Tag: Reflection

The 2022 Review – What’s been going on at TDFC?

Posted on by thediabetesfootballcommunity in diabetes, Football, sport

It’s been a little while since I’ve found the time to sit and reflect on all things TDFC but the end of a calendar year always presents me with that opportunity… But as we do in every year since our existence, we’ve tried our best in 2022 to provide a project that is progressive and a reflection of what the diabetes community want. We’ve had some amazing things going on this year and I just want to say a massive thank you to those who help lead on everything at TDFC and to those who commit to what we do and make all of this possible! It continues to motivate me to keep pushing the boundaries and to strive for more for our community.

There have been some significant changes in my own circumstances which have meant this year we’ve also transitioned to a situation where I’ve been a little less hands on with the day to day running of our project due to my new full time role working at JDRF UK. The prospect of working for the charity has been an amazing chance for me to continue my development more widely and learn more about the UK and global context that exists surrounding type 1 diabetes. I’ve really enjoyed it and the impact my role in the organisation has on supporting the community… Here’s hoping for more of the same in 2023! Despite the change in my world, the support for what TDFC does has never been greater as so many people recognise the importance of our work and are really stepping up to help myself and the directors with continuing to push what we do onto the next level. Together we are stronger and so is TDFC.

With this review of our year, I obviously wanted to run through some of the key things which have been happening in 2022 but this time round I’m going to do it in alignment with our strategic pillars of Educational improvements and increasing participation opportunities for people with Diabetes in Football.

So firstly, a look back on the developments we’ve made in Education in 2022:

The continuation of our podcast has led to some incredible episodes on the channel as we saw Adam Smith and Reece Parkinson share their stories of living with type 1 and working in the media industry. Whilst we also added a chat with Joe Wright (Current Millwall FC Goalkeeper) as he discussed life with type 1 as a professional player… We also got Lucy Wieland on the podcast to talk about something else I’ll come onto in a little while… (Can’t give all the key details away in the first few paragraphs haha!). The Diabetes Dugout still remains a great source of stories, information and support from those in our community, so if you haven’t checked it out yet click here and you can listen to all of the episodes we’ve released so far.

Alongside those all-important lived experience stories we’ve shared, we’ve also been able to help create a structured education programme called Active Minds in partnership with our friends at AJB Sports in Education. The idea was to utilise physical activity to educate on the differences between type 1 and 2 diabetes, as well as to educate on lifestyle to prevent the development of type 2 diabetes. In my opinion, educating the next generation on the condition will in future reduce the level of misinformation, stigma and stereotypes which are prevalent in society surrounding Diabetes. It’s been something that I’ve experienced regularly since I was diagnosed in 1999 and it’s an area which I’m extremely passionate about tackling… Education will make this happen, but it takes time to implement and there has to be a “carrot” for the mainstream to engage them in the conversation of raising awareness and learning more about Diabetes. As numbers rise and people see the condition more regularly day to day, many more people are receptive to the idea that society at large needs to know more about this condition… I think there will be many more developments like this in years to come and I’m really glad we’ve been able to co-produce a series of lessons to support with this education… Make sure you head over to our page to check out the Active Minds programme.

This year also saw the development of a piece of work I’ve been trying to create for over 4 years… To see it land was a big moment and something which I hope will help so many people across our community in the years to come. I am of course talking about the Coaches Guideline & Webinar co-produced by ourselves, JDRF UK, Diabetes UK and The Football Association of Wales (FAW). I’ve always felt that the organisers & coaches of our sport, haven’t had the support to help them with creating an environment and support system around a type 1 player as the condition hasn’t been well understood. So, to now have a guideline which coaches can utilise to help with the foundations of what a player with Diabetes goes through can only be a huge step forward. To have this supported by the 2 big patient charities and the FAW is also vital in seeing this rolled out more widely to the sporting community. More awareness and education for physical activity providers can only help with participation and the feeling of comfort in a sporting environment for those with the condition… A massive moment and if you haven’t seen these resources yet click here and take a look!

Then we’ve also seen the foundations laid for the inclusion of Peer Support as part of the recognised treatment pathway for those living with Type 1 Diabetes within the NHS in England… A monumental step in chronic health support and a move that we at TDFC have been championing for a long while. I was invited to be involved in the group of people who have helped shape the principles of Peer Support in conjunction with the NHS England team and the patient charities (Diabetes UK & JDRF UK). The process of shaping “what good looks like” collaboratively has taken just over a year and it’s been brilliant to see the release of those principles on World Diabetes Day… As someone who’s personally seen the impact of peer support changing my own life, and others through our work, this is a HUGE moment. It’s been my belief for the last few years that good peer support deserves its place within the healthcare structure for the contribution it can make to health outcomes for those with type 1 diabetes. I’m now excited to see where these principles will take us as we now focus on the delivery and growth of peer support… Keep your eyes peeled for more from the NHS Diabetes Programme and if you haven’t checked out the principles yet take a look here

To build on this further, the research conducted into the development and creation of The Diabetes Football Community will be included within an academic publication for the first time in the early part of 2023. This was always a huge goal of mine following the conclusion of my masters degree programme in 2020. I wanted to ensure the lessons I’d learned from developing our project could go onto help us and others in continuing to develop projects/communities/groups which are reflective of how society and a sub-cultures like sport (football in this case!) operate. I feel the key to creating positives connections to the condition lies in the link to the areas of interest we have within our lives, to positively re-frame some of the identification with the condition. By doing this, identification with the condition may grow and healthcare outcomes improved as a result… It’s a topic of conversation I’m hoping the research opens up further, as we look to see how we can supplement the development of diabetes technological advancements, with further understanding upon the impact that society & culture has on those living with the condition. I’m sure there will be lots more to come in this area, and if you’d like to see the book where the research will be published, please click here whilst you can also check out the blog post I wrote on the research here . A big shout out to Professor Gyozo Molnar who has played a huge role in guiding all of the work on this research!

