took was to talk about the journey I’d been on from diagnosis at 8 years old through to founding the Diabetes Football Community with snippets of detail about diabetes management mixed into it. I just hoped that people that listened to me took something from the talk… It was honestly a pleasure and a privilege to be able to talk about my own experiences and views on the world of Diabetes. I felt the talk went pretty well, up until the moment technology let me down and didn’t play the videos I’d included!!! Alas, it’s in those moments you just adapt and crack on! Hopefully next time I won’t be let down in the same way! I thoroughly enjoyed it and as I finished up I had the honour of introducing Craig Stanley, a former professional footballer whom has lived with the condition for the majority of his career.
Craig’s talk was a fascinating listen for me, as I’m sure it was for the audience, as I’d always dreamt of being a professional footballer and having missed out on that opportunity a couple of times, it was amazing to hear from a man who lives with the same medical condition I do and who’s lived that dream. Craig’s talk mixed in humour, stories from his career and a constant relation to his routines and experiences with type 1 diabetes within professional football. It was my personal highlight of the day, as a part time footballer and founder of a community based on Football and Diabetes, to have Craig there was extra special. He was a big hit with the audience and was asked a number of questions post presentation and throughout the day. I’ve had the privilege of getting to know the man over the last few months and he’s a really top bloke and I can’t thank him enough for his support for the conference and our UK all Diabetic Futsal team.
Following the final break in the programme it was onto our final speakers… Georgia, Alex and Emma.
I’ve been in contact with Georgia for around a year or so now as she’s been really supportive of The Diabetes Football Community and spreading the word of what we’re doing, so it was only natural with her experiences as a Diabetic intent on living a healthy lifestyle encompassing weightlifting that we asked her to be a part of the day. Georgia quite openly expressed her experience with Diabulimia (google it if you haven’t heard of it) and her passion for exercise and a healthy lifestyle within her talk. With Georgia being a Radio DJ she showcased an engaging style and female perspective to an otherwise male type 1 diabetes line up which really captured the audience’s attention. You could see the impact she had on the attendees as her Q & A session was almost as long as her actual talk!!! It was wonderful to have Georgia with us and I’m just glad she said yes when I asked!! Thank you.
Georgia’s talk led quite nicely onto our penultimate speaker, Mr. Alex Richards. A good friend of mine and an expert in Sport & Exercise psychology whom has become a really important fixture in the work of The Diabetes Football Community over the last few months. His work has been appreciated and praised in the community for its unique and differing approach to the condition in sport. I think his work will become more and more important to diabetic athletes over the coming years and it’s definitely a “watch this space” message from me regarding the direction Alex heads towards over the next year. Much like the work he’s been producing, his presentation captured and engaged the whole room. His presentation focussed on sport, self-compassion and Type 1 Diabetes which to my knowledge is a subject seldom addressed by anyone before. This groundbreaking look into sports psychology for Type 1 Diabetic athletes is something that I believe can make a difference and Alex is passionate about contributing towards. He did a fantastic job on the day and I think he was just as excited about the reaction from the audience as the audience were about his ideas!!! Thank you buddy.
Last but by no means least, was our expert medical professional, Emma Innes. Emma has been a leading Diabetes specialist nurse amongst many other roles across her distinguished career, which has now led her into a role as a senior lecturer at the University of Worcester. I was certainly keen to involve someone from the medical profession in the day as they have such a big impact on the lives and approach of people living with type 1 diabetes to sport. Emma cross referenced her experience in the profession with the recommendations for people with the condition exercising. It was a really insightful viewpoint on which to bring this epic first conference to a close.
As myself and Paul wrapped the day up by thanking the speakers and audience for attending, I was absolutely buzzing from the excitement as well as being absolutely exhausted! It involved a lot of my time planning, organising, negotiating, communicating and ultimately delivering the day. In some ways I was pleased that it had come to an end but for the most part I was disappointed it had been and gone as I really enjoyed the experience.
As I drove myself and Alex home that night there was no doubt the positivity was radiating throughout our conversation and the question about the future prospects of another #SporT1Day conference was discussed… Why Not?!
