Guess what, it’s been a weird 18 months hasn’t it, but as the restrictions end and some form of normality returns it was great to get the message from TDFC HQ that the futsal sessions are back on and a couple of summer meet ups are in the diary. Get in!!
As many us will know (especially if you’re a parent or carer) you must wear different heads daily, nurse, best friend, coach, Darth Vader. All of which had to been worn in increasingly difficult lockdown circumstances. Having worn all of these (including the new Key stage 2 teacher head) I was driving down to Worcester for the session thinking I haven’t worn the futsal keeper/skipper one for over two years.
A light bulb moment that almost felt like imposter syndrome, as if I was stepping into someone else’s shoes. I’d felt a little like this going to the first ever meet up back in 2018 when I felt like the old guy who had come for the dads v lads’ game. Believe me that feeling disappeared almost instantly in 2018 and the same in 2021.
The reason why, it’s easy, it is the people. The strength and support of community is powerful. Something you don’t (or I didn’t at least) realise until you’re involved, meeting and listening to others, simply having a chat, a laugh or empathising with the issues they are encountering. The WhatsApp group that all who join TDFC are invited to has been fantastic in keeping in touch with everyone but meeting up with some old and new faces, getting the boots on and simply having a game, that is a life saver.
I have family down in Worcester, so we decided to make a day of the first session and catch up, so the Ward clan turned up on mass at Worcester FA HQ.
The meet up followed the usual routine the hello’s, how are you doing, nice to meet you, take the mickey out of each other and have a laugh (mostly at my lockdown barnet), yes Tob’s I know the barbers are open now but I’m going full Zlatan! 😊
There were loads of new faces and although I didn’t get to chat with everyone it was great to meet you all, apart from Bryn who megged me 3 times, you mate, can stay in Aberystwyth next session!
The presentation and discussion with Chris and Jon that opened the session was a real eye opener with the differing level of access to diabetic support across the country, be that physiological support, CGMs, pumps, and dietary & lifestyle advice offered was frighteningly varied, far from consistent and really not great to see. The tireless work Partha Kar and others are doing to remedy this is vital for people with type 1 across the country.
A special shout out to Mo Ismail, who has been an absolute legend throughout the pandemic and well ever since I’ve met him. His advice and guidance (he’s a qualified Pharmacist and T1D brother working in the NHS) on all the questions posted in the group has been a real source of inspiration and support and the recognition he received during the session is well deserved! Well done and thank you pal from us all.
After the presentation and discussion, it was down to the pitch for the futsal, but first media duties for me and Mo discussing the project with Active Herefordshire and Worcestershire, who have provided us with some great support to get back on our feet. It was great to chat about TDFC and the return to playing and training.
The training was great as usual (apart from the megs) and it’s always nice to learn as well as get chatting to Tom about Goalkeeping and his master’s Studies in the USA too!
I coach academy and grassroots football, so I am on a pitch most days of the week but being out there playing and being coached is such a release, you don’t know how much you miss it.
A nice end to the day was having my picture taken by Chris from Reaction Photography of me with Brighty and my boys all of us in TDFC kit, I think they are expecting to be on the flight to Bosnia now for the next DiaEuro.
It was great to be back to see some old and dear friends and make some new ones. I can’t wait to catch up with the rest of the lads and keep meeting new people within TDFC.
In a thousand different ways the day was a real family affair.
It’s been a long time since we’ve been able to write this, but…….. WE ARE BACK! This weekend coming, we will be resuming our Men’s Diabetes Futsal sessions at the Worcestershire FA headquarters after a gap of 15 months due to the impact of the Coronavirus pandemic.
It’s been a tough break for us all. We know so many of the group took a lot from the sessions in the past and we’re hoping to bring back all of that positivity, engagement and support to our upcoming sessions. We know there’s a lot of excitement amongst the ranks from existing and new players to the project so we can’t wait to get back out there!
We will be starting back on the 27th of June with another session planned in for the 25th of July as well so if you want to get involved please do get in touch!
For us these sessions will be about re-engaging with our community, getting our squad back together to play as well as welcoming new faces to the pitch. We should have a good laugh and a lot of fun which is what it’s all about.
We must also say a big thank you to The Tackling Inequalities fund created by Sport England and put into practice by Active Herefordshire and Worcestershire. They’ve supported us with funding and support to help get us back off the ground after what has been a really challenging period during the pandemic.
It’s going to be a really exciting month for us as the sessions get back underway whilst we also continue to grow the women’s arm of the Diabetes Futsal squads…. However, ahead of this first session we thought we’d invite one of the newest members of the community, who will be attending his first session this weekend, to describe how he’s feeling ahead of Sunday…. Over to you Bryn:
“I’m really excited to be finally meeting up with the lads from TDFC. Ever since I watched Chris’ story I just knew it was something I would love to be Involved in. So to be invited to training with them is really special.
I was so inspired by the work of TDFC I even held an active fundraiser for the charity through my sports coaching business ‘BMO Coaching’ – we managed to raise £377.50 for TDFC and £900 in total, which we shared with other local charities.
Living in the Welsh coastal town of Aberystwyth, I have only met a total of two T1D players that are still playing senior football so It’s going to be a fantastic experience playing / meeting with other T1 diabetics in a football environment.
I’m passionate about raising awareness and passing on knowledge about diabetes, especially throughout my area of Wales. I’ve been playing football with T1D for 20 years and I’m keen to show people that it doesn’t stop me from playing sport and doing the things I love.
The lads have been really welcoming on the group chat so I’m looking forward to a session with them to break the ice. “
Thanks for sharing your thoughts Bryn and isn’t it great to be back!
Hey! My name is Louise McCay and I am a 27-year-old type one diabetic with a passion for football & futsal.