So, from an education perspective this year we’ve been pretty busy… But we weren’t done there! Our participation work has also been progressing…

Participation:

Because for the first time since we were created in 2017, we’ve been able to host an all-women’s training day, in the same year that the England National Women’s team won the European championships! 2022 has been a huge year for us and for Women’s football in the UK. In making this team we’ve also been able to link in with the incredible HerGameToo campaign to help us champion women’s participation in our sport. It was brilliant to welcome Caz May, one of the founders to a session to meet the team, as they continue to provide support for what we do. A huge thank you for the donations you’ve provided, which have helped us in developing the sessions and funding our first kit! As you’ll see from the images, alongside our new women’s kit, we’ve got an updated Men’s kit supported by Air Liquide, which we hope, will be worn at DiaEuro 2023 (The European Futsal Championships for people with Diabetes)… It’s looking likely that this will take place in Poland in June and we’re busy planning behind the scenes to try and get a UK team back in the tournament for the first time in 4 years! I also want to shout out our friends in Ukraine, who hosted us and the tournament in 2019, who have been going through an unthinkable year with the Russian invasion of their nation. My thoughts are with you all!

Whilst our teams are a great opportunity to represent country and condition, they’re also an incredible opportunity to raise awareness of type 1 diabetes more widely in society… We take that on as one of the primary objectives of the team, alongside the support it offers the players, so to have BBC MOTDX attend a session to showcase T1D in Football was incredible! If you haven’t seen the feature yet, please do check it out here , in what was a great day for our men’s and women’s team. Awareness in mainstream TV makes a big difference to us all when it’s accurately portrayed, and with having Reece involved it gave Football a real insight into what our lives look like when tackling the sport whilst living with T1D.

 

 

 

 

 

 

 

 

The magic of what makes our community great has also been recognised in 2022 with our TDFC London team awarded with a QIC (quality in care) award for all of their amazing work across this year. It’s thoroughly deserved, and the team continues to go from strength to strength as they grow their numbers and look to win another league title in 2022, after winning one of the London Futsal League North iterations previously! They’re a brilliant group and I’d urge anyone in the south east/London to get in contact with them to find out more about what they’re up to…

Not only do these teams serve a purpose on the court but away from it as well… Because most of the players within them have originally come through one of our peer support WhatsApp groups to help continue the discussions and support in football surrounding T1D after the full-time whistle sounds too… We now have a WhatsApp group for men, women and we’ve recently introduced one for parents of children living with Diabetes. As with the men’s and women’s groups, we now hope we can take the support online into a physical session and team in the future for kids with type 1. We’ve had discussions about this within the group and keep a look out on our social media for any developments coming in 2023… We’re excited about this!

Sooooo, what a year it’s been! We’ve faced changes, we’ve adapted, and we’ve grown. Our community is special. It’s coming up to 6 years since TDFC started and as the community’s founder it always amazes me what we’re able to achieve collectively… It’s an honour to still be doing this and while the need is still there for us, I’ll be there helping to push what we do forward…

Thank you so much for taking the time to read my musings and for all of the support this year, I hope you’ve enjoyed a great festive period with families and friends, and I wish you an amazing 2023…

We will be there with you, when you need us…

Happy New Year!

Chris Bright

Founder of The Diabetes Football Community

 

My First Session by Anthony Parker

Posted on by thediabetesfootballcommunity in diabetes, Football, sport

I attended my first TDFC session in July following an introduction to the project by Mo who found my Facebook profile on a Type-1 diabetes page & saw from my profile photo that I was a football fan.

