What happened at SporT1Day 2019…

Well….. Where do I start?

I suppose it’s taken me a little while to get this written down with the vast amount of things on my plate in the last month but we got there eventually!

A culmination of months of behind the scenes work, emails, phone calls, marketing and raising awareness of what we were putting on came to fruition on November 17th. There was no better timing than to host it 3 days after World Diabetes Day as a statement of support for one of the most important days in the calendar.

Before I talk about the event itself, I need to thank the University of Worcester for allowing us to host the last 2 SporT1Day conferences within their facilities. I have a brilliant relationship with so many people at the university and their continued support for me, the conference and The Diabetes Football Community is incredible. I will always have a strong affinity to my university for how they’ve encouraged & facilitated the projects we’ve come up with and I just hope I represent their values & ethos in the work I now do. A huge thank you must also go to Dexcom & Roche for sponsoring the conference and supporting with refreshments & the programme.

I also must say a huge thank you to Paul, who shares this joint vision to drive education in sport for people with type 1 diabetes. A mate of mine whom I’ve been able to co-create something special alongside. Thank you buddy… We’re on some journey with this and I can’t wait to see what we can do next.

But lastly before talking about the day a final thank you to the incredible speakers, paul’s family and my own family for helping us deliver the day. Without you it wouldn’t have been possible.

An early start for myself, the family and one of our speakers Alex Richards, as we made our way down to the university. I was definitely less nervous than the first time round after having the experience of last year’s conference already under the belt. After setting it up the best we could based upon the volunteers and resources we have available for this kind of event we were all really excited to start seeing people arrive.

As soon as you see people arriving with their tickets it’s an incredible feeling to know that all of the planning you’ve put in place is about to happen but it’s also the moment when you realise there’s a show to put on.

We kicked off the day with the incredible Professor Partha Kar, who really needs no introduction. An amazing man, who through his determination, passion and ability has helped drive a transformation in the way type 1 diabetes is both viewed and supported within the NHS. Partha gave us a talk about the focus and direction the NHS England Diabetes programme is heading in whilst demonstrating the incredible developments and uptake of technology across the country. Having someone of Partha’s credentials attend the conference was a huge compliment and I really do owe him (He’s got me down for a couple of beers the next time I see him!). @parthaskar on Twitter

We’d planned the day to give our audience a chance to take on the recommendations and thoughts of the healthcare professionals at the beginning and end of the day. We felt this would be a good way of allowing people to pick up some tips before listening to some of the experiences of our athletes and people living with type 1 diabetes throughout the rest of the day.

After the excitement of Partha’s opening we then had the pleasure of having 2 of the leading healthcare professionals in exercise and type 1 diabetes within the country, whom lead on the EXTOD programme (www.extod.org), talk to us about the science of managing blood glucose levels through particular types of physical activities and sport. Dr Alistair Lumb and Dr Parth Narendran have been imperative in driving attempts to improve the knowledge of other healthcare professionals across the country through EXTOD and having them share the knowledge and framework at SporT1day was a privilege. You can always tell when a topic and talk has captivated an audience by the response at the end…… Let’s just say we could’ve been there a lot longer with the questions. A huge thank you for coming along guys and I look forward to working with you in the future on some exciting ideas! @DrAliLumb & @parthnarendran on Twitter.

Following an opening of theory from the healthcare professionals we started to delve into some of the experiences of those living with the condition, who are putting this knowledge into practice day in and day out. So first up was Brian Hoadley or Type1Bri ( www.type1bri.com). A really top bloke, who encouraged me to share my journey and who had a huge impact on me personally as I became aware of the diabetes online community. He’s been a great friend of mine who’s always supported the work of TDFC from the very beginning. It was an honour to have Bri share his own inspirational journey of running the London marathon less than a year after being someone who didn’t do any exercise. To do that in under a year is epic for anyone, but made even more special and inspiring when you’re able to do it with type 1 diabetes. Bri shared the journey he went on, how he did it and the effect it had on him and his diabetes. A brilliant talk and achievement from Bri. So pleased we all got to hear it. @Type1Bri on Twitter