At the age of 11 I was diagnosed with type one diabetes after my parents picked up on a dramatic change in my water intake. I had gone from having been forced to have to have a drink before school to literally downing pints after pints and never quite quenching my thirst. After a couple of days of monitoring this change in behavior my parents purchased a blood glucose meter and tested my bloods to find that they were 32 mmol. At this point we had very little knowledge of what this meant, how the body works and just simply the severity of high blood sugars. It didn’t help that I had ravaged through a bag of skittles after school too, so we decided to hold fire and test them again in the morning after fasting. Sure, enough when we tested them again in the morning, they were still super high, and it was an inevitable trip to the A&E…
“Can I still play football…?” – The first and only question I asked when the nurse broke the news of my Type 1 diagnosis to me. It may sound stupid to most of you considering the health implications of Type 1 Diabetes but at the age of 11 football was all I could think about and the thought of that being taken away from me tore me apart. This is why when I stumbled across The Diabetes Football Community (TDFC) I just HAD to get involved.
I have very recently become part of TDFC team to help focus on the women’s side of the game. The Diabetes Football Community is well established within the men’s game – driven and founded by Welsh Futsal International Chris Bright and I want to help make the women’s side just as established. I have joined Chris alongside Katie McLean, Lucy Wieland & Becky Upsher to help kick start and maintain TDFC Women’s.
I have played football since the age of nine with the majority of my childhood being spent at Watford Centre of Excellence before I set off to Bournemouth University where I continued to play. I now play locally for AFC Dunstable who currently sit in Tier 5 of women’s football as well as dabbling in futsal in recent months. When I was younger there was very limited attention and focus on women’s football as it was, let alone on type one diabetes in women’s football and until joining the team here at TDFC I have not knowingly come across another female player with type one. Without really realizing it at the time this made my whole experience in football different to the other girls around me, for many years I just wanted to play football and underestimated the impact my diabetes could have on my performance.
With so much more awareness and resources surrounding type one over recent years, I am learning so much more about control during exercise and more specifically during football. I believe that if there were resources and communities like TDFC around when I was younger it would have made a huge difference on both my control and performance. I would love to be able to make a difference and help other type one footballers excel at what they love most. I was so inspired by the stories, podcasts, resources and accomplishments of TDFC – which is why I got in contact with Chris.
The aim – Through TDFC Women’s we hope to raise awareness of Type 1 diabetes whilst also building a supportive and safe community for diabetics within football where you can meet other likeminded people. Our long-term aim of creating an all-female, all diabetic futsal team with the hope to enter competitions, inspire others and show the world that having diabetes doesn’t hold you back within sport.
Currently we are in the recruitment and awareness stage of the project which, as many others, has been on the back foot due to covid.
So, to kick start things, over the last few weeks we have:
– Set up our Twitter page @TDFCWomens which has already started to gain momentum and spread the word (go on… give us a follow!!)
– Created a core team to work with Chris and really bring the project to life
– In progress of planning our launch event!! Hoping to incorporate networking, learning and of course playing some ball – watch this space for more information and a pretty amazing venue.
Would you like to get involved!? We are actively looking for anyone who wants to get involved in any way, shape or form! Whether it be playing, coaching, helping out in the background or just being part of the online community.
If you want regular updates on what we have going on, have any questions or want to be part of the team, follow @TDFCWomens on Twitter or contact us by email – firstname.lastname@example.org
We look forward to hearing from you and are excited to watch the TDFC Women’s journey unfold…
To be honest, until I heard Stevie Ward talk about his struggles with Post-Concussion Syndrome on the Mantality podcast I hadn’t even considered talking about this….. Nor was I really ready to share what it’s been like, because to be brutally honest it’s been far from ok.
However, having heard him talk so well about the challenges and how it mimicked so much of my own experience, I felt empowered to get it off my chest as this subject hasn’t been spoken about anywhere near enough, especially within sport. As someone who’s used to dealing with an invisible condition on a daily basis, I thought I’d be relatively well equipped to cope but there was a key difference to this diagnosis from the off. This time I opened up from the off and told people what I was living with, a different approach to my type 1 diagnosis, but ultimately very quickly I was reminded why I adopted that approach before….
When people can’t see, feel or experience what you’re going through they find it hard to believe what you’re telling them. Throughout society there’s a distinct lack of empathy (in my opinion!), that ability to see the world through someone else’s eyes for just a minute. I think it’s a root cause of many many issues across the globe but this is slightly away from my point. It’s also had a huge impact on my life again coping with post-concussion syndrome ( a brain injury!).
I’ve had people almost patronise me, almost can’t believe I’m still talking about, think it’s not that serious, think I’m overdoing it and overall think I’m making a mountain out of a mole hill. Another invisible condition, something else people can’t see through my eyes for a moment and here we go again, another condition with stigma attached.
For me it again just demonstrates why people with hidden conditions like type 1 diabetes, don’t talk about it much in mainstream society. You’re made to feel as though you’re constantly the problem. I hear the lip service paid to the words diversity and inclusion all over the place in 2021 but until individuals become accountable for those words to themselves, how can those things really be achieved?
I wanted to make that point clear, that empathy can make all the difference and if you catch yourself making a pre-judgement of someone, see if you can just take a minute to look at the world through their eyes….. It might change everything.
But I want to talk about what the condition has been like as well, because it’s been awful at times and it needs more people talking about it.
So, since September 2020 I’ve been dealing with symptoms of post-concussion syndrome which started with not much more than being off balance for a header which then came off the wrong part of my head and followed with a number of other knocks in the same game, contributing to an initial concussion. But the concussion wasn’t immediate….
My symptoms didn’t start until 4/5 hours later….. I was just sat in the pub with my friends that evening and I suddenly felt incredibly tired and my brain was a bit foggy, whilst struggling to engage in the conversation around me. Luckily, we all headed off pretty early that night and I got home and went straight to bed not thinking too much about it, other than the fact I was a lot more tired than usual…. Then I woke up the next morning.
The first thing I noticed was that I’d slept for 9 hours without stirring, which is unusual for me. Following that I could tell I still felt extremely tired despite sleeping that long! I felt I could’ve slept another 3 hours easily. Both of these things really struck me… Then the really obvious issues began.
I didn’t quite feel steady on my feet, I mean I wasn’t falling over or tripping but I just felt a bit off, then I had this foggy way of thinking which affected my recall and ability to properly participate in conversation. Ultimately, I was struggling to process information and provide speech as easily as I had found it 24 hours before. I was also noticing that concentration and especially on screens, such as my phone or laptop would really flare up a headache and intensify the throbbing, pressurised feeling I had in my head. Alongside this was a feeling of nausea when I concentrated too much. This was the day after the first concussion.