I have been a Type-1 diabetic for over 30 years and could probably count the number of fellow Type-1’s who I have met during this time on one hand.  However, during the challenges of the past 18 months and after experiencing some side effects caused by diabetes, the want & need to meet with people going through similar life experiences was heightened. The TDFC project provided this; the fact that everyone also had a passion for the sport I have loved for the past 35 years was a bonus!
In a strange coincidence, one of the other guys who was also planning on attending the session in July lives literally around the corner from me, a mere 7-min drive away! Buncy and me agreed to travel the 2.5hrs to Worcester (from Berkshire) together and got to know each other through an exchange that covered blood glucose levels, diabetes management, hypo symptoms and of course, football. Turns out Buncy is a Watford fan, so there was much fun to be had….
Once we arrived into Worcester, I found the meet & greet/get to know each other session really powerful.  I have not before realised the benefits of such a session.  They empower people to work to solve their own problems.  Everyone in attendance are equals and I felt that this made people feel much more comfortable opening up about their diabetes journey and related experiences. After a very tough last 18 months with Covid & the various lockdowns, I believe that sessions like this can reduce any anxieties, whilst improving self-esteem, and providing a sense of well-being overall.
The actual training session was itself a surreal experience. Playing futsal/football with other guys who were flicking their phone across the Libre on their arms to monitor their BG levels every so often whilst having conversations about various diabetes management strategies adopted for a rigorous football/futsal session was something I hadn’t seen before. Somehow, it almost seemed ‘normal’ to take mini-breaks to take BG readings and to read them out to the group with no judgments made.  I personally awoke with a BG of 12mmol so spent the whole car journey up trying to get it to a suitable level, but I did too much of a good job of this and ended up starting the session with a 3.3mmol highlighted in red flashing up on my own phone via my Libre.  Thankfully, there was an assortment of glucose options supplied to support the treatment of a low BG.
I have been playing a decent standard of football for over 30 years, but futsal is a very different game; more tactical, more structured and more intense with less time to recover from a period of attacking or defending.  Having put in a couple of additional pounds during the lockdowns, I’d admit that I need to better prepare myself to suitably compete for the next session!  The standards were pretty high and were refined by the guidance and coaching of Brighty, culminating in a very good team goal during the actual practice match.  Thankfully, the goal was scored by the team that I was on…
After a competitive and enjoyable session, I managed to join a couple of the guys for a quick ad-hoc lunch before we all departed for our return journeys home.  We all shared some more stories on our diabetes journey.  A couple of the guys were newly diagnosed, so it was empowering for me to share my own 30 year story of diabetes & to highlight what I had achieved, both personally & professionally to send a message that diabetes shouldn’t hold you back.
Personally, for me, the whole experience was humbling, empowering & enlightening whilst providing a much-needed boost to my mental mindset. I also got to find out that I ‘wasn’t the only type-1 in the village’….

Looking forward to the next gathering….

Back in the saddle by Tim Ward

Posted on by thediabetesfootballcommunity in diabetes, Football, sport

Guess what, it’s been a weird 18 months hasn’t it, but as the restrictions end and some form of normality returns it was great to get the message from TDFC HQ that the futsal sessions are back on and a couple of summer meet ups are in the diary. Get in!!

As many us will know (especially if you’re a parent or carer) you must wear different heads daily, nurse, best friend, coach, Darth Vader. All of which had to been worn in increasingly difficult lockdown circumstances. Having worn all of these (including the new Key stage 2 teacher head) I was driving down to Worcester for the session thinking I haven’t worn the futsal keeper/skipper one for over two years.

A light bulb moment that almost felt like imposter syndrome, as if I was stepping into someone else’s shoes. I’d felt a little like this going to the first ever meet up back in 2018 when I felt like the old guy who had come for the dads v lads’ game. Believe me that feeling disappeared almost instantly in 2018 and the same in 2021.

The reason why, it’s easy, it is the people. The strength and support of community is powerful. Something you don’t (or I didn’t at least) realise until you’re involved, meeting and listening to others, simply having a chat, a laugh or empathising with the issues they are encountering. The WhatsApp group that all who join TDFC are invited to has been fantastic in keeping in touch with everyone but meeting up with some old and new faces, getting the boots on and simply having a game, that is a life saver.

I have family down in Worcester, so we decided to make a day of the first session and catch up, so the Ward clan turned up on mass at Worcester FA HQ.

The meet up followed the usual routine the hello’s, how are you doing, nice to meet you, take the mickey out of each other and have a laugh (mostly at my lockdown barnet), yes Tob’s I know the barbers are open now but I’m going full Zlatan! 😊

There were loads of new faces and although I didn’t get to chat with everyone it was great to meet you all, apart from Bryn who megged me 3 times, you mate, can stay in Aberystwyth next session!

The presentation and discussion with Chris and Jon that opened the session was a real eye opener with the differing level of access to diabetic support across the country, be that physiological support, CGMs, pumps, and dietary & lifestyle advice offered was frighteningly varied, far from consistent and really not great to see. The tireless work Partha Kar and others are doing to remedy this is vital for people with type 1 across the country.

A special shout out to Mo Ismail, who has been an absolute legend throughout the pandemic and well ever since I’ve met him. His advice and guidance (he’s a qualified Pharmacist and T1D brother working in the NHS) on all the questions posted in the group has been a real source of inspiration and support and the recognition he received during the session is well deserved! Well done and thank you pal from us all.

After the presentation and discussion, it was down to the pitch for the futsal, but first media duties for me and Mo discussing the project with Active Herefordshire and Worcestershire, who have provided us with some great support to get back on our feet. It was great to chat about TDFC and the return to playing and training.

The training was great as usual (apart from the megs) and it’s always nice to learn as well as get chatting to Tom about Goalkeeping and his master’s Studies in the USA too!

I coach academy and grassroots football, so I am on a pitch most days of the week but being out there playing and being coached is such a release, you don’t know how much you miss it.

A nice end to the day was having my picture taken by Chris from Reaction Photography of me with Brighty and my boys all of us in TDFC kit, I think they are expecting to be on the flight to Bosnia now for the next DiaEuro.

It was great to be back to see some old and dear friends and make some new ones. I can’t wait to catch up with the rest of the lads and keep meeting new people within TDFC.

In a thousand different ways the day was a real family affair.

Zak Brown reviews 2020… Happy New Year Everyone!

Posted on by thediabetesfootballcommunity in diabetes, diabetes research, Football, sport

Another leading member of The Diabetes Football Community and a veteran of the UK Diabetes Futsal squad wanted to share his views on 2020. Zak has been living a long way from home, with the pandemic unfolding in a completely different way in the country of his birth, to the country he’s been living in…. A really interesting insight from Zak and we want to wish you all a Happy New Year wherever you are in the world and thank you for all of your support. Over to you Zak:

“It’s obvious that many people will be glad to see the back of 2020. However, reflection is an important part of every cycle or transition to a new period.

