Jon Rosser: My life with Type 1 Diabetes

I’m Jon Rosser, 27 years old from Bristol and have been a type 1 diabetic for 17 years. Being involved with TDFC has enabled me to link up with other diabetics of varying ages and share our experiences, however this is often very focussed on the present – what we are currently doing, learning or going through. Reading these blogs, I found gaining an insight into these people’s pasts and hearing of their journey has been really enlightening and valuable, even for someone who has already learned to an extent how to live with the condition. So the obvious next step was to try and somehow put down my story outlining the changes it has made to my life and the lessons I’ve learned in the hope that others can take something from it like I have done. So here goes…

My journey starts with diagnosis at the age of 10 and the very familiar story of the tell tale signs. I was always thirsty! I didn’t really notice this symptom but my dad whose late mother was a Type 1 noticed I was increasingly up and down to the kitchen tap, filling up pint glasses of water and knocking them back like no tomorrow. As a result of this I was back and forth to the toilet and it didn’t take long for him to step in. Looking back at it now I suppose I was quite fortunate that my dad noticed this going on and intervened pretty early as I can’t actually remember feeling too bad! He made me do a urine sample and booked me into the doctors. A quick ketone test and finger prick confirmed what my dad had feared and arrangements were made for me to forget about going back to school, pack a bag and get to the hospital. Being a 10 year old I can remember feeling a bit oblivious to what was actually going on, but I knew that something had ultimately shifted by the way my dad had reacted, he seemed gutted and spoke to me about how we were going to go about telling my mum when we got home. I had never even heard of diabetes and was still completely naive about what was to come. 

A few hours later I was at Southmead Hospital being admitted into the children’s ward. A flurry of nurses were showing me my bed, where the toilets were, where the common room was, a full on tour of the facilities and this was the point where I kind of started to realise that I was here to stay for a while and this whole situation was going to be the start of something that was going to change my life forever. I was on this ward for 5 days and during this time I had to learn the skills that would ultimately keep me alive. One event that sticks in my mind from this period was when a 16 year old boy got rushed into the booth next to me. Other kids on the ward were all chatting to their neighbours so I welcomed a new face to hopefully ease the boredom. However on admission his curtains were shut and I remember feeling that the nurses were actively discouraging me from trying to say hello, and no sooner had he arrived he was gone again. I didn’t find out until years later that this guy was also a diabetic and had not woken up one morning due to having a serious hypo during the night. Looking back now I realise it was the right call not to let a newly diagnosed 10 year old get wind of this! The ward had a classroom where I spent a few hours a day which was nice as it got me out of my bed, but I remember being pulled out at regular intervals to be finger pricked and stuck with syringes and this was another point where I started to realise this was going to be the new normal from now on, and I didn’t like it one bit. How was this going to work at my own school? What about at football? I was bang into scouts at this age so how will I go on the camps? Can I even still do all these things? The answer of course was yes, but the anxiety and worry about all of this was something I will always remember. 

Fast forward a bit and I’d settled into my new routines, teachers and coaches had all been really engaged in making things as easy as possible for me. But it wasn’t all plain sailing by any means. I was initially put on the 2 injections a day regime and it wasn’t long before I felt frustrated at the restrictions of this, especially when transitioning to secondary school. Having to inject my insulin at the same time morning and evening, and knowing I HAD to also eat at these times each day meant things such as after school sports fixtures, clubs, and even just hanging out with friends would all have to be arranged around my insulin and meals. It took so much planning and at times I found it exhausting and stressful. 

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I want to shift the focus largely on how I’ve dealt with my diabetes within football and sport and I guess I’ve never let it stop me, but there have been times when I felt it has hindered me. At the age of 15 I joined Forest Green Rovers from just previously playing local junior football, and the training stepped up which was great! But it was a much more competitive environment and although to a certain extent I had always tried to keep my condition under wraps (which seems to be a common theme from guys writing these blogs), in this environment I found myself doing this even more. I didn’t want to show any weakness and felt an obligation to keep up with the standards being set, often not recognising that in order to do this I needed to take time out of sessions to take on sugar or test my levels. Occasionally this led me to playing on through hypos and my standards suffered as a result. Sometimes coaches and players would confuse my hypo reactions with being lazy or uninterested, and I found trying to explain what was actually going on sounded like excuses. The fact I was still on the 2 injections a day meant that I would get home from school, have to hastily eat a carby meal (to avoid going low during training) before heading straight off to train on a full stomach which personally my body did not deal well with – I’d feel heavy and slow. It was the same with the games – we played in a floodlit league so fixtures would be midweek evenings so my preparations would never be ideal. These pressures ultimately led me to change onto the basal bolus regime and immediately after I did that I saw the benefits, not just with my football but with my day to day life. The flexibility was something I’d been longing for and I continued to play for 2 more successful seasons at Forest Green, winning individual awards at presentations and I remember feeling really proud and realising at this point that I had gotten the upper hand on my diabetes and vowed to never let it beat me.

Another event that always sticks out to me as a time where I felt I overcame the urge to keep quiet and let my diabetes win was in a tennis tournament when I was about 17. Over the course of about 6 weeks I had played a match every week and got through to the final without any diabetes related issues. In this final however I struggled from the start. There were a fair few people watching and I was putting my performance down to nerves and threw away the first set in record time. On the switch around I asked the umpire for 10 minutes just to check my sugars which for me at the time took a lot of courage, I was 3.1. I remember sitting there in front of the crowd openly testing my sugars and taking on food which is something at that age I always felt really self conscious doing. My opponent was getting restless as were his supporters watching on but I stabilised my levels and got back out there… I smashed him in the next 2 sets to win the tournament. Like I said this was a real moment of realisation that I could achieve things in sport regardless of having this condition and getting dealt hypos, and it gave me confidence to keep aiming high. 

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The next major milestone for me was gaining a place at Plymouth University. Leaving the family home to move to a new city with new people, new surroundings and new routines was pretty daunting, and when you throw diabetes into the mix it was quite a challenge. I was having to shop and cook for myself and it took a while for me to get used to having full responsibility for what I put into my body in order to maintain good control of my condition. Students’ diets are notoriously not the best so resisting the urge to follow examples of quick, convenient, often high sugar and high carb meals set by my new found friends was important and something I’m glad I focussed on, as it set me up well to continue to control my diabetes successfully. I quickly got involved with the Uni football club and was playing regularly, although the routines and rituals of a university football club were much different to what I was used to. One thing I struggled with was the fact that if we’d win on a Wednesday afternoon (and often even when we lost!) after the game it was shirt and tie and straight to the bars. A lot of these guys wouldn’t take time out to eat post match, and especially after a good win, wouldn’t go home until the next morning. Being diabetic, I felt a bit of a kill joy having to temporarily leave a buzzing group of lads for a few hours to go and get some food of substance and make sure I recovered well in terms of glucose levels, especially when there was alcohol involved! This was a small price to pay though as I found if I put my diabetes first, I would have a much better time celebrating later on knowing I’d done what I needed to do in order for my sugars to behave (as well as they could) during a night out in Plymouth’s finest establishments. These were some of my best times playing football, the social side of the club was immense and winning a varsity and a cup in my 3 years at Plymouth are things I remember for the achievements and not how my diabetes hindered me!