I then woke up on Monday morning and felt much the same, with things ever so slightly improving but I needed to speak to my GP to understand what was happening. So I managed to get through and speak to them about what I was experiencing and through a telephone triage appointment I was diagnosed with mild concussion, no tests, no examination, all via the phone. As this was my first experience of concussion in my life, the lack of urgency or need to examine me, filled me with a view that it wasn’t too serious, and I’ll be ok in a few days. The advice was to rest and not do contact sport for 2 weeks. If things got worse, I was told to go to A&E to have a scan but as things improved I didn’t feel that it was necessary to do that. The key word was REST in the GP’s advice, but rest looks different to each person and without any sort of definition of what that looked like I chilled out for a few days, took time off work, didn’t really exercise and then gradually incorporated some of that back in, towards the end of the week. The very blasé view given at the start of my diagnosis filled me with an ill-informed opinion of the gravity of the situation and no real insight as to how to approach the next 2 weeks bearing in mind my personal situation. It could’ve been read out of a textbook. I now know that this was a huge mistake but I can’t turn back the clock…. I wish I could.
Needless to say, that 2 weeks after that first concussion I went back and started an FA Vase game. Looking back, I think I knew I wasn’t quite right but with it being a biggish game for the club and me being a senior player, I wanted to get out there and play. When you’re a competitor you always want to be out there. I played the full 90 minutes, we played really well, won the game 4-1 and after initially feeling a tiny bit rough, by the end I was good as gold, or so I thought. I had played the game with no head collisions or challenges and made 6 or 7 routine headers, so I thought I’d probably be ok as a result. But after the adrenaline subsided, the symptoms came on quicker. On the car in the way home (I wasn’t driving!), I could feel that the nausea was there with the fogginess and they were getting worse. This time I obviously knew what it was, so I accepted I was going to feel awful for a few days again and hoped that maybe after a month of not playing this time it’ll go back to normal….
I was obviously wrong… I went back to square -1!
The symptoms were worse than previously and because I was having to work to bring in money, and I wanted to try and keep my mental health in a good place by exercising too, I was struggling with making any progress as I wasn’t getting enough rest. I got better to a point after 2 weeks and then after that I had lingering reoccurring symptoms which affected me on a daily basis. It was worrying, frustrating, frightening and all the other emotions mixed in between.
After continuing like this for a month to 6 weeks, my anxiety about it reached the point where I needed some advice. I rang my GP again, I reached out on Social Media and I looked for anyone who could help. Coupling that with the November Lockdown and it was a really tough place!
I got some good advice and support which has helped to move me forwards and my symptoms have gradually lessened but I’m still not able to work at a full intensity with my exercise and I struggle with continuous screen work as it brings on a throbbing pain in my head and I can feel a little skippy or unbalanced but compared to October/November it’s a world apart. I need to look after myself for a moment and forget about playing sport, this is bigger than that.
But still to this day I’ve not been scanned, examined or seen in person at all regarding my concussion and my memory/ recall is just not as sharp as it was. I hope that one day it’ll come back to something closer to where I was but my recovery is still in progress and even recently took a bit of a hit after too much time spent at a screen working. I thought I was in a place where I was ready for it but in turns out I wasn’t! I heard Stevie say it and I resonate it with so much, the recovery just isn’t linear at all, one day I’ll feel like it’s disappeared and then another I’m really reminded it hasn’t!
I look back now and I know I should have stopped myself playing. I reflect on that every single day. I wished I’d taken things far more seriously and I wish that there was less stigma surrounding talking about brain injuries or mental health conditions within sport. It might have been the difference in me taking the time out to properly rest.
We can’t change that overnight but even if me just sharing this blog post and my experience can help one other person who may be going through this, has gone through this or may unfortunately have to face this in the future, at least through the dark times I’ve been through someone else might take some comfort.
A huge thank you to Stevie for sharing his experience so publicly, which has given me the courage to put mine out there, as writing some of this hasn’t been easy, especially when I’m still going through this. I hope to one day look back at this post and say I recovered. If you have never checked out Mantality before, you should! The work that Stevie and Natalie are doing is shedding a light on concussion specifically and mental health more broadly. It’s a fantastic project and it’s certainly supported and inspired me.
With the premier league recently introducing concussion substitutions and demonstrating a step forward around these types of injuries, more stories and experiences need to be shown as to how it effects everyday lives. It needs more awareness to end the stigma and allow people to feel comfortable talking about something so dangerous.
I have no idea if my Diabetes continues to play a part in my recovery or whether it had an impact in the concussion in the first place, but like with everything I’ve faced in my life, this challenge is one I’ve accepted and will continue to embrace.
I now advocate for Type 1 Diabetes and for greater awareness around the impact of concussion.
I would love to hear anyone’s thoughts on this subject and thank you for reading.
A summary of some of my symptoms below:
Immediate symptom: tired much earlier in the evening than I’d ever been before.
On and off symptom: Felt a little bit off balance.
Continued symptom: Working with screens would really upset my head. Whilst looking at them in the mornings before I’d got going would cause a headache which lasted for hours.
An immediate symptom and when I’ve done too much: Felt skippy, turning too quickly would set me off.
An early symptom and when I’ve done too much: Pressure in my head and a headache for quite a number of days.
An early symptom: Nausea, feeling a bit like being car sick or motion sick.
An early symptom and when I’ve done far too much: Foggy, I struggled to connect my brain to the conversation around me.
I even got my eyes tested to check that I wasn’t irritating my head with my eyesight.
When I exercised or ran too quickly, I’d irritate my symptoms and go backwards.
Immediate and continuous symptom: Forgetful – Forgetting names of people I always remembered previously and getting frustrated and worried/upset about noticing this. Just forgetting what I was doing a few days ago or situations I always remember.
Another leading member of The Diabetes Football Community and a veteran of the UK Diabetes Futsal squad wanted to share his views on 2020. Zak has been living a long way from home, with the pandemic unfolding in a completely different way in the country of his birth, to the country he’s been living in…. A really interesting insight from Zak and we want to wish you all a Happy New Year wherever you are in the world and thank you for all of your support. Over to you Zak:
“It’s obvious that many people will be glad to see the back of 2020. However, reflection is an important part of every cycle or transition to a new period.