And with any reflection, it is important to acknowledge the positives of the year just passed.

Despite challenging circumstances, I have seen so many friends on social media starting up a side-business this year, whether it be selling hand-made gifts, homemade cakes, or launching a company they had been thinking about for years, and had finally been given the time to turn a vision into action.

Secondly, I have seen some seriously impressive 5km, 10km and further run times from people who had barely ran those distances before. The ability to get out in the fresh air and to explore the local environment will always be free, and for that we should be grateful. It also shows how quickly we can improve at something if we just put the time and effort in.

My situation is different to most right now, as I moved to New Zealand at the end of 2019 from Sydney, where I had been working on an overseas visa for the previous three years. The events that were about to unfold meant that it turned out to be a fortunate decision in many ways, with New Zealand containing the virus for much of 2020. However, despite the relative freedom, it still affects me in a similar way to others as I don’t know when I can next fly home to see my family and friends (I was due to see them this Christmas).

The main challenge for me this year has actually been diabetes-related. The health care system here isn’t quite as advanced as in the UK, meaning diabetes care options are much more limited. For example, only one type of long-acting insulin is government funded (Lantus) and CGM is mainly self-funded here too. Due to my current visa status, I am not eligible for any discount on prescriptions. The full price of insulin, the thing that keeps me alive on a day-to-day basis is eye-watering at times, and certainly makes me feel some empathy for our friends across the Atlantic in USA, who deal with similar battles over the cost of their diabetes.

Despite these hurdles, I have taken a positive outlook and tried to address how I can combat this challenge. To save some money, I decided to cut back on a couple of other “luxury” expenses. However, I made sure I did not cut back on my diabetes care, as health is so important, therefore I tested as much as I usually would, despite the extra costs. This yielded a positive result, with my HbA1c resulting in 42 at my last check-up; the lowest it has been since diagnosis 14 years ago. I remain hopeful that my new visa will come through soon and that I can then access my insulin, test strips etc. at a more reasonable cost.

Looking ahead to 2021, our CEO at Sport Wellington summed it up quite well by wishing for a “dull and boring” 2021! With uncertainty set to continue for a while, “prepare for the worst, hope for the best” may be a good mantra to live by. For me personally, the current situation just re-iterates how happiness and health are essential to our livelihoods. So, I would encourage everybody to think about what makes them most happy? And think of how you can achieve this in whatever circumstances are thrown at you. And when we think about health, as people with Diabetes we have that extra aspect to think about; but remember that health is holistic and not just physical – mental, emotional, social and spiritual health are all contributors to our overall wellbeing.

Take care everyone and wishing you all a Happy New Year.

Zak Brown”

 

Our Journey with Type 1 and Football…

Posted on by thediabetesfootballcommunity in diabetes, Football, sport

Another amazing story to share with the community brought to you by Karen Brown, the mother of Ellen, a young type 1 who’s having a fantastic time with her Football/Futsal at the moment. Ellen & Karen have been big advocates and supporters of our work at TDFC from the very early days so it’s brilliant to be able to share their story! No more words needed from us, over to you Karen…

“Our daughter Ellen was diagnosed at age 8 with type 1 diabetes. As you all know it hits like a bomb and the early days are hard. Somewhere amongst the haze of diagnosis we made a decision that when we got Ellen home we would stabilise her doing all of the sport she usually did. So the day after discharge we took her to school for a few hours and the following Monday she started back swimming. I sat on the edge of the pool chewing my nails hoping she would be fine. Strangely enough the year she was diagnosed is the only year she hasn’t played football (played 1 year of netball and hated it!). Ellen prefers to manage her diabetes with a pump (Medtronic) and we use CGM periodically.

Since then it has been buckets of football and within the last 4 years she has also played futsal in the off-season. It is amazing how different the two are to manage. Football often sends her low- particularly in the cold Canberra winters (we live in Australia) whereas futsal sends her high due to the adrenaline. As futsal isn’t as big in Canberra her futsal club (Boomerangs FS) travel to Sydney to play in a Sydney comp. So every Sydney game we travel between 2 ½ to 4 hours each way (depending on what side of Sydney the game is) to play. The weather in Canberra is quite dry whereas Sydney can be humid which can affect Ellen’s BGLs (sends her low) so at the half way stop en route to the game we reduce insulin if she has any carbs and put a reduced temp basal on. We find doing low carb on the morning prior to the Sydney trips much easier to manage. At least we are only fixing the humidity problem. Then during the games she heads high! Sydney games we nearly always use CGM to help keep an eye on things. If it’s a home game its breakfast as usual. After the game she eats what she wants.

Ellen Brown Picture 3

Whilst having diabetes can be tough when you are playing football and futsal, we run at it with the attitude that if we have a tough day diabetes wise we look at why and see if we can do something different. There are days when you just can’t explain why the numbers are what they are! All of her coaches and teams have been really supportive and the boys often try and guess her Blood Glucose Level – she plays in the Boys National Premier League. Ellen also chooses to celebrate her ‘diaversary’, so the team usually hangs out for the cupcakes she takes along to celebrate another year kicking the butt of diabetes.