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The most recent landmark in my footballing life has most definitely been getting involved with TDFC. I remember turning up to the first session and experiencing an environment where everyone there would openly discuss the condition, openly test their sugars and inject insulin, there was an underlying bond straight away. I had been so used to dealing with diabetes in a changing room and on a pitch on my own – it was solely my problem, and to feel that problem shared by everyone else there was so refreshing. No feeling guilty for taking time out to test sugars, no strange looks for sticking a needle in my arm, just a feeling of understanding and support. I have played in both DiaEuro tournaments that the UK team has entered in Bratislava and Kiev, and both times were amazing experiences. Playing against some top nations and top players gives you that drive to improve and I feel since being introduced to Futsal (which I had never played before TDFC) I have learned and improved my game as well as my control of my diabetes. I have also found myself transitioning skills I’ve learnt from Futsal into my 11-a-side game which is great! I’ve also found my Saturday team mates have taken a real interest in what I’ve been involved with regarding TDFC, seeing it on my social media and things like that. One of the lads has even adopted a pre match ritual of eating glucose tablets with me before kick off and now swears by it! 

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So that’s my story (so far!) of my life, football and sport with type 1 diabetes. My message to anyone maybe struggling to adapt to life and sport with diabetes is not to hide it, be open and honest about the problems you may encounter, it’s not a weakness! Although it presents challenges I feel diabetes has made me stronger in many ways, especially with discipline and will power… so keep at it!

Thanks all!

Jon

Instagram: @rossergram

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Managing Type 1 Diabetes for Football & Futsal in 2020…

The new year is always a chance to take a fresh look at things and alter the path or journey we’re on…. At the start of every year I try to look at the context I’m surrounded by and set myself new goals or challenges which drive my motivation for what’s ahead.

But what I thought I’d do, to help some of you out there who might be thinking about starting a journey with Football/Futsal & Type 1 Diabetes or taking it up a level, is give you some insight around how I manage my condition. 2019 was a pretty good year for me with my sport so it’s probably a good time to share with you some of the ways I go about trying to get the best from my glucose levels to allow me to play to the best of my ability.

So I thought I’d outline some of the ideas, most of which I shared at the #SporT1Day conference, to hopefully provide some insight and support to anyone out there who might need it.

Here’s my general thoughts on what I try to do or think about for my management before any sport or exercise:

  • A plan of how to approach the sport/exercise/game – What type of exercise is it (interval, aerobic, anaerobic etc)? Intensity? Duration? Time of day? Timing of meals? Last Bolus?
  • Consistency of Routine – If it’s working, I keep using it.
  • Good night’s sleep.
  • Plenty of time between pre match meal insulin dose and starting the game (3 hours + ideally)
  • Lots of Testing – As much as you can or utilising a CGM such as the Dexcom G6 which has been the best I’ve used so far. This way you can learn about the effects of types of exercises, intensities, durations etc on your glucose levels.
  • Small adjustments of insulin & carbs to try and find the right glucose level for your best performance or for you to just enjoy it.
  • I aim for 7-8 mmols throughout the duration of any game to try and achieve my best performances.
  • Having my quick acting hypo treatments and insulin available and accessible for any adjustment I might need.
  • Consider the weather… Is it cold or hot? They usually play a part in how our glucose levels respond.
  • Am I in good general health? Have I been ill recently? Can play a part in less predictable glucose levels.
  • Keeping on top of my hydration… I find my levels drop more quickly if I’m dehydrated.
  •  Stress Levels – Do I feel nervous? Am I calm? Sometimes bigger games cause a bigger adrenaline spike in glucose levels. Do I need to account for this?
  • Have I fuelled up well before the exercise? Have I eaten enough calories/carbs in general for the energy I’m going to expend.
  • Always consider how much activity you’ve been doing around the particular sport or exercise you’re about to take part in, because the more active you are, the more sensitive to insulin you are!

Below are some of the generic details about my day to day management…

• My daily carb intake is around 180g. ( + or – depending on activity levels). I’m on MDI and CGM, No pump.
• Carb Ratios are roughly 1:15 g breakfast, 1:10g lunch, 1:7.5 g for dinner.
Much of what I’ve said above is linked to a generic way I tackle my Football or Futsal but there are some subtle differences I employ between the two because the intensity of the two sports is very different. This has a drastic impact on the reaction of my glucose levels and the way I manage them during and afterwards especially. So I’ll show you some of the key differences below:
Football (Example is preparation towards a Saturday 3pm Kick Off)
  • Aiming to be 7-8mmols to start the game and throughout.
  • Ensuring my pre-game meal & bolus is 3 hours before kick off.
  • Reducing pre-game meal bolus by roughly 10%.
  • Half time testing and adjusting based on level. If I’m below 9mmols I’ll take on 10g of carbs to cater for the second half dip and even more if my levels are below 5mmols. These choices very much depend on length of time you’re going to play and how hard the game is. If it’s a tough game with a lot of chasing then I sometimes have an extra 5-10g of carbs. If I’m over 13mmols I’ll take on a unit of insulin.
  • Post game meal I reduce my bolus by 25-50% depending on how much I’ve played and the intensity of the game.
  • I try to make my post-game meal both full of protein and carbohydrate to help with the recovery of glycogen stores and muscle growth/repair.
  • I will have a bed-time snack of 10-15g without a bolus to try and alleviate the nocturnal hypo risk. (If I’ve played a whole 90 minutes, I’ll scale all of this back if I’ve played less than that)
  • I don’t adjust my basal insulin because I use Tresiba, which is an ultra-long acting insulin and this will have no effect on my risk of a nocturnal hypo.

Futsal

  • I like to start the game at 5mmols if I can, because despite being lower,  I’m still likely to need a small bolus before the game or at half time to manage my levels rising as a result of the higher intensity and expected spike.
  • Because of the roll on, roll off substitutions within Futsal, there’s a lot more opportunity for adjustment. So I always come off from the court and immediately check my CGM and look for the trend arrows and glucose level.
  • I always tend to carry a bit of short acting insulin in my system because for me within Futsal, knowing I have frequent breaks and the likely impact of the intensity (levels rising), I’d rather be lower and taking on some glucose, as it reacts quicker than my insulin, than being too high and waiting for my insulin to kick in. The important factor for me is having a glucose level which allows for performance, not the number of adjustments I have to make.
  • I will always have a protein bar/snack post game of around 20g of carbs because I tend to have a sharp drop in my levels post game. Probably as a result of carrying short – acting insulin during my sport and the intensity.
  • I don’t make any bolus adjustments post – game to my meals. Again I’ll eat a meal heavy in protein and carbohydrate.
  • No basal adjustments as a result of using tresiba.
  • If I want a bed-time snack I’ll bolus for it with a small reduction of 25%.
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I really hope that this is a useful post for people out there trying to tackle football or futsal for the first time, or who might be finding it challenging currently. If something from this article helps someone out there get more from their performance or just allows them to enjoy it more I’ll be happy!! Please give it a share if you can because I’m sure you’ll know someone who may also find this useful.
I’ve also added my slides from the #SporT1Day Conference to the bottom of this post if you wanted to see what I shared on the day, which also has much of this detail in.
Thanks for reading and I wish you all a happy and healthy new year! Please also be aware of the below disclaimer.
Chris
Disclaimer – Always remember that this a personal perspective and is not endorsed by a medical professional. So any advice or ideas you take from this post is at your own risk and should always be cleared by your diabetes team. 