And with any reflection, it is important to acknowledge the positives of the year just passed.
Despite challenging circumstances, I have seen so many friends on social media starting up a side-business this year, whether it be selling hand-made gifts, homemade cakes, or launching a company they had been thinking about for years, and had finally been given the time to turn a vision into action.
Secondly, I have seen some seriously impressive 5km, 10km and further run times from people who had barely ran those distances before. The ability to get out in the fresh air and to explore the local environment will always be free, and for that we should be grateful. It also shows how quickly we can improve at something if we just put the time and effort in.
My situation is different to most right now, as I moved to New Zealand at the end of 2019 from Sydney, where I had been working on an overseas visa for the previous three years. The events that were about to unfold meant that it turned out to be a fortunate decision in many ways, with New Zealand containing the virus for much of 2020. However, despite the relative freedom, it still affects me in a similar way to others as I don’t know when I can next fly home to see my family and friends (I was due to see them this Christmas).
The main challenge for me this year has actually been diabetes-related. The health care system here isn’t quite as advanced as in the UK, meaning diabetes care options are much more limited. For example, only one type of long-acting insulin is government funded (Lantus) and CGM is mainly self-funded here too. Due to my current visa status, I am not eligible for any discount on prescriptions. The full price of insulin, the thing that keeps me alive on a day-to-day basis is eye-watering at times, and certainly makes me feel some empathy for our friends across the Atlantic in USA, who deal with similar battles over the cost of their diabetes.
Despite these hurdles, I have taken a positive outlook and tried to address how I can combat this challenge. To save some money, I decided to cut back on a couple of other “luxury” expenses. However, I made sure I did not cut back on my diabetes care, as health is so important, therefore I tested as much as I usually would, despite the extra costs. This yielded a positive result, with my HbA1c resulting in 42 at my last check-up; the lowest it has been since diagnosis 14 years ago. I remain hopeful that my new visa will come through soon and that I can then access my insulin, test strips etc. at a more reasonable cost.
Looking ahead to 2021, our CEO at Sport Wellington summed it up quite well by wishing for a “dull and boring” 2021! With uncertainty set to continue for a while, “prepare for the worst, hope for the best” may be a good mantra to live by. For me personally, the current situation just re-iterates how happiness and health are essential to our livelihoods. So, I would encourage everybody to think about what makes them most happy? And think of how you can achieve this in whatever circumstances are thrown at you. And when we think about health, as people with Diabetes we have that extra aspect to think about; but remember that health is holistic and not just physical – mental, emotional, social and spiritual health are all contributors to our overall wellbeing.
Take care everyone and wishing you all a Happy New Year.
After Jon’s incredible commitment to the work of our cause he has recently been added to the Board of Directors at The Diabetes Football Community C.I.C after a recent organisational meeting… Congratulations Jon and following that he sat down to write his thoughts on what’s been going on for himself in 2020…
“2020. What a stinker of a year. Diabetes and football both suffered for me this year. It started off recovering after shoulder surgery in November 2019. January brought the first few football training sessions and I was finding my fitness again. Then I broke a rib training when an innocent collision with a team mate caused me a ridiculous amount of pain. So another recovery and just as I was getting started again, we entered lockdown! Roll on August when we started pre season training. It was going well and I’d played the first few games of the season when I had a nasty accident on my bike resulting in a horrible concussion, keeping me off football for another 10 weeks off after a month of constant headaches. On top of that, I’m also suffering with 2 frozen shoulders, which really limit the movement and impact massively upon my sleep every night (any advice welcome!) Frozen shoulders are another one of the added complications that people with Diabetes are prone to, with no known evidence as to why. Add to this the mental impact of working from home that so many of us have suffered with, and it’s not been great on that front.
Then there’s the blood glucose…..all the periods of inactivity make it harder to maintain tight control for me. Some days have been great, some awful! When you factor in the increase in body weight meaning it’s another factor to have to deal with when calculating the regular insulin, it’s been a tough battle, but one I’m determined to win.
So what about the positives? Our TDFC WhatsApp group has been far more active, with lots of advice and mickey taking going on as people are facing new situations and have more time on their hands. I also took on the role of updating the social media accounts during lockdown, so was responsible for posting and editing all the toilet roll challenge posts and the player profiles. While it was time consuming, it was also great to interact with so many people, and realise the difference that TDFC was making to so many. It was great reading the comments posted on the clips sent in, and the encouragement and advice that the community were offering each other.
I also got involved with Diabetes UK and a couple of their campaigns on being active with diabetes and diabetes and technology, and have featured on their website a few times, social media channels and recently in balance magazine.
I also recorded a podcast with a veteran of the podcast Chris Bright! We were lucky enough to be invited to do one with Stevie Ward, captain of Leeds Rhinos (my team!) and the charity he has set up to support means mental health, Mantality. We’ve had loads of positive feedback from it which is great to receive and if you haven’t heard it yet check it out by clicking here .
So 2021. Here’s hoping for a better year for sport and diabetes!”
it’s ok to not be ok and always reach out when things are tough… 2020 has been a year like no other and we just want to say we’re always here for anyone who needs to reach out. So many of us have had a tough year and we need to stick together.
2020 hasn’t been the year any of us expected and instead it has provided us with challenges that none of us could have imagined… It’s been tough for the entire world to come to terms with….. So what we’d like to do now is showcase how some of our community have been coping with the situation we’ve been confronted by. So if you’d like to share your lockdown or post lockdown story of how you’ve been dealing with the COVID19 crisis we’d love to hear from you!!! Send your stories in to us with your pictures and videos and we will get them on the website. We hope that by sharing your story it will help and inspire someone else who might be finding the situation difficult to cope with.
To kick us off we’ve got a story shared by Tim Ward (Our Men’s UK DiaEuro team Captain) about how he’s been adapting with COVID19 to coach children all whilst trying to keep himself safe after 40 years with type 1. No more words from us, over to Tim :
“The footballing world has always been a tricky one to navigate with Type 1 Diabetes, what are my blood sugar levels, have I got my glucose/Lucozade, what time did I eat, will I need something more at half time. The list goes on. Now as a coach it feels to me the bar has been raised. I now have eighteen 7 to 10 year olds to care for so I have to be on my game and touch wood, I’ve never had a hypo yet while coaching.