Having diabetes hasn’t stopped Ellen from achieving in soccer and futsal. The last 12 months have been particularly rewarding!!! 12 months ago her girls futsal team won both the premiership and championship in the Sydney comp. For outdoor her BBFC U16’s team made the Grand Final and won in a penalty shootout. She then made the ACT team (regional team) to play futsal at Nationals in January – they were runners up in the Grand Final in a penalty shootout. And a couple of weeks ago at the presentation night for Boomerangs FS, Ellen was awarded female player of the year. We are pretty proud of her. Winning isn’t everything but it is great to get some wins and they have been a while coming!! Though I must say the victories are much sweeter after the effort you put in to get the diabetes right. (excuse the pun!)

Ellen Brown Picture 1

As much as it is a challenge, there have been lots of good things about having diabetes in our lives for the last 8 years. We have made a whole new bunch of friends we wouldn’t have otherwise met. Whilst it is so nice being able to converse with those who understand the challenges and learn new things from. Ellen has had the opportunity to speak at JDRF fundraisers and she was recently asked to take part in some research at ANU.

Being part of TDFC has been a huge help though. It was so nice to hear from others who play football and be able to read about their experiences. With Ellen being a girl it was so nice to read about Noel and what she has achieved. We got to meet Zac (UK DiaEuro Player) at one of Ellen’s games in Sydney and hope to see him again soon. Whilst it’s also great to see that Chris represented his country in Futsal, which gives Ellen so much hope she can achieve the same.

Ellen Brown Picture 4

To any young footballer out there, chase your dreams. Ellen’s favourite saying is “I don’t live with diabetes, diabetes lives with me”.”

 

A really great blog written by Karen Brown and a huge thank you from us for putting it together. If there’s anyone out there reading this who’d like to contribute in a similar way get in touch! We’re always on the look out for blogs and stories to share…

It’s much more than just Football or Futsal… Part 4 (Zak Brown)

Posted on by thediabetesfootballcommunity in diabetes, Football, sport

In our fourth instalment we feature Zak Brown… Zak is currently living and working in Australia but has been heavily involved in all things TDFC throughout 2018 as a pivotal member of the UK DiaEuro squad, whilst also heading out to Ireland with Chris to observe the Diabetes Junior Cup… Zak’s passion for the project is evident and in this post he shares his thoughts on how being involved has helped him! No more words from us, over to you Zak:

“I think firstly and foremost, the opportunity to meet several other T1D’s with a passion for football was amazing in itself! To then be able to discuss our condition as we went through very similar schedules during DiaEuro was great – having a diabetes discussion with your team-mates was like having 10 nurses beside us, as they added great value through personal stories and specialist advice.

The access to technology was a huge thing for me personally. I was a bit skeptical of the Dexcom G6 initially, as I have been on the same insulin and blood sugar testing strategy for a number of years and been relatively consistent (HbA1c usually between 50 and 61). It took a couple of days to adapt but several months later and I wish I still had the G6. I regularly see T1D’s on social media posting about how much the Dexcom has improved their control in recent times.

The other thing which was highlighted for me was the carb counting. I have generally just guessed my insulin based on what I am eating and knowing how it has affected my sugars in the past, but to see plenty of my UK team-mates measuring the carbs on their packets of food and calculating their dinner plate in the their head was a good insight for me; and pushed me to start making more calculated guesses with my own carb intake as life and diabetes continued after the tournament.

Whilst I wouldn’t say the experience has directly improved my control yet, I think it has acted as a gateway for me to access more information, attend diabetes meet-ups and possibly gain access to modern technology, which I expect will have a direct improvement on my Type 1 Diabetes control moving forward! Only time will tell…

Zak Brown

UK DiaEuro 2018 Player”

If you want to follow Zak’s journey on social media head to his twitter @mrzakbrown or his instagram @zakbtown

It’s much more than just Football or Futsal… Part 3 (Jack O’Brien)

Posted on by thediabetesfootballcommunity in diabetes, Football, sport

In our third addition we share the thoughts of Jack O’Brien… Jack has a fresh outlook on the way Diabetes has impacted his life having been diagnosed quite recently! His account offers some great insight into how a newbie to type 1 Diabetes feels about the challenge of this condition coming into their life… No more words from us let Jack do the talking…

“First of all, I think I should point out that I am a relative newbie in the Diabetic world having only been Diagnosed 2 years ago today! (I wrote this on 6th Feb). DiaEuro was only the second time I was going to be away from home, and all the supposed safety that comes with that, since I was diagnosed.

To say I was nervous doesn’t really do it justice! I was fully aware that I was going to be spending the week with a group of people who have for the most part been Type 1 Diabetic for a long time. The fear or seeming like I don’t really know what I’m doing, or “messing up” all the time was playing on my mind because this was for me the first time I would be spending a prolonged period of time with other Diabetics. It’s funny how weird things like this can play on your mind! I was seriously still at a stage where I felt like it was only me who suffered from hypos because everyone else would have it under control!

The first morning we are there, we all go down to breakfast together as a squad to enjoy the spread of food that was being put on. It was this experience that alleviated all the pre concerns I had. Seeing most of us checking sugar levels and injecting insulin immediately eased my nerves. This was something that I found awkward to do beforehand.

Before you knew it, Diabetic chat was bouncing around the table. The same problems I found, others were also talking about. In a weird way, if felt so liberating! That sense of not being in something alone, that others have found ways to overcome similar situations and have come through them to find solutions was amazing for a newbie to hear.

You hear the phrase “trial and error” thrown around a lot when it comes to Diabetes, and I really understood that so much more after this journey. A corner was well and truly turned for me during this week. I am now playing sports more regularly, because I feel more confident. Understanding food on the day of playing football is something that is so important. Seeing other people using the Dexcom looked brilliant. Once I finished my trial run, I missed it so much that I signed up for 12 months.