Chris Bright Presentation 2019 ( #SporT1Day Conference )

World Diabetes Day 2019 – Chris’ Message

A day that I remind myself to thank the great Sir Frederick Banting for the gift he gave me, a chance to continue living my life despite being diagnosed with Type 1 Diabetes. His co-creation of Insulin in the 1920’s has saved millions of lives, including my own, from a life cut short by this condition. This day is about you my friend, as we celebrate your birthday and the gift you gave us.

With that extra time you’ve given me, I hope I’ve done you proud. I’ve done my best to defy the pitfalls of Diabetes and use the experiences I’ve worked hard for and been fortunate enough to have, to help others that share this condition with me. I feel that your gift to us all is one I won’t overlook or take lightly, and if I can gift anything back to others like me, then I will at least be living in a way which befits your legacy. I know I’m lucky I’m still here, with the developments of science, and in particular the incredible NHS, to thank for the life I’m able to live in 2019. Others round the world still aren’t as lucky as we are here in the UK and I’ll always be grateful for what we have.

Through the work of TDFC, the honour of representing my country within Futsal and my advocacy work for the condition, I hope I do what I can to ensure the time I’ve been given back is not wasted. I’m able to live a life which I decide upon, not my condition, which is all thanks to you, Sir Frederick Banting. There is another person I want to talk about though today…

A man whom I’ve rarely mentioned publicly when talking about Diabetes is my grandfather who also lived with Type 1 Diabetes. He was diagnosed at the age of 21 in 1956 and lived 40 years with type 1 before he died in 1997. 40 years of living with the condition whilst having only the use of animal insulin and without the medical support/devices we have nowadays to help us control it. I think to do that was pretty amazing and even though we met for just a short period in my life, I’m just glad I got the chance. A man with an incredible story, who defied the odds more so than I have in my opinion, that I wish I’d have had the chance to get to know more.  I was very young at the time of his passing and at this point I hadn’t been diagnosed with Type 1. I’m grateful he never saw a day where I was diagnosed with the condition (My Mum is too!) , which had potentially passed on a generation to me, because I know he’d have been devastated. But more than ever I wish he’d have seen the work that has been done through The Diabetes Football Community. In the face of what we both lived with, I’ve tried to tread a positive path, which I’m hoping many others can follow.  I know he will have been extremely proud of this project and I’m sure he’s looking down smiling upon it all from wherever he is.

I wanted to talk about both of these men, whom never knew I lived with Type 1 Diabetes, because of the lasting impact that they have had on my life. A day of remembering Sir Frederick Banting felt like the right time to remember my Grandad too. A day full of positivity surrounding Diabetes that I want to dedicate to them both.

My life now consists of ensuring I do them both proud by ensuring I live a life full of positive experiences, whilst sharing the journey and helping others with the condition fulfil their potential in sport. If I can do that I’ll be a happy guy and I think they would be too. I’ve now lived with the condition half as long as my Grandad did, with this year marking 20 years. I hope by the time I hit 40 years since my diagnosis, diabetes will be something we remembered we lived with not something we continue to.

So what’s my lasting message for World Diabetes Day?

Be grateful for what we have, treat the time we have as a gift and don’t let Diabetes define the way you live your life. See it as an extra hurdle to jump not a mountain to climb.

This one is for you Grandad & Sir Frederick Banting…. I hope I’ve done your legacies proud.

If you want to see an incredibly inspiring story from Katie McLean who’s sharing her story publicly with us for the first-time head to the below link:

https://www.youtube.com/watch?v=8QbZR6alWBw

And make sure you don’t forget to pick up your tickets to #SporT1Day this Sunday at the University of Worcester (17th November 2019)… We still have a few left and you can get your hands on them on the below link:

www.eventbrite.co.uk/e/sport1day-2019-tickets-59520275747

Have a great day everyone and Happy World Diabetes Day 2019!

Chris

Our Journey with Type 1 and Football…

Another amazing story to share with the community brought to you by Karen Brown, the mother of Ellen, a young type 1 who’s having a fantastic time with her Football/Futsal at the moment. Ellen & Karen have been big advocates and supporters of our work at TDFC from the very early days so it’s brilliant to be able to share their story! No more words needed from us, over to you Karen…

“Our daughter Ellen was diagnosed at age 8 with type 1 diabetes. As you all know it hits like a bomb and the early days are hard. Somewhere amongst the haze of diagnosis we made a decision that when we got Ellen home we would stabilise her doing all of the sport she usually did. So the day after discharge we took her to school for a few hours and the following Monday she started back swimming. I sat on the edge of the pool chewing my nails hoping she would be fine. Strangely enough the year she was diagnosed is the only year she hasn’t played football (played 1 year of netball and hated it!). Ellen prefers to manage her diabetes with a pump (Medtronic) and we use CGM periodically.

Since then it has been buckets of football and within the last 4 years she has also played futsal in the off-season. It is amazing how different the two are to manage. Football often sends her low- particularly in the cold Canberra winters (we live in Australia) whereas futsal sends her high due to the adrenaline. As futsal isn’t as big in Canberra her futsal club (Boomerangs FS) travel to Sydney to play in a Sydney comp. So every Sydney game we travel between 2 ½ to 4 hours each way (depending on what side of Sydney the game is) to play. The weather in Canberra is quite dry whereas Sydney can be humid which can affect Ellen’s BGLs (sends her low) so at the half way stop en route to the game we reduce insulin if she has any carbs and put a reduced temp basal on. We find doing low carb on the morning prior to the Sydney trips much easier to manage. At least we are only fixing the humidity problem. Then during the games she heads high! Sydney games we nearly always use CGM to help keep an eye on things. If it’s a home game its breakfast as usual. After the game she eats what she wants.

Ellen Brown Picture 3

Whilst having diabetes can be tough when you are playing football and futsal, we run at it with the attitude that if we have a tough day diabetes wise we look at why and see if we can do something different. There are days when you just can’t explain why the numbers are what they are! All of her coaches and teams have been really supportive and the boys often try and guess her Blood Glucose Level – she plays in the Boys National Premier League. Ellen also chooses to celebrate her ‘diaversary’, so the team usually hangs out for the cupcakes she takes along to celebrate another year kicking the butt of diabetes.

Having diabetes hasn’t stopped Ellen from achieving in soccer and futsal. The last 12 months have been particularly rewarding!!! 12 months ago her girls futsal team won both the premiership and championship in the Sydney comp. For outdoor her BBFC U16’s team made the Grand Final and won in a penalty shootout. She then made the ACT team (regional team) to play futsal at Nationals in January – they were runners up in the Grand Final in a penalty shootout. And a couple of weeks ago at the presentation night for Boomerangs FS, Ellen was awarded female player of the year. We are pretty proud of her. Winning isn’t everything but it is great to get some wins and they have been a while coming!! Though I must say the victories are much sweeter after the effort you put in to get the diabetes right. (excuse the pun!)

Ellen Brown Picture 1

As much as it is a challenge, there have been lots of good things about having diabetes in our lives for the last 8 years. We have made a whole new bunch of friends we wouldn’t have otherwise met. Whilst it is so nice being able to converse with those who understand the challenges and learn new things from. Ellen has had the opportunity to speak at JDRF fundraisers and she was recently asked to take part in some research at ANU.

Being part of TDFC has been a huge help though. It was so nice to hear from others who play football and be able to read about their experiences. With Ellen being a girl it was so nice to read about Noel and what she has achieved. We got to meet Zac (UK DiaEuro Player) at one of Ellen’s games in Sydney and hope to see him again soon. Whilst it’s also great to see that Chris represented his country in Futsal, which gives Ellen so much hope she can achieve the same.