After the COVID-19 lockdown the academy (IFA) I work for started to run academy and pre academy sessions again (to the delight of the kids and the parents as a chance to burn off some pent up energy) in June after the FA guidance gave us guidelines to do so.
The restrictions including limits on player numbers attending, social distancing and hygiene, disinfection requirements were a needed headache especially for me being within the high risk group (44 years old, type 1 diabetic). But I’m fit and healthy so don’t put me down just yet. 😊
Every child and coach had their own station to place drinks, possessions etc and parents were asked to stand at the far end of the pitches where we trained, whilst being well aware of the requirements through WhatsApp messages and our Heja app.
As a group we designed some amazing sessions emphasising ball mastery and challenges which kept the kids entertained and making them competitive through time trials & races which mitigated the lack of competitive matches.
Thankfully we can now run normal (ish) sessions but the planning and organisation required in the beginning I feel has improved me as a coach. I spent hours reviewing all aspects of each session more thoroughly whilst spending more time reflecting to make each session a great one (still working on that).
As a diabetic of 40 years being prepared has always been part of my make up and the extra restrictions and planning required didn’t really alter my approach, get it done, crack on. Always making sure I’ve planned for my diabetes as well as the sessions, to ensure that me and the kids are as safe as we can be, so we can all enjoy what we love doing, playing football!”
Make sure you get in touch if you’d like to share your story.
I’m Jon Rosser, 27 years old from Bristol and have been a type 1 diabetic for 17 years. Being involved with TDFC has enabled me to link up with other diabetics of varying ages and share our experiences, however this is often very focussed on the present – what we arecurrentlydoing, learning or going through. Reading these blogs, I found gaining an insight into these people’s pasts and hearing of their journey has been really enlightening and valuable, even for someone who has already learned to an extent how to live with the condition. So the obvious next step was to try and somehow put down my story outlining the changes it has made to my life and the lessons I’ve learned in the hope that others can take something from it like I have done. So here goes…
My journey starts with diagnosis at the age of 10 and the very familiar story of the tell tale signs. I was always thirsty! I didn’t really notice this symptom but my dad whose late mother was a Type 1 noticed I was increasingly up and down to the kitchen tap, filling up pint glasses of water and knocking them back like no tomorrow. As a result of this I was back and forth to the toilet and it didn’t take long for him to step in. Looking back at it now I suppose I was quite fortunate that my dad noticed this going on and intervened pretty early as I can’t actually remember feeling too bad! He made me do a urine sample and booked me into the doctors. A quick ketone test and finger prick confirmed what my dad had feared and arrangements were made for me to forget about going back to school, pack a bag and get to the hospital. Being a 10 year old I can remember feeling a bit oblivious to what was actually going on, but I knew that something had ultimately shifted by the way my dad had reacted, he seemed gutted and spoke to me about how we were going to go about telling my mum when we got home. I had never even heard of diabetes and was still completely naive about what was to come.
A few hours later I was at Southmead Hospital being admitted into the children’s ward. A flurry of nurses were showing me my bed, where the toilets were, where the common room was, a full on tour of the facilities and this was the point where I kind of started to realise that I was here to stay for a while and this whole situation was going to be the start of something that was going to change my life forever. I was on this ward for 5 days and during this time I had to learn the skills that would ultimately keep me alive. One event that sticks in my mind from this period was when a 16 year old boy got rushed into the booth next to me. Other kids on the ward were all chatting to their neighbours so I welcomed a new face to hopefully ease the boredom. However on admission his curtains were shut and I remember feeling that the nurses were actively discouraging me from trying to say hello, and no sooner had he arrived he was gone again. I didn’t find out until years later that this guy was also a diabetic and had not woken up one morning due to having a serious hypo during the night. Looking back now I realise it was the right call not to let a newly diagnosed 10 year old get wind of this! The ward had a classroom where I spent a few hours a day which was nice as it got me out of my bed, but I remember being pulled out at regular intervals to be finger pricked and stuck with syringes and this was another point where I started to realise this was going to be the new normal from now on, and I didn’t like it one bit. How was this going to work at my own school? What about at football? I was bang into scouts at this age so how will I go on the camps? Can I even still do all these things? The answer of course was yes, but the anxiety and worry about all of this was something I will always remember.
Fast forward a bit and I’d settled into my new routines, teachers and coaches had all been really engaged in making things as easy as possible for me. But it wasn’t all plain sailing by any means. I was initially put on the 2 injections a day regime and it wasn’t long before I felt frustrated at the restrictions of this, especially when transitioning to secondary school. Having to inject my insulin at the same time morning and evening, and knowing I HAD to also eat at these times each day meant things such as after school sports fixtures, clubs, and even just hanging out with friends would all have to be arranged around my insulin and meals. It took so much planning and at times I found it exhausting and stressful.
I want to shift the focus largely on how I’ve dealt with my diabetes within football and sport and I guess I’ve never let it stop me, but there have been times when I felt it has hindered me. At the age of 15 I joined Forest Green Rovers from just previously playing local junior football, and the training stepped up which was great! But it was a much more competitive environment and although to a certain extent I had always tried to keep my condition under wraps (which seems to be a common theme from guys writing these blogs), in this environment I found myself doing this even more. I didn’t want to show any weakness and felt an obligation to keep up with the standards being set, often not recognising that in order to do this I needed to take time out of sessions to take on sugar or test my levels. Occasionally this led me to playing on through hypos and my standards suffered as a result. Sometimes coaches and players would confuse my hypo reactions with being lazy or uninterested, and I found trying to explain what was actually going on sounded like excuses. The fact I was still on the 2 injections a day meant that I would get home from school, have to hastily eat a carby meal (to avoid going low during training) before heading straight off to train on a full stomach which personally my body did not deal well with – I’d feel heavy and slow. It was the same with the games – we played in a floodlit league so fixtures would be midweek evenings so my preparations would never be ideal. These pressures ultimately led me to change onto the basal bolus regime and immediately after I did that I saw the benefits, not just with my football but with my day to day life. The flexibility was something I’d been longing for and I continued to play for 2 more successful seasons at Forest Green, winning individual awards at presentations and I remember feeling really proud and realising at this point that I had gotten the upper hand on my diabetes and vowed to never let it beat me.