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Next to the centre of our SporT1Day stage was Alex Richards. A very good friend of mine who’s work in sports psychology has taken a special interest in the experiences of people with type 1 diabetes in sport and exercise. Alex gave us a talk about perfectionism and it’s challenges to both athletes and those of us living with type 1. It was very poignantly linked to the goals we set ourselves and how most of us look towards outcome goals rather than process goals. Interestingly, those outcome goals are often out of our control to some extent, as winning trophies, representing teams or qualifying into tournaments relies on coaches, other players and beating the opposition which you can’t actually impact upon. His talk fascinated me having spent much of my life with this idea of perfectionism rooted inside of me and my focus on outcome goals, that I couldn’t always impact upon. Top work Al and I think there was a large proportion of the audience desperate for a chat about the presentation and keen to grab hold of the slides afterwards! It says it all about how interesting the talk was. @alex_acr on Twitter

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Then we moved onto the incredible Melanie Gray. Now Mel will always have a special place in the history of TDFC as she was someone I spoke to when I was thinking about putting myself out there to share my individual experiences as well as creating TDFC in the early part of 2017. So to have her along to speak at our joint conference with 1BloodyDrop was an honour. Mel has been an inspiration to so many within the diabetes community as an international sprinter with the condition who has gone onto share her story widely through her renowned blog, advocacy work and now her role as a dietician. As an experienced speaker with a vast knowledge of her sport and how to manage type 1 diabetes within it, it was a brilliant watch and listen. I think anyone in the audience on the day would’ve enjoyed the insight surrounding Mel’s management which complimented talking about her work, which has had her featured in a nike campaign during the London 2012 olympics, seen her become a London 2012 olympics torch bearer whilst also developing her own peer support group Blue Circle Diabetes.  If you want to take a closer look at what she’s up to head to www.lifesportdiabetes.co.uk to check out her blog and thank you Mel for supporting our conference.

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We then had a chance to take a breath! It was lunch…. Now for everyone else it means take a breath and grab some food but for me, paul and a couple of the speakers who’d already spoken it was an opportunity to speak to members of the audience. So lunch went in the blink of an eye but we had so much more to come….

Our afternoon had a heavy tinge of football within it as 2 of the UK Diabetes Futsal squad shared their stories about getting involved in TDFC and their feelings towards the team. Having Tim and JT, share their thoughts so publicly about how TDFC has helped them through their involvement in our team was pretty special. I didn’t tell them what to say either!!! So for them to show their overwhelming support for what we do and showcase it so brilliantly to the audience was amazing. The power of peer support for people with chronic health conditions should never be overlooked and I firmly believe that its power can drive holistic improvements for people with conditions like type 1 diabetes. Listening to Tim and JT certainly made me feel that this is the case. After they’d both shared their stories it was a chance for me to briefly talk about how I manage my condition around my sport, some of the techniques and ideas I’ve adopted, as well as showcasing what TDFC has been up to and what’s planned for the future. To be honest, it was quite nice to just have a small part in the talking side of things such was the level of organisation required! Hopefully my small snapshot in the day was a worthwhile 10-15 minutes amongst the stars of the show. As we grabbed our coffees, we readied ourselves for Craig Stanley to take to the stage. If you wanted to hear more on JT or Tim’s journeys you can follow them on twitter under @Tim_Ward07 & @JonoTyrrell

I’m biased as a Football/Futsal player but Craig (Staners) talks so honestly and openly about his journey in professional football with type 1 diabetes that it just fascinates me every time I’ve heard him share it. Professional sport and the “elite” are supposedly supported by infinite resources, in the way of money, people and specialists, but Staners shares a story that despite his day job being to play in front of thousands of people playing Football, the support he had throughout his career was limited. I’d always felt this with my experiences in the part time game but you just assume that the added professionalism would improve the experience that players with type 1 diabetes had. Instead talks like Craig’s continue to demonstrate that mainstream sport still hasn’t got it right from the grassroots through to the elite for people living with chronic health conditions. This is where I hope campaigns like the #WeAreUndefeatable campaign created by Sport England goes some way to addressing the issues we face. Despite what Staners has faced he’s had an amazing pro career of over 500 appearances, a Wembley playoff victory and having the opportunity to captain the England C team. All of this despite living with type 1 diabetes. He’s a very down to earth guy but what an example he sets for us all. A massive thank you buddy for coming to share your story with us again. If anyone wants to follow Staners on social media you can find him on twitter under @staners6 and on instagram under @staners10.