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To any young footballer out there, chase your dreams. Ellen’s favourite saying is “I don’t live with diabetes, diabetes lives with me”.”

 

A really great blog written by Karen Brown and a huge thank you from us for putting it together. If there’s anyone out there reading this who’d like to contribute in a similar way get in touch! We’re always on the look out for blogs and stories to share…

It’s much more than just Football or Futsal… Part 4 (Zak Brown)

In our fourth instalment we feature Zak Brown… Zak is currently living and working in Australia but has been heavily involved in all things TDFC throughout 2018 as a pivotal member of the UK DiaEuro squad, whilst also heading out to Ireland with Chris to observe the Diabetes Junior Cup… Zak’s passion for the project is evident and in this post he shares his thoughts on how being involved has helped him! No more words from us, over to you Zak:

“I think firstly and foremost, the opportunity to meet several other T1D’s with a passion for football was amazing in itself! To then be able to discuss our condition as we went through very similar schedules during DiaEuro was great – having a diabetes discussion with your team-mates was like having 10 nurses beside us, as they added great value through personal stories and specialist advice.

The access to technology was a huge thing for me personally. I was a bit skeptical of the Dexcom G6 initially, as I have been on the same insulin and blood sugar testing strategy for a number of years and been relatively consistent (HbA1c usually between 50 and 61). It took a couple of days to adapt but several months later and I wish I still had the G6. I regularly see T1D’s on social media posting about how much the Dexcom has improved their control in recent times.

The other thing which was highlighted for me was the carb counting. I have generally just guessed my insulin based on what I am eating and knowing how it has affected my sugars in the past, but to see plenty of my UK team-mates measuring the carbs on their packets of food and calculating their dinner plate in the their head was a good insight for me; and pushed me to start making more calculated guesses with my own carb intake as life and diabetes continued after the tournament.

Whilst I wouldn’t say the experience has directly improved my control yet, I think it has acted as a gateway for me to access more information, attend diabetes meet-ups and possibly gain access to modern technology, which I expect will have a direct improvement on my Type 1 Diabetes control moving forward! Only time will tell…

Zak Brown

UK DiaEuro 2018 Player”

If you want to follow Zak’s journey on social media head to his twitter @mrzakbrown or his instagram @zakbtown

It’s much more than just Football or Futsal… Part 3 (Jack O’Brien)

In our third addition we share the thoughts of Jack O’Brien… Jack has a fresh outlook on the way Diabetes has impacted his life having been diagnosed quite recently! His account offers some great insight into how a newbie to type 1 Diabetes feels about the challenge of this condition coming into their life… No more words from us let Jack do the talking…

“First of all, I think I should point out that I am a relative newbie in the Diabetic world having only been Diagnosed 2 years ago today! (I wrote this on 6th Feb). DiaEuro was only the second time I was going to be away from home, and all the supposed safety that comes with that, since I was diagnosed.

To say I was nervous doesn’t really do it justice! I was fully aware that I was going to be spending the week with a group of people who have for the most part been Type 1 Diabetic for a long time. The fear or seeming like I don’t really know what I’m doing, or “messing up” all the time was playing on my mind because this was for me the first time I would be spending a prolonged period of time with other Diabetics. It’s funny how weird things like this can play on your mind! I was seriously still at a stage where I felt like it was only me who suffered from hypos because everyone else would have it under control!

The first morning we are there, we all go down to breakfast together as a squad to enjoy the spread of food that was being put on. It was this experience that alleviated all the pre concerns I had. Seeing most of us checking sugar levels and injecting insulin immediately eased my nerves. This was something that I found awkward to do beforehand.

Before you knew it, Diabetic chat was bouncing around the table. The same problems I found, others were also talking about. In a weird way, if felt so liberating! That sense of not being in something alone, that others have found ways to overcome similar situations and have come through them to find solutions was amazing for a newbie to hear.

You hear the phrase “trial and error” thrown around a lot when it comes to Diabetes, and I really understood that so much more after this journey. A corner was well and truly turned for me during this week. I am now playing sports more regularly, because I feel more confident. Understanding food on the day of playing football is something that is so important. Seeing other people using the Dexcom looked brilliant. Once I finished my trial run, I missed it so much that I signed up for 12 months.

 

 

 

 

 

The whole experience was invaluable to me. I learned more in that week than I would have done in years studying books and speaking to specialists. Seeing people who regularly play sport and manage their Diabetes gave me so many tips and ideas that I use myself now. There really is no better experience than experience itself.”

Thank you to Jack for sharing his thoughts on how TDFC has helped him and the UK DiaEuro team in particular. If you want to follow Jack on social media you can find him on Twitter @DalstonGooner … If you want to know what’s going on at Arsenal FC Jack’s your man to follow!!

2018… Looking back to look forward

Firstly I’d like to wish all of our followers, volunteers, players, coaches and anyone involved in the TDFC family a Merry Christmas and a happy new year!

What a year it has been…. We’ve done some incredible things in 2018 and I really just wanted to summarise what’s happened, thank some of the amazing people who have helped us make it happen and look forward to what 2019 might bring for The Diabetes Football Community.  

So where do I start…

For me one of the most important projects to highlight and look back on was one of the first in 2018. The 24 hours in the life of a Diabetic Footballer ( #WalkInOurBoots) was an important awareness and education project which showcased the Andrewartha family and Mitch’s battles with type 1 as a young footballer. This video fills me with immense pride every time I watch it. For me it encapsulates everything about living with type 1 and wanting to play football during childhood. It showcases the immense physical and emotional strain it puts on the family, as well as the incredible amount of preparation and determination needed from Mitch and his parents to get him out there playing on a Saturday. Every time I watch it back I’m inspired, moved and so grateful to the community we’ve created for supporting our ideas and projects. We do it for you and we couldn’t do it without you!

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A massive thank you to Dave, Faye & Mitch for agreeing to do the documentary and their amazing performances! Also a huge thank you must go to Ferenc Nagy who filmed and edited the video. A great job buddy…. If you want to check out the documentary head over to the below link where you can find the video:

https://www.youtube.com/watch?v=ZWjlrLbvWr4&t=39s

The #WalkInOurBoots campaign was just the start!!! We then focussed on creating the first ever all Diabetes team to represent the UK and compete at the European Futsal Championships for people with diabetes (DiaEuro, www.diaeuro.org )… We don’t like to do things by halves! From the outset I knew it would be ambitious and extremely challenging to not only recruit players living with diabetes, but also to recruit members of the “staff” team who were willing to give up their time for nothing other than the experience (thank you to Harley, Paul & Jahna)! But what about the money?!! It’s quite expensive to get 14 people on a plane with kit and a roof over their head for a week!! A massive thank you must go to our sponsors Dexcom, Gluco and Havas Lynx for supporting the project in 2018 as we couldn’t have done it without you! As I look back now… A year ago it was an idea in my head which I’d just started to share on social media….  A year later and we’ve played in our first tournament and are planning for our second…. Sometimes I have to pinch myself to check it’s all been real! It was an incredible journey and achievement to create the team, manage the project and play in the tournament. Being stood alongside my 10 fellow type 1’s to represent our country and our condition was something I’ll never ever forget. Scoring 2 goals in our first win just topped it all off for me…. It still feels like a dream to me. I’ve made lifelong friends through this project and I hope the community draws a huge amount of inspiration from what we were able to achieve! With everyone’s support I hope this is a project and team I hope we can continue for many years to come…