 

 

 

 

 

The whole experience was invaluable to me. I learned more in that week than I would have done in years studying books and speaking to specialists. Seeing people who regularly play sport and manage their Diabetes gave me so many tips and ideas that I use myself now. There really is no better experience than experience itself.”

Thank you to Jack for sharing his thoughts on how TDFC has helped him and the UK DiaEuro team in particular. If you want to follow Jack on social media you can find him on Twitter @DalstonGooner … If you want to know what’s going on at Arsenal FC Jack’s your man to follow!!

It’s much more than just Football or Futsal… Part 2 (Scott Burrell)

Posted on by thediabetesfootballcommunity in diabetes, Football, sport

In our second instalment of “It’s much more than just Football or Futsal” we look at the story of Scott Burrell. His journey with TDFC and type 1 Diabetes has been staggering and for those of you unaware of what Diabetes care was like without the technology that is available now, I’d urge you to read on… This is a fascinating account of how TDFC has effected and improved Scott’s life and another example of a social / community based project like ours supporting healthcare benefits and objectives for those living with the condition. No more talking from us lets hear from Scott in his own words:

“Being selected in the UK DiaEuro squad really changed my ‘diabetic life’ and that’s by no means an exaggeration! Firstly, and something a majority of the squad had said, was that they’d never met another T1 in ‘normal’ life so that was great. Like any football squad you tend to bond quite quickly with the other players but we bonded especially quickly as we all shared the condition. My knowledge of T1 has increased ten fold. It was great to share stories and bounce successes/failures off each other.

I was actually the only member on mixed insulin. I was taking Humulin M3 which was the same insulin I’d used since diagnosis in 1999! I’d been told for many years, probably close to 10, that a basal/bolus regime would be better for me, but me being a stubborn so and so I’d always thought I’d be better sticking with what I knew. Seeing all the other lads using the basal/bolus regime and many telling me how they had moved from mixed insulin and how much better it was really gave me the incentive to change.

A few months after we got back I eventually made the switch and now take Toujeo & Novo Rapid, I’m finding it much better and in hindsight wish I’d changed over many years ago. I’m certainly having less hypos which had always been a big problem for me before. As good as healthcare professionals are it was the kick from people living with the condition day in, day out which convinced me to finally change.

Finally I’m a lot more open about my Diabetes now… Growing up and even in my early 20s I’d try to hide it as much as possible, not talk about it and only tell people I was T1 if really needed. My mentality completely changed about that having been selected in the squad. I’ve now had newspaper articles written about me and appeared in a TDFC video filmed by BBC Hereford & Worcester which they shared on their social media platforms talking about the project and the condition. It actually made me feel ‘proud’ and gave me a desire to talk about diabetes for the first time…something I’d never experienced before in my time as a T1.”

Keep an eye out for more stories from some of the community and if you want to follow Scott on social media head to his twitter account @scottbufc to get in contact with him.

Diabetes, Football and Me

Posted on by thediabetesfootballcommunity in diabetes, Football, sport

It’s great to be able to share stories of our community and when we asked Zak if he’d like to write for the blog he was really keen… If you’d like to write something for us please get in touch! Anyway, over to Zak…

Hi, my name is Zak. I am 26 years old and a PE Teacher from Lancashire, England but currently living in Sydney, Australia.

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Football has always been a huge part of my life and being diagnosed with Type 1 Diabetes aged 14 did not change this one bit.

 

Despite my Dad’s initial fears that I may not be able to play football in the same way, we were reassured by the nurses at Blackburn Hospital that I could continue my number one hobby soon enough. Sure enough, after a few minor adjustments and some extra pre-game preparation, I lined up for my team just two weeks after diagnosis! I remember it so vividly, tucking into a couple of digestive biscuits at half time to keep my blood sugars up and cramping up towards the end of the game.

 

I know that many people have struggled to keep up their previous lifestyles after diagnosis, through fear of hypos/hypers or by misinformed advice, but it’s something that has never stopped me from doing anything I like… except for one thing – scuba diving.

 

I have tried to Scuba Dive twice in Thailand and Australia but not been accepted both times. Without a doctor’s letter of approval after taking private health exams via a registered “dive doctor”, unfortunately I had to stick to snorkeling. I’d be interested to hear about other people’s experiences with scuba diving so please get in contact if you have a story or info worth sharing!

 

And despite the scuba setback, I have done kayaking, bungee jumps, overnight treks, 100km bike rides and many many more adventurous activities!

 

Having diabetes has its obvious challenges and hurdles we face day in, day out, but it has given me some great experiences that I will cherish for a long time to come…

 

I have been fortunate to represent Great Britain in the Junior Diabetes Cup held in Geneva, Switzerland. In my first year (2009), we won the tournament in a nail-biting penalty shootout against Slovakia. I was due to be the next penalty taker and I can’t describe the relief I felt at not having to take one! I went back again the next year and was nominated to be captain, which was an incredible honour. Despite finishing the top scorer in the tournament, we lost 1-0 in the final to Slovakia who got their sweet revenge (excuse the pun).