Our last lived experience of the day came from my partner in crime Mr. Paul Coker. His experience of living with the condition for over 40 years which combines feats of endurance along the way always provides an insightful and inspiring listen. This time we had the pleasure of listening to the story of climbing Mount Kilimanjaro for JDRF with a number of other type 1s. I’ve heard Paul talk a few times but not on this topic with so much depth. It was really interesting to see the impact altitude had on himself and others managing the condition and certainly provided some important insight into how to go about tackling that sort of challenge. Paul’s experiences of Kilimanjaro provided yet another valuable varied talk for our audience whom I’m sure gleaned so much.

Another member of our healthcare profession came to round up the day with a specific view of what it’s like as a diabetes specialist nurse (DSN). Emma Innes talked us through some of the specifics of how we should work with our specialist team, some of the recommendations from healthcare professionals for sport & exercise and how technology is making it easier. Emma now uses her experience in the field to lecture at the University of Worcester for the nursing cohort of students. Her talk helped to remind us all of the importance of working with our healthcare professionals to achieve our joint goals together. A big thank you for sharing your insight for us Emma! You can follow Emma on Twitter under @emmainnes3

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Finally we finished off with a Q&A session for the audience and as I stood at the front with my fellow speakers, providing answers in the best way we could, I knew we’d delivered something special. The engagement, the faces and the thank you’s we received told us that. Now we need to consider where we go from here…. The magic of what we’ve started needs to be built upon and myself & Paul need to go away to think about how we make this grow and work for the future. Nevertheless SporT1Day was an incredible success which I certainly will look back upon with a huge amount of pride!

If you’re interested in where we go next make sure you follow @SporT1Day on twitter for updates and news from the conference. Our plans are always ongoing and if you think you’d like to see us in a different part of the country or you have an idea you’d like to share with us, you can contact TDFC, 1BloodyDrop or the SporT1Day twitter account to get through to us.

Thank you for all of the support with our conference & the wider work of TDFC and I hope you all have an amazing Christmas!

Chris

Live. Play. Inspire.

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It’s much more than just Football or Futsal… Part 3 (Jack O’Brien)

In our third addition we share the thoughts of Jack O’Brien… Jack has a fresh outlook on the way Diabetes has impacted his life having been diagnosed quite recently! His account offers some great insight into how a newbie to type 1 Diabetes feels about the challenge of this condition coming into their life… No more words from us let Jack do the talking…

“First of all, I think I should point out that I am a relative newbie in the Diabetic world having only been Diagnosed 2 years ago today! (I wrote this on 6th Feb). DiaEuro was only the second time I was going to be away from home, and all the supposed safety that comes with that, since I was diagnosed.

To say I was nervous doesn’t really do it justice! I was fully aware that I was going to be spending the week with a group of people who have for the most part been Type 1 Diabetic for a long time. The fear or seeming like I don’t really know what I’m doing, or “messing up” all the time was playing on my mind because this was for me the first time I would be spending a prolonged period of time with other Diabetics. It’s funny how weird things like this can play on your mind! I was seriously still at a stage where I felt like it was only me who suffered from hypos because everyone else would have it under control!

The first morning we are there, we all go down to breakfast together as a squad to enjoy the spread of food that was being put on. It was this experience that alleviated all the pre concerns I had. Seeing most of us checking sugar levels and injecting insulin immediately eased my nerves. This was something that I found awkward to do beforehand.

Before you knew it, Diabetic chat was bouncing around the table. The same problems I found, others were also talking about. In a weird way, if felt so liberating! That sense of not being in something alone, that others have found ways to overcome similar situations and have come through them to find solutions was amazing for a newbie to hear.