Another event that always sticks out to me as a time where I felt I overcame the urge to keep quiet and let my diabetes win was in a tennis tournament when I was about 17. Over the course of about 6 weeks I had played a match every week and got through to the final without any diabetes related issues. In this final however I struggled from the start. There were a fair few people watching and I was putting my performance down to nerves and threw away the first set in record time. On the switch around I asked the umpire for 10 minutes just to check my sugars which for me at the time took a lot of courage, I was 3.1. I remember sitting there in front of the crowd openly testing my sugars and taking on food which is something at that age I always felt really self conscious doing. My opponent was getting restless as were his supporters watching on but I stabilised my levels and got back out there… I smashed him in the next 2 sets to win the tournament. Like I said this was a real moment of realisation that I could achieve things in sport regardless of having this condition and getting dealt hypos, and it gave me confidence to keep aiming high.
The next major milestone for me was gaining a place at Plymouth University. Leaving the family home to move to a new city with new people, new surroundings and new routines was pretty daunting, and when you throw diabetes into the mix it was quite a challenge. I was having to shop and cook for myself and it took a while for me to get used to having full responsibility for what I put into my body in order to maintain good control of my condition. Students’ diets are notoriously not the best so resisting the urge to follow examples of quick, convenient, often high sugar and high carb meals set by my new found friends was important and something I’m glad I focussed on, as it set me up well to continue to control my diabetes successfully. I quickly got involved with the Uni football club and was playing regularly, although the routines and rituals of a university football club were much different to what I was used to. One thing I struggled with was the fact that if we’d win on a Wednesday afternoon (and often even when we lost!) after the game it was shirt and tie and straight to the bars. A lot of these guys wouldn’t take time out to eat post match, and especially after a good win, wouldn’t go home until the next morning. Being diabetic, I felt a bit of a kill joy having to temporarily leave a buzzing group of lads for a few hours to go and get some food of substance and make sure I recovered well in terms of glucose levels, especially when there was alcohol involved! This was a small price to pay though as I found if I put my diabetes first, I would have a much better time celebrating later on knowing I’d done what I needed to do in order for my sugars to behave (as well as they could) during a night out in Plymouth’s finest establishments. These were some of my best times playing football, the social side of the club was immense and winning a varsity and a cup in my 3 years at Plymouth are things I remember for the achievements and not how my diabetes hindered me!
The most recent landmark in my footballing life has most definitely been getting involved with TDFC. I remember turning up to the first session and experiencing an environment where everyone there would openly discuss the condition, openly test their sugars and inject insulin, there was an underlying bond straight away. I had been so used to dealing with diabetes in a changing room and on a pitch on my own – it was solelymyproblem, and to feel that problem shared by everyone else there was so refreshing. No feeling guilty for taking time out to test sugars, no strange looks for sticking a needle in my arm, just a feeling of understanding and support. I have played in both DiaEuro tournaments that the UK team has entered in Bratislava and Kiev, and both times were amazing experiences. Playing against some top nations and top players gives you that drive to improve and I feel since being introduced to Futsal (which I had never played before TDFC) I have learned and improved my game as well as my control of my diabetes. I have also found myself transitioning skills I’ve learnt from Futsal into my 11-a-side game which is great! I’ve also found my Saturday team mates have taken a real interest in what I’ve been involved with regarding TDFC, seeing it on my social media and things like that. One of the lads has even adopted a pre match ritual of eating glucose tablets with me before kick off and now swears by it!
So that’s my story (so far!) of my life, football and sport with type 1 diabetes. My message to anyone maybe struggling to adapt to life and sport with diabetes is not to hide it, be open and honest about the problems you may encounter, it’s not a weakness! Although it presents challenges I feel diabetes has made me stronger in many ways, especially with discipline and will power… so keep at it!
The new year is always a chance to take a fresh look at things and alter the path or journey we’re on…. At the start of every year I try to look at the context I’m surrounded by and set myself new goals or challenges which drive my motivation for what’s ahead.
But what I thought I’d do, to help some of you out there who might be thinking about starting a journey with Football/Futsal & Type 1 Diabetes or taking it up a level, is give you some insight around how I manage my condition. 2019 was a pretty good year for me with my sport so it’s probably a good time to share with you some of the ways I go about trying to get the best from my glucose levels to allow me to play to the best of my ability.
So I thought I’d outline some of the ideas, most of which I shared at the #SporT1Day conference, to hopefully provide some insight and support to anyone out there who might need it.
Here’s my general thoughts on what I try to do or think about for my management before any sport or exercise:
A plan of how to approach the sport/exercise/game – What type of exercise is it (interval, aerobic, anaerobic etc)? Intensity? Duration? Time of day? Timing of meals? Last Bolus?
Consistency of Routine – If it’s working, I keep using it.
Good night’s sleep.
Plenty of time between pre match meal insulin dose and starting the game (3 hours + ideally)
Lots of Testing – As much as you can or utilising a CGM such as the Dexcom G6 which has been the best I’ve used so far. This way you can learn about the effects of types of exercises, intensities, durations etc on your glucose levels.
Small adjustments of insulin & carbs to try and find the right glucose level for your best performance or for you to just enjoy it.
I aim for 7-8 mmols throughout the duration of any game to try and achieve my best performances.
Having my quick acting hypo treatments and insulin available and accessible for any adjustment I might need.
Consider the weather… Is it cold or hot? They usually play a part in how our glucose levels respond.
Am I in good general health? Have I been ill recently? Can play a part in less predictable glucose levels.
Keeping on top of my hydration… I find my levels drop more quickly if I’m dehydrated.
Stress Levels – Do I feel nervous? Am I calm? Sometimes bigger games cause a bigger adrenaline spike in glucose levels. Do I need to account for this?
Have I fuelled up well before the exercise? Have I eaten enough calories/carbs in general for the energy I’m going to expend.