After a day full of wonderful speakers, a great venue and with wonderful support from the Diabetes community, I’m not sure myself and Paul could say no to creating another conference. So our intention is to organise another #SporT1Day later this year… November is a month looking likely so keep your eyes peeled for our social media announcement and I hope it’ll be in a location where the community can continue to back us.
Lastly I must say a huge thank you to the University of Worcester for their support in hosting the event and allowing us access to staff members whom spoke, to Dexcom for supplying a starter pack prize to our most prolific Tweeter and to Gluco for supplying delegates with hypo treatment goodie bags.
An incredible day and the start of something quite special… Keep supporting us and who knows what we can achieve?!
Hi guys, just thought I’d write a blog post reflecting on my experience at the #SporT1Day conference that happened on the 13th May. The conference gave the chance for several speakers including myself, to cover a range of topics that impact type 1 diabetes. I wanted to write this post to share my opinions about the day whilst I also wanted to give a little summary of my talk for those who missed it.
So my thoughts on the day…. I think Chris and Paul Coker did a great job at making sure the day ran smoothly. There were a couple of hurdles to jump over such as the fire alarm going off during Paul’s talk. Despite a couple of things like this happening Chris and Paul managed to keep the day running nicely. One thing that really stood out to me was the variety of speakers at the conference. The speakers included professional athletes, women, diabetic nurses and people who had lived with the condition for over 60 years. It was great to see such a diverse line up which resulted in a wide range of experiences being shared. The take home message for me was that type 1 management is very much an individual thing. Therefore, it’s important to find out what works for you. This requires you to experiment and constantly keep learning what works and what doesn’t. The other great result of such a diverse line up was the breadth of topics covered. As there were so many different topics I think everyone could come away with something they found interesting. Topics ranged from management tips, to nutrition, psychology and some stories of inspiration. It’s a real credit to Chris and Paul for being able to put together such a great line up. The last thing I’ll say about the speakers is that hearing their stories has been invaluable to me. As someone who does not have type 1 diabetes I am constantly working hard to understand what people go through as best I can. So learning more about the condition from other personal experiences of type 1 is really important. I can’t thank people enough for sharing their stories with me.
The previous point leads nicely into my own talk. I’m not going to recap it all here but I will write a post in the future that gives you guys some more detail. So, the main points of my talk. Diabetes has been viewed for the longest time as a medical condition; which of course it is. However, from the perspective of someone that lives with the condition it’s much more. It’s a 24/7 job that you didn’t ask for but have to do. It’s a condition that requires you to make constant decisions. As a result, how you think and feel impact how you manage the condition. This being the case, what you put in your head is as important as what you put in your body. However, psychology support is an underused resource for people with type 1 and I’m really passionate about changing that. The psychological load of managing type 1 daily and during sport or exercise is heavy and psychological skills training can help you cope with the load. As I’m conscious about making this an overly long read I’ll expand on this in my next psych series. Before I finish, I’d like to briefly mention the main part of my talk which was self-compassion. In a nutshell self-compassion is the ability to treat yourself like you would treat a loved one. When they experience difficulties, do you criticize them? Do you constantly remind them how rubbish they are? Or do you try and understand that this is a difficult time for them? Do you try your best to help them move past the difficulty? My take home message to the people in the audience was that Type 1 is a rollercoaster ride full of ups and downs. When you experience tough times, try and treat yourself with the compassion you would treat a loved one. If you wouldn’t say it to a close friend, don’t say it to yourself.
After months of behind the scenes work from myself, Ferenc Nagy and the wonderful Andrewartha family, who star in the documentary, we have now finally launched the #WalkInOurBoots campaign to raise awareness of Type 1 Diabetes in Football.
TDFC wanted to showcase what life was like for a young footballer living with the condition and its effect on his family. This campaign is a “real world” example of the challenges and daily routines this condition forces upon people who were dealt this card in life.
I found parts of this documentary very emotional to watch, as someone who lives with the condition, I feel every word they say. I hope the emotion and management implications of Type 1 Diabetes are captured, to ensure we can continue to challenge the powers that be to help change perceptions within society and ultimately improve inclusivity for people living with the condition in our sport.
I hope you enjoy…. PLEASE SHARE AS FAR AND AS WIDELY AS POSSIBLE.