You hear the phrase “trial and error” thrown around a lot when it comes to Diabetes, and I really understood that so much more after this journey. A corner was well and truly turned for me during this week. I am now playing sports more regularly, because I feel more confident. Understanding food on the day of playing football is something that is so important. Seeing other people using the Dexcom looked brilliant. Once I finished my trial run, I missed it so much that I signed up for 12 months.

 

 

 

 

 

The whole experience was invaluable to me. I learned more in that week than I would have done in years studying books and speaking to specialists. Seeing people who regularly play sport and manage their Diabetes gave me so many tips and ideas that I use myself now. There really is no better experience than experience itself.”

Thank you to Jack for sharing his thoughts on how TDFC has helped him and the UK DiaEuro team in particular. If you want to follow Jack on social media you can find him on Twitter @DalstonGooner … If you want to know what’s going on at Arsenal FC Jack’s your man to follow!!

Food Series Part 1 – Healthy Eating: Getting the balance right

My name is Jo Hanna and I am one of the Diabetes Dietitians working at Poole Hospital but also a huge exercise enthusiast! I’ve been a Dietitian for 8 years now and working in diabetes for 5. Secretly I always wanted to be a Sports Dietitian working for Manchester United! I grew up playing football and most of my childhood was spent as the token girl in the team, even playing for Dorset under 12s. Football was my true passion but sadly for me at the time football was still considered a ‘boys sport’ and once I reached the age of 12 I was told by my school I could no longer play football with the boys. I was devastated by this at the time and although I got back into football at University it was too late for me so I ended up running instead. I have pushed myself in this area, winning 6 of the Dorset Road League races last year in addition to my greatest achievement, a sub 3 hour London marathon.

Exercise for me, as I’m sure it is for many of you is my stress release and plays a huge part in my self-esteem and social life. It therefore really saddens me that 36% of people living with type 1 diabetes view exercising to be a challenge. To be honest I’m surprised it’s not higher! I decided along with our consultant Mike Masding that it was worth trying to target this group in a specific exercise clinic to allow tailored advice around nutrition and insulin adjustment, to enable those struggling to enjoy their exercise and de-stress rather than the opposite. Training as I well know is challenging enough without throwing diabetes into the mix! I’m keen to ‘even the playing field’ in any way I can.

I decided I wanted to write for the TDFC to see if I can help advise the wider sporting community and given my passion for football in particular I thought this would be the perfect place. It’s inspiring to see the UK’s first all Diabetic Futsal team (Click for Players’ Blog) competing this summer as well as the results they achieved. I work with children and teenagers with diabetes too and feel these players are a great role model.

My aim is to write a different blog every few weeks with a few tips and hints to help you get your fueling right both pre, during and after. Often we tend to base our advice around timing and quantity of carbohydrates but as I have come to understand the quality of the carbohydrates and protein and fluid intake are also key components I would like to cover. I’m keen to help and advise in any way I can so please if you have any particular topics you would like covered just let me know.

Firstly today let’s consider your overall daily intake as it’s always best to review this whether you have diabetes or not if you’re serious about your sport. Often I’m finding overall carbohydrate intakes are inadequate as the focus tends to be around the actual activity itself. Football is a classic example of a sport that can actually result in quite stable readings at the time due to the fact there is a mixture of slower jogging and sprints. The bigger risk here is hypos after the game or training due to depleted glycogen and increased metabolism, this is a really important aspect to consider when avoiding the dreaded nocturnal hypos. To help avoid this ideally if you’re training regularly you need 50% of your intake to come from carbohydrates (including fruit).Protein should contribute approximately 25% of your diet (timing is key with this) and the other 25% should come from your vegetables and salad. Fat is likely to come alongside your carbs and protein intake but can also be a useful tool in helping to alter the timing of peak absorption of glucose from any carbohydrate. Don’t forget your fluid either as even if you have your glucose levels perfect if you’re dehydrated, even by 2% this will impair your performance.

Over my next blogs we can look at;

  • Carbohydrates-type and quantity pre, during and post (this might be a few blogs).
  • Protein -why it’s important and timing of this.
  • Fruit and vegetables-why these are important too
  • Fluid-getting this right

Feel free to contact me at Joanna.hanna@poole.nhs.uk