Always consider how much activity you’ve been doing around the particular sport or exercise you’re about to take part in, because the more active you are, the more sensitive to insulin you are!
Below are some of the generic details about my day to day management…
• My daily carb intake is around 180g. ( + or – depending on activity levels). I’m on MDI and CGM, No pump.
• Carb Ratios are roughly 1:15 g breakfast, 1:10g lunch, 1:7.5 g for dinner.
Much of what I’ve said above is linked to a generic way I tackle my Football or Futsal but there are some subtle differences I employ between the two because the intensity of the two sports is very different. This has a drastic impact on the reaction of my glucose levels and the way I manage them during and afterwards especially. So I’ll show you some of the key differences below:
Football (Example is preparation towards a Saturday 3pm Kick Off)
Aiming to be 7-8mmols to start the game and throughout.
Ensuring my pre-game meal & bolus is 3 hours before kick off.
Reducing pre-game meal bolus by roughly 10%.
Half time testing and adjusting based on level. If I’m below 9mmols I’ll take on 10g of carbs to cater for the second half dip and even more if my levels are below 5mmols. These choices very much depend on length of time you’re going to play and how hard the game is. If it’s a tough game with a lot of chasing then I sometimes have an extra 5-10g of carbs. If I’m over 13mmols I’ll take on a unit of insulin.
Post game meal I reduce my bolus by 25-50% depending on how much I’ve played and the intensity of the game.
I try to make my post-game meal both full of protein and carbohydrate to help with the recovery of glycogen stores and muscle growth/repair.
I will have a bed-time snack of 10-15g without a bolus to try and alleviate the nocturnal hypo risk. (If I’ve played a whole 90 minutes, I’ll scale all of this back if I’ve played less than that)
I don’t adjust my basal insulin because I use Tresiba, which is an ultra-long acting insulin and this will have no effect on my risk of a nocturnal hypo.
I like to start the game at 5mmols if I can, because despite being lower, I’m still likely to need a small bolus before the game or at half time to manage my levels rising as a result of the higher intensity and expected spike.
Because of the roll on, roll off substitutions within Futsal, there’s a lot more opportunity for adjustment. So I always come off from the court and immediately check my CGM and look for the trend arrows and glucose level.
I always tend to carry a bit of short acting insulin in my system because for me within Futsal, knowing I have frequent breaks and the likely impact of the intensity (levels rising), I’d rather be lower and taking on some glucose, as it reacts quicker than my insulin, than being too high and waiting for my insulin to kick in. The important factor for me is having a glucose level which allows for performance, not the number of adjustments I have to make.
I will always have a protein bar/snack post game of around 20g of carbs because I tend to have a sharp drop in my levels post game. Probably as a result of carrying short – acting insulin during my sport and the intensity.
I don’t make any bolus adjustments post – game to my meals. Again I’ll eat a meal heavy in protein and carbohydrate.
No basal adjustments as a result of using tresiba.
If I want a bed-time snack I’ll bolus for it with a small reduction of 25%.
I really hope that this is a useful post for people out there trying to tackle football or futsal for the first time, or who might be finding it challenging currently. If something from this article helps someone out there get more from their performance or just allows them to enjoy it more I’ll be happy!! Please give it a share if you can because I’m sure you’ll know someone who may also find this useful.
I’ve also added my slides from the #SporT1Day Conference to the bottom of this post if you wanted to see what I shared on the day, which also has much of this detail in.
Thanks for reading and I wish you all a happy and healthy new year! Please also be aware of the below disclaimer.
Disclaimer – Always remember that this a personal perspective and is not endorsed by a medical professional. So any advice or ideas you take from this post is at your own risk and should always be cleared by your diabetes team.
We’ve had some incredible things going on within the TDFC family during 2019 and I’m immensely proud of what we’ve achieved together.
For the last couple of years I’ve written a blog to try and summarise the progress that we’ve made during the previous year because as much as I firmly believe in focusing on the present, to ensure we don’t stand still, it’s also important to celebrate and remind ourselves of the successes along the way.
Firstly, I want to say a massive thank you to everyone who helps to make this community what it is. Those who’ve stepped forward to lead on particular projects and areas which needed support I’ll never be able to thank you enough. You know who you are and I hope you’ve enjoyed the opportunity to take our community to the next level. We don’t stop there though…. 2020 has so many exciting ideas that we need our current team and others to step forward to make it happen.
Before I start recapping, I’d like to say a big thank you to our sponsors Dexcom, Lift, JL property solutions ltd and our close partner the University of Worcester. Without your support none of what we’ve done in 2019 would’ve been possible. Thank you for everything and I hope we can continue what we’ve started as we enter 2020 and the next decade.
Now, I’ll try and talk about some of the big moments in order of how they happened throughout 2019….
So, to kick it off we had the beginnings of TDFC London. It is our affiliated project that takes the ethos & ideology of what TDFC is all about and localises it to the area of London. Having come up with the idea for this alongside Bryn during DiaEuro 2018 it was amazing to get this off the ground in February 2019. This was the first ever all type 1 futsal or football team to take part in a mainstream Futsal league when we entered the London Futsal League in May 2019. An amazing statement which I know the boys are extremely proud of. It was a special moment seeing the lads take on this enormous challenge. I was just delighted I could be a part of 2 of the 3 wins TDFC London picked up in their first season! The first time I was involved in a win was momentous, not only because of the statement it makes, but because we did it against another disability team. We played against a deaf team, which was another bit of history, having our 2 teams battle it out in a mainstream futsal league. It’s been a fantastic start for this project and as the numbers of people interested continues to grow it’s looking like a really exciting 2020. We must thank Havas Lynx for their support for the team in 2019 as we got the team off the ground. Make sure you visit our “Find Your Local Community” page if you’re interested in what they’re up to.
Alongside delivering our own projects we try our best to network at some of the diabetes events and projects across the country. We’ve grown the awareness of our community by attending these events and in 2019 we tried to ensure that we continue to reach further and engage with members of the community interested in our journey. Having our stand at Talking About Diabetes (TAD), the rise of the machines 2 (RoTM 2) and EXTOD (Exercise for Type One Diabetes) allowed us to do just that. It’s always amazing to get a feel for what’s going on in the community that supports us. We’ve been lucky enough to exhibit and share at conferences like these for the last 2 years and we’re very grateful for every chance we get to do this.