 

https://www.youtube.com/watch?v=Sf8n6LSLRRM

Whilst we were busy planning for DiaEuro we also joined forces with 1BloodyDrop and the University of Worcester to deliver the first Type 1 Diabetes and Sports conference in the UK led by people with Diabetes for people with Diabetes ( #SporT1Day ). An idea conjured up by myself and Paul Coker, we wanted to bring people together to further the knowledge of sport and exercise management for those living with type 1 diabetes. We tried our best to bring in speakers which demonstrated a variety of sports, approaches and experiences to offer a rounded view of type 1 management in sport and exercise. The line up included type 1 professional athletes, university lecturers, a psychologist and sporty individuals keen to share their experience of managing the condition.  It really was a special event which I loved hosting and presenting at. I hope that everyone attended continues to utilise the strategies shared on the day and due to the overwhelmingly positive feedback we received it’s something myself, Paul and the University are looking at re-creating in 2019 so keep your eyes peeled for that. A huge thank you to those who attended and to 1BloodyDrop and the University of Worcester for co-creating this amazing event! If you want to read up on the 2018 conference check out the below blog post:

(https://thediabetesfootballcommunity.com/2018/05/28/the-first-sport1day-conference-organisers-perspective-chris-bright/ )

 

I feel that whilst we try to support people with the condition through advice, education and support through the community’s projects and members, I’ve always felt we need to try and drive change in a mainstream environment to counteract the stigma and stereotypes myself and many others have experienced. To do this I felt it was important to bring stakeholders in the Diabetes and Football world together to strive for change. In July 2018, we had the first Diabetes Steering group meeting led by the Worcestershire FA to do just that. We’ve invited the local university, the local NHS, members and volunteers involved in The Diabetes Football Community as well as parents of a child living with type 1 to join us within the group. Our remit is very much about trying to improve the knowledge and awareness of Diabetes within Football to improve the inclusivity of those living with the condition within the game. So far we’ve had 2 very positive meetings with some brilliant ideas coming up which we hope to develop forward into 2019. It’s a hugely positive step in the right direction which I’m sure will see tangible results for the whole community in the not too distant future!!

Around the time of our first meeting I also went over to Ireland on a scouting mission… Myself and Zak Brown (Our UK DiaEuro Manager’s Player of the Tournament), had spotted online about a junior small sided football tournament taking place in Dublin for children with diabetes and with the nature of what TDFC does it was something we couldn’t afford to miss… Ever since I started TDFC up the support of parents and children coping with type 1 diabetes has been incredible and this was an opportunity for us to do some fact finding for the future… I want us to deliver a project which really gives back to this group of people and I promise that we’re planning something for 2019, I just need to get my masters out of the way first!!! Diabetes Ireland did an amazing job at delivering their tournament and celebrating the successes of the children who took part. I was just so glad we were able to attend on the day and thank you for your hospitality… If you’d like to read up more on this check out the below blog post:

https://thediabetesfootballcommunity.com/2018/09/10/diabetes-junior-cup-2018/

 

I think one of our last projects is perfect for this time of year! If you need any inspiration around this festive period or you’re finding things tough I urge you to watch our World Diabetes Day video below… The kids did an amazing job at sharing their thoughts and they get me every time! It’s very special seeing the way the community has come together to support what was an idea floating around in my head. This is all about you, the people who interact with us, and as long as we continue to hit the mark by educating, supporting and inspiring you, I’ll be delighted! Thank you to everyone who contributed to this video!

https://www.youtube.com/watch?v=C353oCtYH2U

A year I will never forget and one that has shaped the future for TDFC. We’ve become an official registered community interest organisation which has furthered the ambition and potential reach for the future, we’ve received recognition on local BBC radio stations and social media, we’ve exhibited up and down the country at conferences in the Diabetes world and continued to grow our social media presence throughout 2018. None of this is possible without the continued support of people in the Diabetes community so all I’d ask is if you like what we do, please keep sharing, raising awareness and getting in contact with us. We will always need support and funding to make our goals happen so whether you like, share and retweet our posts or you’re able to help us with sponsorship or donating to the cause everything is valuable and we appreciate it so much.

 

But let me give you a sneak peak at what we’re thinking for 2019…

There will be more of the same but hopefully with some exciting new developments alongside projects we already have in place.

The UK DiaEuro Adult team will be continuing with an emphasis on the DiaEuro tournament in 2019 whilst also creating opportunities to play against our near neighbours in Ireland who are creating their own team. I’m seeing an exciting future for our local rivalry!!! Another exciting participation opportunity for the adult type 1’s in the London area is the creation of TDFC London,  project managed by our man Bryn White to take part in the London Futsal League (https://www.facebook.com/LondonFutsalLeague/) as an all diabetes team for the very first time. They will be kicking off for their first competitive game in February 2019, so keep an eye out for the developments on our social media and if you’d like to help support them, get involved with the project, play in the team or sponsor please do get in touch!

As I mentioned we hope to re-create the #SporT1Day conference in 2019 that takes on the feedback from last year to offer a bigger and better event! I’ll be working with Paul and the university to see when and how we go about doing this over the coming months… As always any ideas you may have make sure you get in touch.

As I alluded to within the Ireland trip I mentioned earlier it’s definitely time we tried to put a participation opportunity together for our type 1 kids and their parents out there. I’d like us to work towards delivering a day/tournament in 2019 but this will as always rely on support from the community, sponsors and volunteers to make it happen but it’s something I’m really passionate about creating, so let’s give it a shot!

Lastly, I’d suggest that our emphasis around education will be pushed further as we continue to develop the Diabetes Steering group and partnerships with other organisations to champion education on diabetes throughout different walks of life. We’re really keen to ensure we develop resources and tools to drive further understanding and awareness within mainstream environments/sport whether that is with the FA, schools or clubs. If you have any ideas about how we might do this we’re all ears.

Right… I’ve talked far too much on this blog but I felt it was important to demonstrate the amazing work we’ve achieved in 2018, our amazing community and the ambition we have for the future. The wave is coming and growing in size. Patient led initiatives like ours are beginning to help shape the way people are supported with chronic medical conditions and I couldn’t be prouder to be the founder of this one…

A favourite saying of mine at the moment is dream big, then dream bigger. If we can achieve all of this in one year, myself and TDFC need to set our sights on doing it bigger and better in 2019! Which is exactly what we intend to do.

Lastly to anyone out there who might be reading this, in any part of the globe, if you like what we’re doing or want to get involved please get in touch! We know that our work isn’t confined to the UK where we’re based and the ideas we generate are mostly what we come up with! If you’d like to help in any way or work with us, you know where we are.

As always a huge thank you to the directors and volunteers who give up their time to support our cause, we couldn’t do it without you! Let’s make 2019 bigger and better than what has gone before.

 

Merry Christmas and a Happy New Year!