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Then in September 2016, I decided to move to Australia to give life a go “down under”. I have found a great football team here in Sydney and have represented Australia at the Mini Football World Cup in Tunisia, playing in front of a packed stadium of 3000 fans under the floodlights! I spent a bit of time pre-tournament learning the national anthem so that I didn’t have to mime awkwardly whilst on camera! I was also part of the UK’s first diabetic futsal team to play in DiaEuro 2018, which was an amazing experience both on and off the court. To meet so many other diabetics with a passion as big as mine for football was incredible, you can imagine how many stories were shared during that week!

 

A few adjustments have been made after moving to Australia, most notably with my prescriptions and dealing with heat of up to 40 degrees during summer! I have to pay for my diabetes supplies here, which makes me appreciate just how good the NHS is back home. Playing football in the heat took some trial and error too. My suncream is now just as important to pack as my insulin on a Saturday afternoon!

 

Two and a half years down the line and I’m still enjoying life here. I’ve met one other sporting diabetic superstar and her family in Sydney – my namesakes the Brown’s have been great at handling Ellen’s diabetes whilst she competes at the highest level of futsal in Australia at U17 and all age women’s level. I hope to meet and chat to a few other sporty diabetics in the near future, so if you’ve read this and want to add anything of your own then please step forward!

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G’day

Zak

If you want to find Zak on social media head over to his Twitter @mrzakbrown or his Instagram @zakbtown

2018… Looking back to look forward

Posted on by thediabetesfootballcommunity in diabetes, Football, sport

Firstly I’d like to wish all of our followers, volunteers, players, coaches and anyone involved in the TDFC family a Merry Christmas and a happy new year!

What a year it has been…. We’ve done some incredible things in 2018 and I really just wanted to summarise what’s happened, thank some of the amazing people who have helped us make it happen and look forward to what 2019 might bring for The Diabetes Football Community.  

So where do I start…

For me one of the most important projects to highlight and look back on was one of the first in 2018. The 24 hours in the life of a Diabetic Footballer ( #WalkInOurBoots) was an important awareness and education project which showcased the Andrewartha family and Mitch’s battles with type 1 as a young footballer. This video fills me with immense pride every time I watch it. For me it encapsulates everything about living with type 1 and wanting to play football during childhood. It showcases the immense physical and emotional strain it puts on the family, as well as the incredible amount of preparation and determination needed from Mitch and his parents to get him out there playing on a Saturday. Every time I watch it back I’m inspired, moved and so grateful to the community we’ve created for supporting our ideas and projects. We do it for you and we couldn’t do it without you!

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A massive thank you to Dave, Faye & Mitch for agreeing to do the documentary and their amazing performances! Also a huge thank you must go to Ferenc Nagy who filmed and edited the video. A great job buddy…. If you want to check out the documentary head over to the below link where you can find the video:

https://www.youtube.com/watch?v=ZWjlrLbvWr4&t=39s

The #WalkInOurBoots campaign was just the start!!! We then focussed on creating the first ever all Diabetes team to represent the UK and compete at the European Futsal Championships for people with diabetes (DiaEuro, www.diaeuro.org )… We don’t like to do things by halves! From the outset I knew it would be ambitious and extremely challenging to not only recruit players living with diabetes, but also to recruit members of the “staff” team who were willing to give up their time for nothing other than the experience (thank you to Harley, Paul & Jahna)! But what about the money?!! It’s quite expensive to get 14 people on a plane with kit and a roof over their head for a week!! A massive thank you must go to our sponsors Dexcom, Gluco and Havas Lynx for supporting the project in 2018 as we couldn’t have done it without you! As I look back now… A year ago it was an idea in my head which I’d just started to share on social media….  A year later and we’ve played in our first tournament and are planning for our second…. Sometimes I have to pinch myself to check it’s all been real! It was an incredible journey and achievement to create the team, manage the project and play in the tournament. Being stood alongside my 10 fellow type 1’s to represent our country and our condition was something I’ll never ever forget. Scoring 2 goals in our first win just topped it all off for me…. It still feels like a dream to me. I’ve made lifelong friends through this project and I hope the community draws a huge amount of inspiration from what we were able to achieve! With everyone’s support I hope this is a project and team I hope we can continue for many years to come…

 

https://www.youtube.com/watch?v=Sf8n6LSLRRM

Whilst we were busy planning for DiaEuro we also joined forces with 1BloodyDrop and the University of Worcester to deliver the first Type 1 Diabetes and Sports conference in the UK led by people with Diabetes for people with Diabetes ( #SporT1Day ). An idea conjured up by myself and Paul Coker, we wanted to bring people together to further the knowledge of sport and exercise management for those living with type 1 diabetes. We tried our best to bring in speakers which demonstrated a variety of sports, approaches and experiences to offer a rounded view of type 1 management in sport and exercise. The line up included type 1 professional athletes, university lecturers, a psychologist and sporty individuals keen to share their experience of managing the condition.  It really was a special event which I loved hosting and presenting at. I hope that everyone attended continues to utilise the strategies shared on the day and due to the overwhelmingly positive feedback we received it’s something myself, Paul and the University are looking at re-creating in 2019 so keep your eyes peeled for that. A huge thank you to those who attended and to 1BloodyDrop and the University of Worcester for co-creating this amazing event! If you want to read up on the 2018 conference check out the below blog post:

(https://thediabetesfootballcommunity.com/2018/05/28/the-first-sport1day-conference-organisers-perspective-chris-bright/ )

 

I feel that whilst we try to support people with the condition through advice, education and support through the community’s projects and members, I’ve always felt we need to try and drive change in a mainstream environment to counteract the stigma and stereotypes myself and many others have experienced. To do this I felt it was important to bring stakeholders in the Diabetes and Football world together to strive for change. In July 2018, we had the first Diabetes Steering group meeting led by the Worcestershire FA to do just that. We’ve invited the local university, the local NHS, members and volunteers involved in The Diabetes Football Community as well as parents of a child living with type 1 to join us within the group. Our remit is very much about trying to improve the knowledge and awareness of Diabetes within Football to improve the inclusivity of those living with the condition within the game. So far we’ve had 2 very positive meetings with some brilliant ideas coming up which we hope to develop forward into 2019. It’s a hugely positive step in the right direction which I’m sure will see tangible results for the whole community in the not too distant future!!