With the unique nature of some of the work we’ve had the pleasure of creating, we’ve also had more interest than ever in coming to take a look at what we’ve been up to in 2019. This has led to some amazing awareness for The Diabetes Football Community which we’ve all been incredibly proud of. I just want to mention a few which I think have captured the reason we exist, been seen by most people and have probably resonated furthest with the community.
When we spoke with Jonny Labey in the early part of 2019, it was a chance to show him what we were up to for his new Know Your Type vlog. So, we invited him along to one of our UK Diabetes Futsal Training days. Jonny is a former Eastenders actor, West End performer and was recently on The X Factor Celebrity series but the most important thing is obviously that he lives with type 1 diabetes too. We didn’t just get him in to film what we were up to and interview myself and the team, we had him playing as well!!! Jonny was top class on the day and got stuck into the friendly match we had planned. You can see the feature Jonny created on the below link:
Then as we headed towards our big summer project, which aims to inspire and raise awareness of our condition we had another bit of great news in showcasing our work. So as our UK male Diabetes Futsal squad were preparing for Kiev, Ukraine and a week away at the DiaEuros (European Futsal Championship for people with diabetes, www.diaeuro.org), the local BBC Midlands Today team got in touch to come and feature the squad’s final training session. It was our first exposure on the Television…. I was made up for our project and all of the team involved. Showcasing what people with Diabetes can do in the form of our Futsal team goes some way to disproving many of the stereotypes and stigma which surrounds the word Diabetes, so to have our story shared to a mainstream audience on this scale was incredible. If you want to check it out look on the below link:
Also, during the final days of build-up to DiaEuro we had the honour of having 2 England Cricket Legends announcing our squad for us… Again another fantastic piece of awareness for TDFC during the Cricket World Cup 2019. I know some of the lads were big cricket fans so to have these guys read out their names to represent the UK’s All Diabetes Futsal team was a huge honour for them before they’d even kicked a ball. A huge thank you to Michael Vaughan and Jimmy Anderson (And Tim Peach for organising it!) for doing this for the team and the project, it means a lot and will be something we all look back upon with our smile on our faces…. check it out below:
Then of course there was the experience of the tournament itself…. What a spectacle it is for diabetes. I wish more could be made of the journey, the teams and the showcase for the condition. It’s a special opportunity to represent your country and your condition…. One which I’ve had the pleasure of doing on 2 occasions now and with this team I hope I’ll be able to continue to do so in whatever capacity that is for a good while to come…. Unfortunately, I won’t be able to play forever!!!! I won’t talk too much about it as I wrote down my thoughts on the below blog post, but it’s without doubt one of the biggest highlights of 2019:
As we arrived home from the championships, I knew something pretty big was also on the horizon but I was sworn to secrecy for at least 2/3 months prior to it happening…. A big moment for me, a big moment for TDFC but an even bigger moment for type 1 diabetes in sport & physical activity. Sport England in combination with the Richmond Group of charities had decided to create a national campaign to attempt to increase the numbers of people exercising whilst living with chronic health conditions. The #WeAreUndefeatable campaign is the first time in my lifetime I’ve seen a concerted effort to promote people living with health conditions into physical activity (Also the first time I’d seen anyone injecting insulin on TV!). For someone who’s always shared a love of exercise with my chronic health condition, this has been an incredibly long time in coming, but I’m so pleased that the emphasis is there and it’s had a national spotlight. I was obviously incredibly honoured to have been featured in the campaign, to represent Type 1 Diabetes, but for me it’s just another chance to change perceptions, stereotypes and the stigma I’ve faced in sport since the day I was diagnosed. My story embedded within the campaign is just a strand in the fabric of the overall picture of what’s happening. The winds of change are blowing and I believe our work is certainly contributing…. Thank you to all of the #WeAreUndefeatable team for doing such an amazing job with the campaign and my story. I do find it tough to watch… Talking about the pain I felt as a kid gets me every time but this creates the power within the message. My condition hasn’t stopped me from enjoying my sport and nor should it. I hope this comes across. If you want to check out the TV advert you can find it on the below link:
Alongside our own pride in the work we do it’s also been amazing to receive our first award/accolade during 2019… It’s never something you set out to do when you begin a journey within a project like ours but nevertheless it’s incredibly humbling to receive an award in recognition of the hard work the project has put in. Earlier this year we received the Grassroots Project of The Year from the Worcestershire FA in acknowledgement of the impact we’re having across the county for Diabetes in Football. A list of the County’s award winners for 2019 can be found on the below link:
Then finally, we had the incredible #SporT1Day 2019 conference held at the University of Worcester. Another massive highlight in the year as we work alongside 1BloodyDrop to create the only conference focussed on type 1 diabetes in sport and exercise, created by people living with the condition. It’s proven to be a huge success with many of the diabetes community and we can’t wait to see where this ends up. It was a fitting way to celebrate World Diabetes Day 2019 and a fitting way to finish up our major projects for the year. If you want to read up on what happened at the conference head to the below link:
As with anything in life, as much as I want to ensure we don’t forget the incredible things we’ve done I’m also conscious we need to look at the things to come…
On the horizon for 2020 are a number of new ideas and projects to compliment our existing ones. We’re in the midst of starting up our Women’s Diabetes Futsal project led by Katie McLean which will look to mirror our successful Men’s project. We will be finally getting to our Kid’s sessions in partnership with the Worcestershire FA after securing a slot on their new 3G astro turf facility in 2020, as well as looking at a project that moves around the country in combination with the growth of our local community hubs. It’s an exciting time to see where the next turn on this journey of ours takes us.
An incredible 2019 which took TDFC up a notch, and with the help of everyone involved in our wonderful project, we hope to go up another level in 2020. Please keep sharing, liking, retweeting, tweeting, commenting on our work and helping in any way you can, it all helps. If you’d like to get involved in what we’re up to we’d love to hear from you so please make sure you send us an email if you feel like that’s you.
It’s an honour and privilege to be leading TDFC into 2020. Single handedly the best decision I ever made was creating this project and it means the world to have so many people sharing the journey.