Chris

Food Series Part 1 – Healthy Eating: Getting the balance right

My name is Jo Hanna and I am one of the Diabetes Dietitians working at Poole Hospital but also a huge exercise enthusiast! I’ve been a Dietitian for 8 years now and working in diabetes for 5. Secretly I always wanted to be a Sports Dietitian working for Manchester United! I grew up playing football and most of my childhood was spent as the token girl in the team, even playing for Dorset under 12s. Football was my true passion but sadly for me at the time football was still considered a ‘boys sport’ and once I reached the age of 12 I was told by my school I could no longer play football with the boys. I was devastated by this at the time and although I got back into football at University it was too late for me so I ended up running instead. I have pushed myself in this area, winning 6 of the Dorset Road League races last year in addition to my greatest achievement, a sub 3 hour London marathon.

Exercise for me, as I’m sure it is for many of you is my stress release and plays a huge part in my self-esteem and social life. It therefore really saddens me that 36% of people living with type 1 diabetes view exercising to be a challenge. To be honest I’m surprised it’s not higher! I decided along with our consultant Mike Masding that it was worth trying to target this group in a specific exercise clinic to allow tailored advice around nutrition and insulin adjustment, to enable those struggling to enjoy their exercise and de-stress rather than the opposite. Training as I well know is challenging enough without throwing diabetes into the mix! I’m keen to ‘even the playing field’ in any way I can.

I decided I wanted to write for the TDFC to see if I can help advise the wider sporting community and given my passion for football in particular I thought this would be the perfect place. It’s inspiring to see the UK’s first all Diabetic Futsal team (Click for Players’ Blog) competing this summer as well as the results they achieved. I work with children and teenagers with diabetes too and feel these players are a great role model.

My aim is to write a different blog every few weeks with a few tips and hints to help you get your fueling right both pre, during and after. Often we tend to base our advice around timing and quantity of carbohydrates but as I have come to understand the quality of the carbohydrates and protein and fluid intake are also key components I would like to cover. I’m keen to help and advise in any way I can so please if you have any particular topics you would like covered just let me know.

Firstly today let’s consider your overall daily intake as it’s always best to review this whether you have diabetes or not if you’re serious about your sport. Often I’m finding overall carbohydrate intakes are inadequate as the focus tends to be around the actual activity itself. Football is a classic example of a sport that can actually result in quite stable readings at the time due to the fact there is a mixture of slower jogging and sprints. The bigger risk here is hypos after the game or training due to depleted glycogen and increased metabolism, this is a really important aspect to consider when avoiding the dreaded nocturnal hypos. To help avoid this ideally if you’re training regularly you need 50% of your intake to come from carbohydrates (including fruit).Protein should contribute approximately 25% of your diet (timing is key with this) and the other 25% should come from your vegetables and salad. Fat is likely to come alongside your carbs and protein intake but can also be a useful tool in helping to alter the timing of peak absorption of glucose from any carbohydrate. Don’t forget your fluid either as even if you have your glucose levels perfect if you’re dehydrated, even by 2% this will impair your performance.

Over my next blogs we can look at;

  • Carbohydrates-type and quantity pre, during and post (this might be a few blogs).
  • Protein -why it’s important and timing of this.
  • Fruit and vegetables-why these are important too
  • Fluid-getting this right

Feel free to contact me at Joanna.hanna@poole.nhs.uk

Chris Bright: Reviewing the 2017/18 Season

As it’s the end of #DiabetesWeek I thought it would be the perfect opportunity to share a blog about the completion of my 2017/18 season… A season of complete contrasts!

July 2017… As pre – season begins for most players and clubs involved in Football, I was in a plaster cast contemplating how this had all played out. Two 5th metatarsal fractures in 6 months and an operation later and I was staring down another 2 months until I could walk again, let alone run!  The worst injury I’d experienced in my sporting career.

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But anyone who knows me well, knows I don’t give up in the face of a challenge… This was a hard one but I was up for it!

The season was well underway by the time I could walk again on the 1st of September but after months of crutching around the local gym and using a handbike to do cardio, I was just so pleased to be back on 2 feet again. The key with injuries like this I’ve found is to celebrate the small wins as you progress towards your old self again… If you don’t give yourself the recognition of improvement it’s going to be a really hard mental and physical battle!

It wasn’t long after walking again that I was given the all clear to do some light jogging, which was a huge step in my mind, as I put some serious stress on the bone for the first time since the op. With any injury that keeps you out for this period of time the deterioration in muscle strength in your whole leg is a massive problem to also overcome as well as the concern for the injury itself.  I had a LOT of rehabilitation work to do but as I was accepted onto the Sports Scholarship scheme at the University of Worcester (www.worc.ac.uk) I knew I was going to have access to great facilities and people to support me on this journey back.

After 5 – 6 weeks of strength and conditioning, constant physiotherapy and some Futsal training sessions with the university futsal club, things looked to be progressing nicely in October.  I was getting used to my team mates, new surroundings at the university and the demands of the sport on my body again. I enjoyed it but things were painful… I spent a lot of the first 2/3 months in pain playing as my foot was weak and the muscles supporting it weren’t much stronger!

The first game back was towards the end of October, and when I say game, I mean 2 minutes on court just to see how things felt!! That’s the beauty of Futsal, you can roll on and roll off quickly with substitutions… It felt alright but I think it was a false sense of reality as I was still a long way off at this stage! There’s a lot of fear when you’re coming back after a torrid time which is hard to explain, naturally the body just tries to protect it so you move in a way which is not efficient or conducive of high performance. It took a good 2/3 months to get over this and I’d argue I’m still not fully there!!!

 

As things progressed and improved, I returned to my first national team Futsal camp in November 2018, almost a year after breaking my foot on international duty.  It was a great moment for me to see the lads again after spending so much time on the sidelines… I knew it was a tough ask to compete with the boys and their levels having only been able to run for just over a month and still playing in pain. Despite this I felt I gave a good account of myself but ultimately I didn’t have the fitness and games in the tank to really challenge for a place in the Wales Home Nations squad in 2017 as I narrowly missed out. Tough to take but understandable.

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But whilst the Wales boys were playing in Edinburgh, I had the opportunity to attend the England Universities Trials in London. Another great opportunity to push myself against good players and towards my ultimate goal of full fitness and playing at the levels I knew I could achieve. It was a hard session considering where I was at in terms of fitness but I was really glad I did it. It ultimately led to selection in the squad later that month which was great! The management of my glucose levels and getting them right for games/occasions was now starting to become important again as I was more involved whilst playing more and more game time. You’d think the old ways would work?! A year after the last time I played sport at that level and my body certainly didn’t play ball!! My levels were shooting up to levels I’d not seen at a Futsal game before and crashing more dramatically than I remembered. I think there’s a certain amount of trial and error in everything we do as Type 1’s but it’s about reducing the number of errors we make that will allow us to enjoy our sport. For a good couple of months I made plenty!

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As the festive season approached I also took the decision to get back to playing Football. I’d missed it and it was time to use the sport to help me get fit in December and January as the Futsal season tends to go quiet at that time. My old manager Quentin Townsend had inquired about my fitness a month or two earlier and I’d put it off to ensure my body was in a good enough place to cope with Football when I finally said yes! I signed for Pershore Town FC and played my first football match in 20 months on 19th December 2017 in a friendly vs Worcester City FC.

Before I knew it I’d played in 3 games in a week and it was like I hadn’t been away! There’s nothing like being thrown in at the deep end but I was just pleased to get back out there again. I’ve got to say a big thanks to the lads who made it so easy for me to fit into the squad half way through the season and enjoy the second half of it. If I’m honest the transition with my Diabetes back into Football was much easier than with Futsal… Because I’ve played Football for a lot longer it feels a little more natural in terms of the routine I go through to manage type 1, so there was only really 1 and a half games from the 16 appearances I made where I’d say things weren’t quite right!