Around the time of our first meeting I also went over to Ireland on a scouting mission… Myself and Zak Brown (Our UK DiaEuro Manager’s Player of the Tournament), had spotted online about a junior small sided football tournament taking place in Dublin for children with diabetes and with the nature of what TDFC does it was something we couldn’t afford to miss… Ever since I started TDFC up the support of parents and children coping with type 1 diabetes has been incredible and this was an opportunity for us to do some fact finding for the future… I want us to deliver a project which really gives back to this group of people and I promise that we’re planning something for 2019, I just need to get my masters out of the way first!!! Diabetes Ireland did an amazing job at delivering their tournament and celebrating the successes of the children who took part. I was just so glad we were able to attend on the day and thank you for your hospitality… If you’d like to read up more on this check out the below blog post:

https://thediabetesfootballcommunity.com/2018/09/10/diabetes-junior-cup-2018/

 

I think one of our last projects is perfect for this time of year! If you need any inspiration around this festive period or you’re finding things tough I urge you to watch our World Diabetes Day video below… The kids did an amazing job at sharing their thoughts and they get me every time! It’s very special seeing the way the community has come together to support what was an idea floating around in my head. This is all about you, the people who interact with us, and as long as we continue to hit the mark by educating, supporting and inspiring you, I’ll be delighted! Thank you to everyone who contributed to this video!

https://www.youtube.com/watch?v=C353oCtYH2U

A year I will never forget and one that has shaped the future for TDFC. We’ve become an official registered community interest organisation which has furthered the ambition and potential reach for the future, we’ve received recognition on local BBC radio stations and social media, we’ve exhibited up and down the country at conferences in the Diabetes world and continued to grow our social media presence throughout 2018. None of this is possible without the continued support of people in the Diabetes community so all I’d ask is if you like what we do, please keep sharing, raising awareness and getting in contact with us. We will always need support and funding to make our goals happen so whether you like, share and retweet our posts or you’re able to help us with sponsorship or donating to the cause everything is valuable and we appreciate it so much.

 

But let me give you a sneak peak at what we’re thinking for 2019…

There will be more of the same but hopefully with some exciting new developments alongside projects we already have in place.

The UK DiaEuro Adult team will be continuing with an emphasis on the DiaEuro tournament in 2019 whilst also creating opportunities to play against our near neighbours in Ireland who are creating their own team. I’m seeing an exciting future for our local rivalry!!! Another exciting participation opportunity for the adult type 1’s in the London area is the creation of TDFC London,  project managed by our man Bryn White to take part in the London Futsal League (https://www.facebook.com/LondonFutsalLeague/) as an all diabetes team for the very first time. They will be kicking off for their first competitive game in February 2019, so keep an eye out for the developments on our social media and if you’d like to help support them, get involved with the project, play in the team or sponsor please do get in touch!

As I mentioned we hope to re-create the #SporT1Day conference in 2019 that takes on the feedback from last year to offer a bigger and better event! I’ll be working with Paul and the university to see when and how we go about doing this over the coming months… As always any ideas you may have make sure you get in touch.

As I alluded to within the Ireland trip I mentioned earlier it’s definitely time we tried to put a participation opportunity together for our type 1 kids and their parents out there. I’d like us to work towards delivering a day/tournament in 2019 but this will as always rely on support from the community, sponsors and volunteers to make it happen but it’s something I’m really passionate about creating, so let’s give it a shot!

Lastly, I’d suggest that our emphasis around education will be pushed further as we continue to develop the Diabetes Steering group and partnerships with other organisations to champion education on diabetes throughout different walks of life. We’re really keen to ensure we develop resources and tools to drive further understanding and awareness within mainstream environments/sport whether that is with the FA, schools or clubs. If you have any ideas about how we might do this we’re all ears.

Right… I’ve talked far too much on this blog but I felt it was important to demonstrate the amazing work we’ve achieved in 2018, our amazing community and the ambition we have for the future. The wave is coming and growing in size. Patient led initiatives like ours are beginning to help shape the way people are supported with chronic medical conditions and I couldn’t be prouder to be the founder of this one…

A favourite saying of mine at the moment is dream big, then dream bigger. If we can achieve all of this in one year, myself and TDFC need to set our sights on doing it bigger and better in 2019! Which is exactly what we intend to do.

Lastly to anyone out there who might be reading this, in any part of the globe, if you like what we’re doing or want to get involved please get in touch! We know that our work isn’t confined to the UK where we’re based and the ideas we generate are mostly what we come up with! If you’d like to help in any way or work with us, you know where we are.

As always a huge thank you to the directors and volunteers who give up their time to support our cause, we couldn’t do it without you! Let’s make 2019 bigger and better than what has gone before.

 

Merry Christmas and a Happy New Year!

Chris