I spent a lot of time learning about how to manage my diabetes around sport again… 12 months away is a long time and plenty of things change during that time.

But as I moved into 2018 things were looking really promising following the call up to the England Universities squad and with regular weekly game time. This was huge! I was playing a 90 minute game on a Saturday and then playing Futsal on a Sunday for about 4/5 weeks on the bounce and after that I was flying into the business end of the season.

My season was all about pushing myself in Futsal and enjoying the game time in football.  I wanted to come out of the season with some silverware with the university team with both the league and cup in our grasp. As we negotiated our semi final with a really tight 9-8 win vs a well drilled Loughborough 2’s team, I had a cup final to prepare for as well as a north vs south challenge cup as part of the England Universities squad.

Unfortunately we were unable to chase down the league title after a couple of disappointing results which meant we finished up as runners up in our division but we still had the cup to play for.

I won’t go into much detail about how the final went as you can read all about it on the previous blog post (https://thediabetesfootballcommunity.com/2018/03/18/the-cup-final-can-you-ever-get-it-100-right/)…

 

 

To go from that cup final and into the North vs South challenge cup just a couple of weeks later was absolutely class and well timed… I could feel I was on a roll and feeling good, so for me it was great to see the good form continue as I ended up as the top goal scorer in the tournament and with a Team South win 9-3 across the two games (6-2 & 3-1). I was finally able to show my ability as a result of the body being closer to a state which could showcase it! After this tournament and a couple of good results with Pershore, I pretty much knew the only meaningful game left in my season was the annual varsity ding dong derby between the University of Worcester and the University of Gloucestershire.

Varsity is a big deal for the students at the university you represent and winning the game you’re involved in is all that matters in the month of April! Luckily for us we entered the game in good form and were really confident that if our big players turned up we’d win the game… So it turned out to be the case. We ran out 8-3 winners and the team played a really good game in which we controlled it from the start to finish.  It was a cracking way to finish the season off and undoubtedly contributed to the way we were rewarded at the end of season awards night…

 

The University 1st team were given the “Team of the Year” award for our cup and league exploits, whilst my individual contribution to those performances and my representation of the university with the England universities squad led to me being awarded “Male Athlete of the Year”. An award I didn’t feel worthy enough of winning but one I was extremely grateful and very lucky and proud to have received! When last year’s winner was an Olympian and former commonwealth champion Matt Hudson-Smith (https://en.wikipedia.org/wiki/Matthew_Hudson-Smith), you can see why I didn’t feel like I wasn’t worthy of this level of recognition haha! Incredible all the same though…

 

I honestly couldn’t be prouder to have ticked all of that off this season, despite not actually being 100% at any point.  The key was that after all that time away from the sport I found my love for it again, the smile on my face was back when I played and I don’t think I’ve enjoyed playing like I did in 2017/18, since I was a kid. Sometimes the adversity can set you up for what’s next and I think the injury taught me a lot about fun and enjoyment that maybe I was missing beforehand!

I think this line sums up the approach I’ve taken over the last season and one in which I’ll try to continue for the rest of my playing career:

“Train like it’s the most important thing in the world, play like you couldn’t care less!”

However, one thing that I wanted to finish on surrounding Diabetes… After 12 months of being injured and focussing on my Diabetes more and more my Hba1c was 50 but as I returned to playing it went back up to 64… A really challenging question is…. What’s more important? I was called up to the England Universities squad, scored 5 goals in a cup final winning performance, won varsity and I won male athlete of the year at my university, yet my Diabetes control was worse. There’s no doubt my sport, the demands on my body and the responses my glucose levels have to exercise complicate overall control of the condition as my intensities of exercise differ so drastically!

I’d love to have some feedback on this… Because I honestly don’t know the answer but my choices have always involved enjoying life experiences over prioritising perfect Diabetic control but I’d love to hear what you think…

Finally I’d just like to thank a number of people who’ve supported me hugely throughout this season, my family for your continued support, to Dan Allen (https://www.instagram.com/da_training_and_performance/), Jamie Harrison and Marc Scriven for their strength and conditioning support, to Sally Smith and Lewis Miller for putting me back together each week with their sports therapy support, to the University for their providing great facility access and lastly to my teammates and coaches who’ve made me feel welcome and whom have played well so often this season! We win and lose as a team….

All in all a progressive season after one of the hardest periods of my sporting career with so much to look forward to in the 2018/19 season!

Chris

The First #SporT1Day Conference: Organiser’s Perspective (Chris Bright)

After months of phone calls, organising, negotiating and talking about #SporT1Day, May the 13th 2018 has been and gone…….But what a day!!! It was our first foray into creating an event which provided education and inspiration in one big dose! Before I even start talking about the day I’d like to say a big thank you to Paul Coker at www.1bloodydrop.com and the University of Worcester (www.worc.ac.uk) for partnering with TDFC to deliver the conference. I’d also like to extend the thank you to those people who helped us organise, run the day and tidy up afterwards!

Building up to it I’d spent the previous week stressed, writing my presentation and critiquing everything myself and Paul had put in place as I strove for perfection… I knew deep down this wasn’t possible but I wanted the event to look as professional as possible whilst delivering the overall objective of giving the attendees tips, guidance and education about Type 1 Diabetes management in sport. I think we did a good job at trying to deliver that!!!

The day itself was an absolute whirlwind for me but I loved every minute of it…

I arrived with Alex at about 8:30 to ensure that we had the venue looking smart and the registration process in place… It took us half an hour,  but by 9 am we had it all sorted! At this time myself and Paul took up our places on the registration desk to welcome the delegates, check them in and give them their goodie bags! It was great to see so many smiley faces with an early start on a Sunday but I could sense the excitement in the attendees and in myself and Paul.

10 o’clock came around quick! This was the moment myself and Paul opened up the conference and after we’d rounded everyone up and guided them to the room it was time to begin the proceedings! We were keen to introduce and stress the importance of learning and education in our opening, with as few words as possible, due to the amazing speakers we’d lined up.

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Following the warm-up we started as we meant to go on… With a cracker!

I’d spent the last few months getting to know Chris Pennell and his work with the Type 1 Diabetes academy based at Worcester Warriors, so it was only natural I should ask the first Type 1 Diabetic to score a try for England, to be the first speaker at #SporT1Day.  Like Chris’ career, he did not disappoint!! We heard stories of Chris’ life and his approach to Diabetes management, which caused a stir in the room, whilst he talked about the endeavours of being a professional athlete with a chronic medical condition.

2 comments really stood out to me from Chris’ talk… The first was his reference to himself as a “plastic Diabetic” which he explained was because he felt he’d had an easy ride by being diagnosed as a 19 year old after the difficult years of school and being a teenager. I felt this was a direct reflection of Chris’ work with Type 1 Children in his academy and the stories he’s heard from countless families about the battles they face… It is difficult but we come through it stronger.

Despite the amazement in the room at Chris’ dietary approach to type 1 combined with his athletic lifestyle, I actually felt he made a really interesting comment about becoming a better Rugby player because of living with the condition and the discipline it taught him. An interesting concept I’m sure many type 1 Diabetics won’t have considered. I’ve always thanked the condition for making me more determined and motivated to achieve whilst I understand the impact it’s had on my ability to plan and organise, so it wasn’t too much of a shock to hear Chris say that but I wonder how many others in the audience were expecting it?  It was fascinating listening to Chris’ story and I can’t thank him enough for agreeing to share it with us! I appreciate it mate.  

After Chris shared his experiences for us it was the turn of Matt Cook, our Sports Nutrition expert and senior lecturer from the institute of sport and exercise science at the University of Worcester. Matt isn’t an expert in type 1 Diabetes but I felt he did a great job in demonstrating the academic literature out there and how it corresponds with Type 1 Diabetes. It gave plenty of our audience quite literally “food for thought” as he demonstrated the recommendations and gaps in understanding for people living with the condition from his sports nutrition perspective… I really enjoy getting the perspective’s of people who aren’t well accustomed to the condition as it brings an unbiased representation of the facts, which is important for those of us living in the world of Diabetes. Matt did a great job of positioning what we do and don’t know about the condition in relation to sports nutrition and management and I think the whole room got a lot from his talk. Thank you Matt!

Following a really quick coffee break… We moved onto the “Legends” of the type 1 diabetes world, Mr. Paul Coker, my co-organiser, and Mr. Pete Davies a man whom has lived with Diabetes over double my own lifetime! They both have epic stories to tell which I’d struggle to do justice with words so I’ll just try and describe the theme of their talks. I’d seen Paul speak a couple of times at other events about running 40 half marathons in one year to celebrate 40 years living with Type 1 Diabetes, but this was the first time he wanted to break down his routines and try and give the audience something tangible to take away and utilise in their own exercise regimes. I was watching many members of the audience frantically scribbling down, which was a huge indication of the quality of the information Paul was delivering. I think we all learnt something from Paul’s presentation. We won’t mention the fire alarm going off (a minor hiccup!).

We then met the man who’s surpassed 60 years of living with Type 1 Diabetes, Pete Davies. What a guy and wow has he seen some change over the years! I saw Pete speak at TAD (Talking About Diabetes Conference) just a couple of weeks prior to our event and his talk was super inspiring so I was just pleased we’d secured him for our first conference. His presentation involved demonstrating the changes in Diabetes care over time as well as the amazing treks and expeditions that he’s been involved in. I think everyone in the room felt very lucky to have the access to technology surrounding Diabetes care that we now have within society. I certainly did! It’s a huge eye opener to think that 50/60 years ago people living with type 1 Diabetes weren’t expected to live much beyond 40 which is something I’ve certainly taken for granted! A quality presentation from Pete and a huge personal thank you from me for your support for the event!

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After we’d spent the lunch break talking about the morning’s talks, I was preparing to take to the stage for mine! After watching some of the amazing presentations during the morning I felt I had a lot to live up to…  The approach I took was to talk about the journey I’d been on from diagnosis at 8 years old through to founding the Diabetes Football Community with snippets of detail about diabetes management mixed into it. I just hoped that people that listened to me took something from the talk… It was honestly a pleasure and a privilege to be able to talk about my own experiences and views on the world of Diabetes. I felt the talk went pretty well, up until the moment technology let me down and didn’t play the videos I’d included!!!  Alas, it’s in those moments you just adapt and crack on! Hopefully next time I won’t be let down in the same way! I thoroughly enjoyed it and as I finished up I had the honour of introducing Craig Stanley, a former professional footballer whom has lived with the condition for the majority of his career.

Craig’s talk was a fascinating listen for me, as I’m sure it was for the audience, as I’d always dreamt of being a professional footballer and having missed out on that opportunity a couple of times, it was amazing to hear from a man who lives with the same medical condition I do and who’s lived that dream. Craig’s talk mixed in humour, stories from his career and a constant relation to his routines and experiences with type 1 diabetes within professional football. It was my personal highlight of the day, as a part time footballer and founder of a community based on Football and Diabetes, to have Craig there was extra special.  He was a big hit with the audience and was asked a number of questions post presentation and throughout the day. I’ve had the privilege of getting to know the man over the last few months and he’s a really top bloke and I can’t thank him enough for his support for the conference and our UK all Diabetic Futsal team.

Following the final break in the programme it was onto our final speakers… Georgia, Alex and Emma.

I’ve been in contact with Georgia for around a year or so now as she’s been really supportive of The Diabetes Football Community and spreading the word of what we’re doing, so it was only natural with her experiences as a Diabetic intent on living a healthy lifestyle encompassing weightlifting that we asked her to be a part of the day. Georgia quite openly expressed her experience with Diabulimia (google it if you haven’t heard of it) and her passion for exercise and a healthy lifestyle within her talk. With Georgia being a Radio DJ she showcased an engaging style and female perspective to an otherwise male type 1 diabetes line up which really captured the audience’s attention. You could see the impact she had on the attendees as her Q & A session was almost as long as her actual talk!!! It was wonderful to have Georgia with us and I’m just glad she said yes when I asked!! Thank you.

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Georgia’s talk led quite nicely onto our penultimate speaker, Mr. Alex Richards. A good friend of mine and an expert in Sport & Exercise psychology whom has become a really important fixture in the work of The Diabetes Football Community over the last few months. His work has been appreciated and praised in the community for its unique and differing approach to the condition in sport. I think his work will become more and more important to diabetic athletes over the coming years and it’s definitely a “watch this space” message from me regarding the direction Alex heads towards over the next year. Much like the work he’s been producing, his presentation captured and engaged the whole room. His presentation focussed on sport, self-compassion and Type 1 Diabetes which to my knowledge is a subject seldom addressed by anyone before.  This groundbreaking look into sports psychology for Type 1 Diabetic athletes is something that I believe can make a difference and Alex is passionate about contributing towards. He did a fantastic job on the day and I think he was just as excited about the reaction from the audience as the audience were about his ideas!!! Thank you buddy.

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Last but by no means least, was our expert medical professional, Emma Innes. Emma has been a leading Diabetes specialist nurse amongst many other roles across her distinguished career, which has now led her into a role as a senior lecturer at the University of Worcester.  I was certainly keen to involve someone from the medical profession in the day as they have such a big impact on the lives and approach of people living with type 1 diabetes to sport. Emma cross referenced her experience in the profession with the recommendations for people with the condition exercising. It was a really insightful viewpoint on which to bring this epic first conference to a close.

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As myself and Paul wrapped the day up by thanking the speakers and audience for attending, I was absolutely buzzing from the excitement as well as being absolutely exhausted! It involved a lot of my time planning, organising, negotiating, communicating and ultimately delivering the day. In some ways I was pleased that it had come to an end but for the most part I was disappointed it had been and gone as I really enjoyed the experience.

As I drove myself and Alex home that night there was no doubt the positivity was radiating throughout our conversation and the question about the future prospects of another #SporT1Day conference was discussed… Why Not?!

After a day full of wonderful speakers, a great venue and with wonderful support from the Diabetes community, I’m not sure myself and Paul could say no to creating another conference. So our intention is to organise another #SporT1Day later this year… November is a month looking likely so keep your eyes peeled for our social media announcement and I hope it’ll be in a location where the community can continue to back us.

Lastly I must say a huge thank you to the University of Worcester for their support in hosting the event and allowing us access to staff members whom spoke, to Dexcom for supplying a starter pack prize to our most prolific Tweeter and to Gluco for supplying delegates with hypo treatment goodie bags.

An incredible day and the start of something quite special… Keep supporting us and who knows what we can achieve?!

Chris  

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